View Full Version : Four months of joint/muscle aches, twitches and worry
Hi all. Back again after a few weeks away from this place and could do with some friendly ears! Have had a few specific joint aches for a while but since about Feb I've been fretting a lot about what's going on. Since then I've acquired a lot more. It started with tennis elbow and a shoulder ache as well as a pain in the back of the knee that hurt when standing after crouching.
I now have a pain in my collarbone, at the base of my thumb and a strange sensation in my other shoulder/bicep (sort of numb and also a bit like the feeling you have a short while after someone hits you and gives you a dead arm!). I have days when I have lots of random muscle twitches too (like today - I have 5 or 6 different ones going off). Oh and I also have aches sort of just below both hips.
I've also had (but not for a week or two now) a really stiff neck, tingles in toes and fingers and a strong sense of fatigue.
I've had a blood test that came back clear and seen two Osteopaths and a musclo-skeletal specialist. They all think its postural and nothing systemic. However in my mind I don't feel I did enough to tell them about ALL my various aches and niggles and just focused on the core ones that I've had for a while (elbow and shoulder).
My mind comes and goes with how it deals with all this. For the most part though I'm continually weighing up whether it's MS, MND, Arthritis of some sort, CFS....I don't know. I just know I don't feel right and every time I do a simple task like get up to walk to the printer at work or kneel down for something I feel an ache or a twinge somewhere and I'm off again!
I am very aware of what anxiety can do and do believe that some of my symptoms could be due to that. I'm also in a very pressured job at the mo and don't get much time to relax at home so expect that's taking it's toll. However, it's the specific and constant joint aches that lead me to believe there is a common cause.
Sorry to bore you all with this! I guess it's just nice to write it all down even if nobody reads it! I fully intend to go back to the doctors in the next week or two and try and force him to help me get a diagnosis of some kind. I just don't know where to start. Sometimes when I hear myself explaining it all to someone, it just sounds so ridiculous - as if I've invented something new each time! I really do feel like I'm completely on my own.
hi eleven
are you are feeling foggy at times with these symptoms ? you say you have a stressful job and dont have time to relax it does sound a lot like your bodys way of telling you to make some adjustments perhaps
I do too feel like something is going on undiagnosed however when I am on top form all these constant aches and niggles and worry fade and then I think it is just me!
God I feel dreadful, getting myself into a terrible state at the mo. Am convinced it's Motor Meurone Disease. Both arms feel weak and floppy today and I'm still twitching all over. Looking at private Neurologists but they're over £200 each. Really don't know what to do.... :weep:
I just wanted to say I ve had the same feelings in my arm/shoulders for the past few months aswell so your not alone. I dont know what it is mind you but after reading about similar symptoms on here it sounds like tensed muscles from being stressed.
Hope you feel better soon try not to worry to much.
Been crying loads today, I'm terrified. Arms/legs feeling weak, twitching in loads of places and the same old pain in my shoulder arm and elbow that I've had for months. Can't remember a day as bad as this. Have made docs appt. and will get Neuro referral
Hi Eleven
So glad you have made an appointment to see gp. I too suffer with lots of muscular and joint pain. 3 years ago I was diagnosed with polymialgia rheumatica this is a form of arthritis. It is diagnosed partly by a blood test but usually presents in women over the age of 60. (which I'm not) Having taken steroids for the last 3 years I saw a specialist in march who thinks I was wrongly diagnosed and that I am more likely suffering from fybromialgia but I have to wait until I am without steroids masking my symptoms before he can give me a proper diagnosis. Anyway what I am trying to tell you is that your problem doesn't have to be neurological it could be muscular/skeletal or some other things and of course it could be simply down to anxiety. As you have already had various blood tests then it is unlikely to be anything too serious but try and keep an open mind and the biggest thing I have learnt is to write down all your symptoms for a few days before going to see your gp so that they can get a clearer picture of what is going on.
I hope you get an answer soon and I'm sure it is nothing serious.
Just woken up with both arms numb. Blood flow started again as soon as I moved them. Legs also feel a bit similar. :scared10: What is this? :weep:
Been crying loads today, I'm terrified. Arms/legs feeling weak, twitching in loads of places and the same old pain in my shoulder arm and elbow that I've had for months. Can't remember a day as bad as this. Have made docs appt. and will get Neuro referral
Eleven ..... the keyword you used was Terrified.... which could bring on so many of those anxiety symptoms. My Dr said the exact same line on me last Tuesday.
When you see the Dr.... Make a list on paper of all your symptoms so you dont forget, and if they say its anxiety, then you really should take comfort in that and start to relax and accept it.
Once you have accepted it, and employed some daily relaxation techniques it will take a few weeks for all the symptoms to subside.
Still need help! Have had MRI of spine and neck which neuro said was ok and an EMG/muscle test which they said was alright. My twitches are driving me mad though. Both calves are pulsing almost all the time and I get twitches all over the place too. Have pain in hip/top of thigh that seems to pass down my leg.
Am in a right state worrying over MND/ALS etc. These twitches are really getting me. I just don't feel the tests I've had were in depth enough. He just said "they seem ok". But then said the muscle tests would only pick up peripheral things like a trapped nerve?
Really need help. Don't know what to do now.
Southern_Belle
26-08-08, 18:47
Hi Eleven,
Sorry you are feeling so bad. Have you seen a Rheumotologist yet? My hubby's legs twitch and move all night long and he has been diagnosed with Restless Leg Syndrome which is not dangerous at all. I can put my feet on his leg while he is sleeping and his leg will jerk so hard it pushes my foot off and he doesn't even wake up. On the commercials on tv it states that it can happen during the daytime too but it hasn't gotten to that point with him yet. There are meds to take for this condition. I'm not saying this is what you have but it isn't dangerous. Hope you feel better soon.
Take care,
Laura
They don't twitch and jerk like that. It's just small pulses/flickers if you know what I mean.
I am going through a similar thing at the moment. I have tennis elbow and have found out that someon e we know has MND. I get all the symptoms you are getting, plus shooting pains in my hands and legs.
I had a blood test a while ago. Full blood count, liver and kidney test. Think this will show up spme sign of MND?? So if you have had a blood test, then I wouldnt worry to much. I remember seeing the doctor write down ASL test. Which is MND. My test was because of swollen ankles. Achilles Tendonitis in legs etc.
Babbling a bit now, but hope this helps
itoldyouiwasill
27-08-08, 11:22
I am going through a similar thing at the moment. I have tennis elbow and have found out that someon e we know has MND. I get all the symptoms you are getting, plus shooting pains in my hands and legs.
I had a blood test a while ago. Full blood count, liver and kidney test. Think this will show up spme sign of MND?? So if you have had a blood test, then I wouldnt worry to much. I remember seeing the doctor write down ASL test. Which is MND. My test was because of swollen ankles. Achilles Tendonitis in legs etc.
Babbling a bit now, but hope this helps
I believe that the ASL test to which you refer is actually part of the tests that are carried out in reference to liver function. Maybe you are getting confused between that and ALS which is a MND disease.
A blood test cannot be used to highlight or diagnose any MND to the best of my knowledge. The correct diagnostic route is GP>Neurologist>EMG.
Right - I have another appt. to see a different neurologist on Tuesday so am going to carefully prepare a list of every question I can think of! Am fed up with flapping about myself and posting questions on various boards so this is going to be it! I'll post any answers that I think may help others on here...
really cant help you and you do need to rule out things but anxiety will heighten things and then you will go round in circles.ive had a number of health problems with the brain,and the brain controls everything,seek proffesional help before your minds run away.im proffessional i mean neuro,tell him about your panic with these symptoms...as wellas the symptoms
hope this helps a little you seem so desperate and i have been there.
love fran x
Hi Eleven,
If its any consolation, I've had most of these symptoms too and my doctor puts them all down to stress and anxiety. I saw a Rheumatologist on Saturday who said there was definitely nothing arthritic going on. Now my attentions are turning to muscle-related disorders, even though my joints crack like hell.
Feel worse than ever now! Neuro said I should go for another MRI (as the cervical spine one was useless really, need a brain one). Also had a blood test to check for Creatine increase.
He checked me all over and saw my fasciculations (as my calves have been twitching like mad recently) and we had a chat about Benign Fasciculations which they could be. I asked if it was true that fasciculations present later in MND and that muscle weakness is first but he said it was the other way round which has increased my worry.
I'm in a really bad way today, really scared. Arms are aching too. Just can't focus on anything but this worry. :unsure:
Now you have me in a worry. My neuro appointment in on the 11th.
One Dr (GP) told me that Fasiculations begin first, and then weakness..... but then she told me shes only motor nurone disease only once in her medical career and that was while studying.
However my main dr who i trust told me by the time fasiculations start there is always weakness - and the weakness is pretty obvious too. Another DR told me the same thing.
The ony reason my gp sent me to a neuro is so that i finally get this Motor Nurone Disease out of my head once and for all..... as i just cant seem to let it go.
My twitching has faded alot, but i still twitch every day. Ive also noticed that im kinda tripping over things. Im not actually falling over or anything, but i notice my feet sometimes hit the wall while walking..... or when i step over something like a paint tin or a small heater ..... my foot will sort of hit it, and this is either foot. The other day i even hit the kirb while crossing the road.
I cant remember if i did this before or if im just so aware of every single little thing that my body does.
Sighs :weep:
precious78
04-09-08, 09:18
Hi all
I'm in a bit of a panic at the moment as well with something similar.
My hands and wrists have been hurting for the past couple of days and they feel stiff and like the joints are burning. Today my arms feel relaly floppy like when you sleep on your arm and it goes dead and you almost hit yourself in the face cos it's so light?
I'm petrified that I have cancer or some sort of wasting disease.
This has started to annoy me because until this week I had been feeling an awful lot better and happier in myself. So therefore I have been a lot more relaxed and not tense in my body.
I just don't know what to do cos I don't want to go back to the Dr again as I had been doing so well and only said to them on Monday how much better I was feeling, and then wham, I feel like rubbish again.
To top it off I have a constant feeling of nausea and I don't know which part of my body that is coming from (by which I mean whether it's my griping stomach or my weak muscles).
I lost some weight recently but seem to have steadied out now but am feeling so exhausted again.
Any suggestions anyone?
Hi all
I'm in a bit of a panic at the moment as well with something similar.
My hands and wrists have been hurting for the past couple of days and they feel stiff and like the joints are burning. Today my arms feel relaly floppy like when you sleep on your arm and it goes dead and you almost hit yourself in the face cos it's so light?
I'm petrified that I have cancer or some sort of wasting disease.
This has started to annoy me because until this week I had been feeling an awful lot better and happier in myself. So therefore I have been a lot more relaxed and not tense in my body.
I just don't know what to do cos I don't want to go back to the Dr again as I had been doing so well and only said to them on Monday how much better I was feeling, and then wham, I feel like rubbish again.
To top it off I have a constant feeling of nausea and I don't know which part of my body that is coming from (by which I mean whether it's my griping stomach or my weak muscles).
I lost some weight recently but seem to have steadied out now but am feeling so exhausted again.
Any suggestions anyone?
Yes, your suffering from Heath Anxiety lol .... Most definitely not Cancer or any Muscle wasting disease.
Well....saw Neuro again. CK tests fine and EMG showed no Motor Neurone potential so all ok on the MND front.
Brain MRI had one small spot of something though. Neuro said it could be anything and certainly it was fine for some people to have them. Could have been a bang on the head somewhen or something from birth or a virus once. However of course it also could be the first MS lesion. He seemed confident all would be ok and suggested second MRI in 6 months to review (apparently in the USA they wouldn't have taken a second look as they are happy to allow one of these spots per each decade of your life?). Said if I was still super anxious though then there are a battery of other MS tests they could run on me.
Not sure what to do. Have been really achey/creaky for last 2 weeks now. Back of thighs really fatigued, right arm aches from the smallest things.
Do I :
- Wait it out for 6 months
- See an anxiety therapist to see if my other symptoms could just be that
- Go through the stress of yet more tests
Confused as hell.
Hi Eleven
Glad to see every thing turned out ok on the Motor Nurone Disease worries.
I had my nero appointment on the 11th ..... He said 100% i do not have Parkinsons, MS, or Motor Nurone Disease.
So you would think that would be the end of it right ?? Well this is me we are talking about so no. While walking the other day, it was slightly windy and i felt as if the wind was going to blow me over. So im thinking ..... If i had MND/ALS then the neuro would of found weakness right ? He didnt.
Like the idiot i am i went googling again. Doctors say that Fasiculations come after weakness, but people on an als site said something different.
Surely after 5 months of twitching if it was MND i would be showing signs of weakness that can be picked up by a GP/NEURO right??
Also i notice when i walk, i feel as if im walking too slow, but i think its some weird illusion. Think this is anxiety? My legs also feel heavy. Also i have this electronic tingle thing going on in my left arm.
Think im going to see my neuro again, and get this put to rest once and for all.
Eleven ..... I would go see a Psychologist and get some CBT. Ive just recently started seeing one my self.
Have you had any blood testa for low b12 i had this and sound like you.
I've crept back to my bad ways again...
- Obsessive checking of left eye vision (just doesn't feel as strong as right) = MS
- Occasional shooting pains in head and thought of that patch on my brain from MRI scan = Tumour
- Calves twitching like mad = MND
Acro, how is your CBT? I have found a local therapist (unsure if CBT or not) and am considering seeing her about my anxiety and (I think) slight depression. Just feel low about everything at the mo.
keepemlaughing
23-09-08, 22:29
Certain types of medicine cause this also. Namely, Seroquel and Abilify. If I take too much the twitching and jerking is horrible.
I've crept back to my bad ways again...
- Obsessive checking of left eye vision (just doesn't feel as strong as right) = MS
- Occasional shooting pains in head and thought of that patch on my brain from MRI scan = Tumour
- Calves twitching like mad = MND
Acro, how is your CBT? I have found a local therapist (unsure if CBT or not) and am considering seeing her about my anxiety and (I think) slight depression. Just feel low about everything at the mo.
Hi Eleven
The CBT is going well. Im also on Medication now too. Its called Aurorix. Its actaully really good, its got no side effects at all.
My twitching is fading. Im still getting the odd twitch though. The jerking of the limbs has also reduced and almost gone.
How are you going? Have you got it sorted?
Guys,
I am also worried about these things. My fingers feel that stiff and I don't feel that I can move them the same as usual like I am using different fingers to try to do something and they get more rigid as I try different positions, lack of coordination etc. I am also getting twitches but they only started after I started worrying and are all over and not necessarily more in my hands than any where else.
I have been really anxious and most of the symptoms started after I started worrying about them. Is it possible for the brain (I.e. anxiousness) to create severe symptoms?
I feel weak, but when I squeeze something I am still strong. I have also been feeling a little shaky and don't seem to reach out as far as I should and there is some delay when I try to click the mouse, i.e. I want to double click but I will end up only clicking once. i am really jumpy too... is this a sign of hyper reflexes?
Before I started worrying about it there was only two slight occurrences. Once when it took me four tries to find the corner of a piece of paper and another when I went to grab a receipt from a cashier and it took me a number of tries to find it (but at that time I was also running half an hour late for an appointment).
Can someone help me put my mind to rest as before i worried about these things I did not have any weakness or such, but when I thought about these two things (and a little bit of trouble typing - but I was going through dizziness (I suffer from vertigo) and had been over working myself), I did not notice anything that amiss. Once I started thinking about every movement of my hands then each thing I did felt wrong and awkward and it was only then that everything started to get worse.
Sorry I am rambling, but I totally know how this can be scary. I am also 37 so know that MND is a rare disease and mostly in people above 50, although is becoming more common in younger people.
Please help!!!
Rachel
Guys,
I am also worried about these things. My fingers feel that stiff and I don't feel that I can move them the same as usual like I am using different fingers to try to do something and they get more rigid as I try different positions, lack of coordination etc. I am also getting twitches but they only started after I started worrying and are all over and not necessarily more in my hands than any where else.
I have been really anxious and most of the symptoms started after I started worrying about them. Is it possible for the brain (I.e. anxiousness) to create severe symptoms?
I feel weak, but when I squeeze something I am still strong. I have also been feeling a little shaky and don't seem to reach out as far as I should and there is some delay when I try to click the mouse, i.e. I want to double click but I will end up only clicking once. i am really jumpy too... is this a sign of hyper reflexes?
Before I started worrying about it there was only two slight occurrences. Once when it took me four tries to find the corner of a piece of paper and another when I went to grab a receipt from a cashier and it took me a number of tries to find it (but at that time I was also running half an hour late for an appointment).
Can someone help me put my mind to rest as before i worried about these things I did not have any weakness or such, but when I thought about these two things (and a little bit of trouble typing - but I was going through dizziness (I suffer from vertigo) and had been over working myself), I did not notice anything that amiss. Once I started thinking about every movement of my hands then each thing I did felt wrong and awkward and it was only then that everything started to get worse.
Sorry I am rambling, but I totally know how this can be scary. I am also 37 so know that MND is a rare disease and mostly in people above 50, although is becoming more common in younger people.
Please help!!!
Rachel
Hi Rachel
I think you are suffering from Anxiety.
My fingers in my left hand felt stiff and i also had muscle twitches all over my body. I also had weakness in the left hand. It wasnt real clincial weakness but a feeling of weakness.... it wasnt real. I still had my strength.
Anyway all over body twitches are a symptom of anxiety and not MND. Twitching in MND occurs in 1 area of the body Eg: Your Arm. It does not move from say your left hand, to your right arm, to your back, to your right leg, to your left thigh.
Secondly by the time someone has twitching, there is obvious weakness, And if its not obvious to you, it will be to a Dr.
You asked if "Is it possible for the brain (I.e. anxiousness) to create severe symptoms?"
It sure is possible 100% with out any doubt. I couldn't get my head around it at first either, but it is possible.
I think everyone has trouble picking up the corners of paper too. Even i have that problem - even as a child, and when you are anxious and worried about things like MND, you will notice every little thing your body does, as with before you think nothing of it.
Hi Eleven
The CBT is going well. Im also on Medication now too. Its called Aurorix. Its actaully really good, its got no side effects at all.
My twitching is fading. Im still getting the odd twitch though. The jerking of the limbs has also reduced and almost gone.
How are you going? Have you got it sorted?
Glad to hear things are better for you. I'm much the same. Been obsessed with me left eye the last two weeks. Just seems a bit blurrier and have lots of floaters in it. When I'm using the PC or watching telly it just keeps catching me every now and then - like it's not working hard enough. Still stressed about right arm too (though I'm sure RSI is affecting it - where is best place for someone to assess it?) and aches in thighs.
All in all I'm still a bit of a mess...
Hi
Just wanted to say that my feet twitch every day along with various other twitches all over. I also get the twitches where mt foot/arm/leg/finger/thumb will actually move. This happens quite frequently - does anybody else get that????
My anxiety about my left eye vision was getting out of hand last night so went for eye test today (only had one in March!) and told her my specific concerns. Apparently both eyes are in very good shape, no need for glasses and certainly nothing untoward happening in the eye itself when she examined it.
So trying to put that aside now. Just leaves the worry about why my limbs are so weary and the high levels of twitching I continue to experience. Also the sharp pains I have in both thighs...
Have workstation assessment next week and new office chair on its way. Am considering trying to find a physio too who specialises in RSI etc but would have some knowledge about neurological conditions so I can try and tackle all in one go. Still considering seeing a counsellor/psychologist too but feel I should pursue all physical side of things first.
MarioMangler
18-10-08, 03:15
Eleven,
Go to a website called aboutbfs.com. Check into a condition called benign fasciculation syndrome. Read back through the archives, and check out all the people who have had very similar symptoms (especially the twitching.) I think this might ease a lot of your worries. In my opinion, anxiety over symptoms is generally worse than the symptoms themselves.
In general, if your MRI is good, and your EMG was good, then you have nothing to worry about.
Hope this helps,
Mario
Thought I'd put a quick update in. Anxiety levels are still very high and Doc has put me on Citalopram to try and get me through to my next Neuro tests in March. Still twitching loads and getting very worried over weakness in my legs. :unsure:
Hating this....
itoldyouiwasill
05-12-08, 17:28
Eleven,
Go to a website called aboutbfs.com. Check into a condition called benign fasciculation syndrome. Read back through the archives, and check out all the people who have had very similar symptoms (especially the twitching.) I think this might ease a lot of your worries. In my opinion, anxiety over symptoms is generally worse than the symptoms themselves.
In general, if your MRI is good, and your EMG was good, then you have nothing to worry about.
Hope this helps,
Mario
I would never suggest anyone goes to that place!!
It is basically a forum full of people with straight up physical anxiety sensations who are basically convinced that they are suffering from ALS! to many people on there also trawl the ALS sites and bring back information that is downright scary and often totally misleading and/or out of context. I honestly believe that the forum is not a healthy enviroment and can actually cause far more problems rather than give any reassurance. BFS is a fancy term for anxiety...nothing more and nothing less!
agent orange
06-12-08, 15:05
If it is any consulation to anyone. I have had aches all over especially the legs, arms etc for over two years. I have had tets and even an MRI on the brain and nothing, all negative etc. So take heart, tension and stress can be quite nasty. I even get twitching all over my body at times, this I put down to the above and tiredness. If you are anxious most of the time,then it is not surprising that your body is displaying symptoms.
Here is a post I put on another list. I hope it helps.
Hi there everyone,
Muscle twitcing, vibrations, pulsing and a few more i've either had or expirencing right now. Am I worried about them. ABSOLUTELY ...... Am I worried about them as much as I was 4 weeks ago ABSOLUTELY NOT!!!!!
I did the whole DR and specialist thing like most of us, spending a crap load of money for them to tell me it's anxiety.
And like most of you I'm guessing you didn't realy believe them. Wel I didn't anyway. Deep down your thinking they must be missing something.
Short answer. The fear you feeling because of your muscle symptoms, or any symptoms, for that matter, will only keep your symptoms persistant.
You see fear releases stress hormones into your body that does a whole range of things to it to get it ready for the fight or flight response. One of the main ones is to tense your muscles. And yes you might not even know your doing it. I didn't.
Another fact... There is no quick fix for anxiety related symptoms. You have to give your body sufficient rest. Research suggests that for the amount of time it took your body to get to this stage of anxiety, it will typically take 4 times that amount of time to get back to normal. But this wont happen if you continually worry about it. It's not easy, but it's someting I'm slowly lerning how to do.
There are four steps ( as per Claire Weekes book " Complete Self Help for Your Nerves" )
1. Understanding: Learn why your body is having these symptoms
2. Accept: After going to the Dr to check things out and your told that it is anxiety, Accept it. Anxiety wont kill you and neither will the symptoms. Once you accept this your fear levels will fall and eventually so will your symtoms
3. Floating: If you suffer panic attacks learn to float through the experience. Panic attack won't hurt you either.
4. Let time pass: Patience is the key here. As i stated earlier, there is no quick fix for anxiety. Medication will mask the effect but not get to the root of the problem. It may however give you some clarity to understand your condition and recognise your next course of action without meds.
I've done two things to set me on this path.
1. Get the book I mentioned above. If nothing else it will give you peice of mind and set you on the right path.
2. I joined a website called www.anxietycentre.com (http://www.anxietycentre.com/) This website takes you on a path of knowledge and therapy. Very similar to CBT. It's a canadian wwebsite so the exchange rate is in your favour and will cost you very little.
For the benefits it's given me it may be the best money you ever spent. I'm only talking like 15 pounds.
I'm also seeing my work pysch, only 1 session so far but she totally agrees with what I'm doing and has checked out the site and says it is very good also.
Please send me a message and let me know if this info has helped anyone at all, or message me to ask about anything else i have mentioned.
Cheers
Dooges
Hi ELEVEN,
I'm not sure how you are doing currently because you have not posted in a while, but your symptoms caught my attention because they are some that I and others i know have suffered from.
scroll down and check out the symptoms. I hope this helps anyone.
http://www.freewebs.com/lymefacts/symptoms.htm
LYME DISEASE
It took me two years to figure out what was going on in me. Symptoms started off with what I thought was a the normal flu. Years later progressed to aches all over my body. In my bones, joint, muscle aches, and muscle twitches. Sometimes insomnia, depression that comes and goes, seeing floaters, and thinking I was going crazy. It took my aunt 13 years before she figured out she had Lyme too.
The most accurate test is the IGENEX test. other tests, you can be pretty confident they are not accurate. for every ten people that have lyme, only one person knows it. I hope you don't have Lyme...but if you do, i hope you find out and don't have to live a lie. Good luck.
Just out of curiosity, have any of you been taking melatonin? I started having very similar symptoms after taking melatonin and 5 htp, although I now believe it is the melatonin, since I stopped only that and the symtoms eventually went away, only to come back when I started again.
I too have started with muscle twitches/spasms. I have tight feeling wrists and feel as if I need to crack my wrists and ankles all of the time. Everything feels tight and I am absolutely panicked about ALS!! My CBT therapist seems convinced it is all anxiety but I can't wrap my warped head around it! I have had every blood test known to man and every heart test but nothing else. I am wrapped in fear!
Eleven
I am SO glad you posted this, I had blood tests for every symptom you describe just recently. I have random flutterings all over my body, my joints in my fingers and toes will occasionally ache (but more like a sharp twinge) my hips ache, my calves twitch and seem to pulsate (i thought i was going to have a blood clot which would end up in my brain of course!) my arms and thighs ache, even near my groin twinges and aches and guess what...
Blood tests came back 'no action needed'
I must admit the twinges arent especially painful, just more worrying but I have noticed now that when i get these feelings I am tensing my body, maybe thats all this is. I really thought my bloods would be abnormal but am relieved they're not. Yes the thought ran through my mind that the doc didnt take blood from the 'right vein' and they have got it wrong but even I know thats anxiety talking and not really me.
I hope you are feeling a little more relaxed
x
This is a great thread. Does anyone know what happened to our freind Eleven?
angusglover
07-01-10, 20:59
God I feel dreadful, getting myself into a terrible state at the mo. Am convinced it's Motor Meurone Disease. Both arms feel weak and floppy today and I'm still twitching all over. Looking at private Neurologists but they're over £200 each. Really don't know what to do.... :weep:
Well, you can remove MND from your list of possible suspects, 100%. I have personal experience of it and you do not have it. You would know if you did, no mistake. Happy to discuss though as I have a lot of similar symptoms to you.
Hi
Just wanted to say that my feet twitch every day along with various other twitches all over. I also get the twitches where mt foot/arm/leg/finger/thumb will actually move. This happens quite frequently - does anybody else get that????
Same here for the fingers and foot and i twitch all over, have donr for 4 months now :blush:
I would also like to know what happened to eleven as i have had almost every symptom he has had.
Annoyingly I find myself back on here. Neuro said all was fine back in Mar 09 and I was able to get myself back to normal. Then a month ago I woke up with muscle aches ALL over, took me ages to get going. This lasted for about a week. Before I knew it I was obsessing over my joint aches which seemed to be getting worse (though I think I've had many for years). Specifically my left hip has been hurting for months everytime I get up after inactivity. After a bit of walking it's ok but I can also feel it a bit in my right hip (which freaks me out). I also have pain in left foot and pain behind left knee after crouching. My friends the tingles and perceived numbness/weakness are back in my left forearm and thumb and little toes on left foot.
Have been stressing out so went to docs and have blood test on Tues. I expect I'll end up having another MRI too and being stuck in a loop for ages.
I'm not as bad yet as I was two years ago but I'm definitely on the same road. Gah! Really hate myself. Frustrated to be like this again!
Eleven,
I am glad things worked out a last year. I have had very very similar problems. One thing that really helps is to go get a trigger point massage. A trigger point massage is not a relaxing massage, it is to find your trigger points and work them out. I was stuck in this continuous loop of widespread muscle and joint pain. Weakness, numbness and general panic. I was amazed at my first appt the other day when my massage therapist was able to find triggers of tightness all over my neck, back, legs and arms. I could feel referred pain all over my body when she worked on knots in my neck and back. Basically, what happens is that the trigger points build up because we are tense all the time. The trigger points put pressure on our nerves and cut blood supply to parts of our body. This leads to pain, numbness, stiffness and weakness. I would really reccomend getting one of these massages and trying some yoga. I am not cured but it does logically explain and alleviate many of my constant symptoms. Good luck and post whenever you need to.
Thanks for that, will definitely look into it.
Convinced that something is going on though. The hip and foot aches are too specific and painful. The tingles and stuff (and twitches which I still have loads of) I can explain as anxiety. Maybe it's athritis. I don't know. My head tells me it's MS all the time of course. The increased floaters in my vision and slight blurring in my left eye (which I test all the time) only serve to increase that conviction.
Forgor to mention that I'm still visting the gym 3 times a week and doing ok while I'm there. Once I've run the aches off I'm ok....
I've had all over body twitches and floaters in both eyes for one year now,doc says anxiety which I believe on a good day, but bad days I'm convinced it's something serious, my only comfort is that it's been so long and surely if it was anything serious, I would be much more worse off now? Not the same as 1 year ago :(
Ask about Fibromyalgia. I have went through a similar period wiht those symptoms and many more and that was the outcome. take care hun
Medical centre rung up. Blood test results have shown 'mildly increased muscle inflammation'. Was 348 (Creatinine or something) level where the average is 15-190.
Now getting myself into a state about this. Docs appt. next Monday morning. Is it kidney related? Anyone got any experience with this? Help needed and appreciated. Thanks
Hey all , dont want to hijack this post as i didnt realise this was posted and have done a similar post but can fibro give you muscle twitching as well ?
yes it can do with some people
sarah x
Thats interesting Sarah as i go through periods of extreme tiredness and joint pain especially in left hip at the moment although i just put it all down to spinal arthritis, just this damn muscle twitching plus it moving about the placein my body like small flutters thats scaring me at the moment x
I also have the most pain in my left hip. Have you been diagnosed with Arthritis kittykat? Did you have a blood test that showed increased muscle inflammation?
I've had muscle twitching for years too.
I had an mri when i had 2 prolapsed discs and it showed arthritis in lower spine then, that was about 2 years ago, i also had a bad time in april this year with really bad right rib cage and side pain done a post on that and was admitted to hospital as they thought it was a blood clot , blood tests then showed inflammation but when redone levels had come down and doctor wasnt too concerned. So although i have the arthritis i still have loads of other symptoms the most recent being the twitching, ive also been getting a weird thing as well when im just dosing of i can kind of miss a breath ( not all the time)and my diapraghm kind of takes a deep breath for me cant really explain it more its weird but in my mind im associating the breathing thing as well with the start mnd. The doctor just puts everything down to the arthritis but im not sure convinced i have the start of the dreaded mnd :((
Blood tests showed only increased serum creatine kinase. Have to go back in two weeks to have another one to review.
Got myself in a bit of a state today. Had the achey neck/back thing, left foot tingle/numbness in smallest toes and still the pain in the hips/thighs after sitting. Feel incredibly lonely and scared. Anxiety all over the place. Convinced it's MS. A feeling enforced by looking at symptoms on an MS Support site. I know - I'm an idiot.
Don't know what to do. Tempted to go see a physio type person to seek some assurance that hip/leg pain could be bursitis etc or some other thing. That was the case with my tennis elbow that started me on this road in 2008. If not I'll see the doc again after second blood test and ask for MRI maybe?
Thought I'd left all this well behind me...
J2 how did you find out about these massages?
Eleven, have you had any more news? What's the latest?
Saw one physio who was hopeless ("you're a medical marvel, don't know what's wrong with you"), saw another who did more thorough exam and diagnosed bursa on left leg. Having acupuncture and ultrasound on it but no change yet.
Still all the same other issues though - and all mainly on left hand side which I don't like. Tingly 2 small toes and a perceived weakness/numbess with grip on left thumb/wrist leading to obsessive testing. Aching shoulder blades, dull aches that spread from middle of back to neck. The occasional conviction that vision in left eye (the 'left' thing again!) is dodgy.
Saw doc again today. Is referring me to musclo-skeletal specialist and therapist for CBT. No return to Citalopram - yet.
I have good-ish days but mainly dark, sad days. No one really understands and I feel very lonely. Thanks for asking though. Best wishes to everyone on here.
Well at least they are sending you to see people, that's a good thing. I hope the CBT etc works for you.
Keep us updated.
Hi There,
Very new to all this, so new not able to even begin to know how to deal with all that is racing around in my head, always much worse at night though.
Do anti depressents help at all with health anxiety? have you tried them or have they been advised from gp?
hang in there, I am sure symptoms will lesson over the next few days
Smiles:wacko:
If you haven't had any answers you should look into Lyme Disease. It's a bacterial infection spread by ticks. It can have almost any symptom under the sun but usually people who have it are first diagnosed with fibromyalgia, Rheumatoid Arthritis, MS, etc...
It is hard to diagnose because current testing is inadequate with blood tests. There are however organizations who specialize in Lyme Disease testing, of which, I've heard that Igenex is the best. I would say with your symptoms it's worth looking into!
This is a post from four years ago! I really hope the lyme disease fanatics aren't about to start scaring people on this forum now too. I know that sounds intolerant, but I've seen it do damage before and the last thing people on an anxiety forum need is a new diagnosis to investigate!
Lemondrizzle
06-08-15, 18:37
started off with severe leg pains after a virus. This subsided and now the pain is behind my knees and hurt to bend.
My main pain is in my forearm which the Dr says is a sprain.
I now have shoulder pain on other side and pain in my feet.
I'm on co codamol for pain.. Doesn't help much.
The pain is at its worst on waking up in morning...I feel disabled!!!
Main worry is that Dr is going to do blood tests to check nothing ghastly is going on with muscles. What the heck could be wrong can someone please reply thanks
Lemondrizzle.. much of what you've described ive had episodes of ..3 times in 15 years and its lasted about 8-12 months with me.. Twitches, head tremor, very very tense neck and shoulder muscles causing dizzies, Sciatic tingling,numbness.Pain base of thumb , and so on.. Aside from Bursitis being found in one shoulder all that was found was anxiety..
andreamartinez
13-08-15, 12:51
Every time I had my joint/muscle pain, I often rely on pain reliever medicines. But I'm afraid I'm too dependent on it. Every twitch and hurt i feel terrible as well.
i really like to know about eleven what hapened at last did any one know?
I am also curious. I find my self here in a similar situation as eleven. I developed tingling, itchy skin and muscle spasms about 2.5 years ago. I've spent the last 2.5 years trying to convince my self like all medical staff told me it was anxiety. I've avoided all self diagnosis during this time. In the last 6-8 months I've noticed aching which started in my hips and calfs. This has now spread to toes and fingers. It's definitely starting to impede my motor function as during the worst flares I have a hard time typing on a keyboard with my left hand. Recently I've developed joint popping sounds throughout my body in addition to the tingling. My hands, toes, knees, hips, and ankles all make an extremely audible popping sound almost all the time and I've noticed slight discomfort.
I hope reviving this thread Dosnt step on any toes but I find the symptoms listed almost exact to what Ive faced and pretended were in my head these years.
I too have all these above symptoms on and off....along with Bloating Wind IBS like symptoms....had this all for lat 15 years...It does make me low sometimes but the way I see it is If it was more sinister A. I would be dead by now or B. I would have more symptoms that would point to the various diseases that I am worried about ?
Lifelonganxiety!
24-05-16, 18:00
This thread is a good example of what stress and anxiety can do to your body. I imagine Eleven got treatment for her anxiety as mentioned in her last post, part of which maybe included not coming on to this page.
Pains, tension, tingling, weakness and so on are all very common ailments in the anxiety forums. Try to manage anxiety and they'll improve significantly!
The OP hasn't logged on since 2010. I would imaging he's moved on with his life.
Positive thoughts
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