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S.J.
17-10-09, 14:40
Hello everyone. I'm new to the website and I am a long term sufferer of depression which has turned into major anxiety and panic attacks peppered with a touch of agrophobia!! I am a 35yr old single mum of one 13yr old daughter, who is the sole reason i have continued trying to beat my illness. This is my story;

I had my first 'dose' of depression when i was 19. It lasted about 3 months and I did see my doctor about it and was put on Prozac for that time. When I fell pregnant at 21 I was very ill, and not just in the mornings either, but I never felt pregnant, I just felt fat! Anyway, my daughter, Taelor, was born a month early and was in SCBU for a week. I wasn't eating or sleeping and was very...vacant and numb to everything and also very tearfull. Consequently I was diagnosed with severe post natal depression and prescribed hormone pessaries as well as anti-depressants, Prozac again. I was also referred for counselling but I only went once. It was no help to me, I can talk to anyone about my thoughts and feelings but I have always felt that I needed answers, or some direction.

So, I came off the pessaries but stayed on the anti-depressants. I was never called in for a review. When I moved and registered with a new doctor I just had to put in a repeat prescription and that was that.

I had happy times and a social life and friends etc but I'd get very low at least once a year. I also felt that the prozac wasn't working anymore. So I went back to the doctor, was prescribed new Medication (I'm sorry but I don't remember what this one was called, there have been so many) I also told my doctor that I wanted some other help, not just the pills all the time. I didn't want to be on medication forever!! I was told that the help I was asking for wasn't available due to funding?! and was offered counselling again. I went twice, it just wasn't enough (I must stress that at this point I was only suffering with depression. The anxiety/panic and agrophobia was yet to come!)

Roughly 15 months later the meds weren't working anymore and I became really depressed. I went to my doctor, in a hysterical mess BEGGING for some other help. Same response and I was starting to feel neglected/ignored and unimportant! I was put on Sertraline. It was not the right med for me either I had all the side effects but they never went away (I was patiently waiting for them to 'kick in' and I put up with it for about 4 months) These 'side effects' caused me to feel anxious/nervous all the time, I'd talk really fast, major sweating (facially) it was awful. So back to the doctors, this time I was given Venlaflaxine. No alternative help.

Another couple of years later and my depression hits an all time low, coupled with major mood swings. In fact I lost the plot a bit. My mum (used to be a nurse) suggested I see another doctor in the practise about alternative help. So I did. I couldn't believe it when, after sobbing about needing some proper help, she agreed straight away and requested that the local mental health team see me. Great I thought, help at last. Nope!! They had one meeting with me and said I needed counselling!! I said it doesn't work for me and they said 'well this one might!!' It didn't.

So I'm left to get on with it alone. And my symptoms are getting steadily worse, I started having regular panic attacks and my self confidence/self esteeme/social life all started to disappear completely. I lost my long term friends due to being unreliable and a hermit. If I was invited out I would say yes and then bottle it at the last minute and I started shutting my family out too.

I think the final push over the edge was when I found out my long term boyfriend (6yrs) who I thought I knew inside out and lived literally around the corner from me, had been seeing someone else AND had moved her into his house!! It destroyed me completely. It took me a good 2yrs to stop crying and missing him but I still haven't recovered from it and thats when I stopped going out altogether. Except to go shopping and to work (which was only 7.5hrs a week)

Medication needed changing AGAIN so I was put on Mirtazipine, this lasted about 18months because I felt overly emotional all the time but mostly because it caused me to put on nearly 4 stone!! I only found out that this is a well known side effect at the beginning of July this year!!

So, back to the doctor. Only his time he said he was at a loss as to what to prescribe me as I'd tried so many different meds (there are another 4 that I can't think of right now and believe it or not I have tried to keep 'My story' short!) So he said he was going to write to the mental health team to ask for advice.... Well his letter was received on the 13th July, but because they don't have a pschiatrist 'to hand' they had to forward the letter to another place who then had to have a meeting before coming to an alternative medication suggestion. It then had to go back to the 'team' and then onto my doctor... I got my new prescription on the 10th September. It was... Sertraline AGAIN!!! 150mg, starting at 50mg and gradually increased. Not only did my doctor not want to see me to give me my new prescription but he had failed to inform the psychiatrist of my previously prescribed medications!!! Not only do I feel fobbed off but the whole situation seems to me to be very badly handled.

Sertraline is no good for me, as I mentioned the first time I was prescribed it (although in 2004 it was only 50mg) and this time it had made me so ill that my mum wanted me to go into hospital. I have been signed off work for 4weeks so far. I haven't been able to leave the house, at all. Or answer the phone/door. I'm panicy all the time, my anxiety has hit the roof, I'm having scary thoughts, i hate myself and my life and I wanted to give up...

Due to my persistence I have been in contact with the mental health team (on the phone) and told them everything and that this drug is making me worse etc. On wednesday this week (14th) i had a meeting with the mental health nurse for an assessment.:yahoo:

He was great. I actually felt i was being heard for a change. He agreed I had to stop the sertraline asap, he also agreed that I need more than counselling and I'm now on the list for Cognitive behaviour therapy:yesyes: AND he promised to get hold of my doctor asap to change my meds. I freaked out saying how it took 2 months last time and how I couldn't cope like this anymore etc. But true to his word he sorted it that same day.

He rang me to say I had to make an appoint with my doctor to get my new meds. So I made an appoint for the same day at 5.10pm. (no easy task as I don't want to go out the house!!) My doctor rings me about 20mins later saying "is it just for your new prescription that you've made an appoint!" I said yes and he then said "well I'll fax your prescription through to your nearest pharmacy and cancel your appoint!!"

Can you believe that? He's not concerned about how ill i've become, he doesn't feel it necessary to see me and discuss these new pills, or the side effects, or what they are or how long they'll take to kick in etc. No reassurance or support at all!!!!!!!!

I called the pharmacy to arrange for my daughter to collect my new meds, which are called Cipralex-20mg every day. So far so good but it's only day 3 so early days.

My mum came over on Thursday, due to a very tearfull phone call i made to her on wed night, she was so concerned that she wanted to take me into hospital. Also, my daughter had confessed to me that she wasn't coping with my illness at all anymore and she refused to talk to anyone about it, so my guilty feelings that I already had were confirmed and I was terrified of what I'd done to her. My mum called the mental health nurse to discuss her concerns and to ensure that something was going to be done to help me this time and amongst other things he suggested a web site called Nopanic.org.uk which is where I found a link to you guys.

So there you have it. Thats me. I've been on anti-depressants for a very long and stressfull 13yrs now. That can't be right can it? I have 6weeks to wait for CBT and for new meds to kick in and fingers crossed I'm on the rocky road of recovery, albeit right at the very beginning. I'm trying to stay possitive, I still don't want to go out. At all. I moved to where I am now because it's right by the sea. I used to go the beach everyday, even in the rain. I can't remember the last time I went. I feel like a freak to be honest. Sorry, thats not possitive at all is it.... Onwards and upwards (slow and steady wins the race) I really wish there was some organisation that arranges for someone to visit and drag you out for a walk. Even round the block. I have no will power or self discipline and I'm not very good at making myself do something I don't want to do!!!

Right, I'll say bye for now... sorry for the dissertation. Hope to speak with you all soon..

S.J.

nomorepanic
17-10-09, 14:43
Hi S.J.

A huge warm welcome to nmp.

You'll get loads of advice and support here and make some lovely friends along the way.

Best wishes

S.J.
17-10-09, 14:48
Thank you. I hope so...

Veronica H
17-10-09, 16:15
:bighug1:Hang in there SJ. You will find comfort and support here. while you are waiting for CBT, there is a brilliant book by Dr Claire Weekes;SELF HELP FOR YOUR NERVES ISBN 0-7225-3155-9.This is available from the NMP shop. Dr Weekes was a fellow sufferer who really understood this illness. She took the mystery out of it, and devised a simple programme for recovery. I can't recommend this enough. Please try to get outside for a few minutes each day as Agorophobia may set in. Get you daughter or mum to take you when they can.

Veronica

S.J.
17-10-09, 18:32
Hi Veronica,

Thank you so much for your reply and advice. I'll hunt that book out in a mo... Unfortunately the agrophobia has already set in. I did attempt to go out today but it was too much too soon (Tesco's of all places!) Little steps, one day at a time. God i wish there were a miracle drug for this... it's so draining having to put in so much effort all the time, every day... Hope to speak again soon Veronica and thank you again,

S.J.

gypsywomen
17-10-09, 18:52
:bighug1::bighug1::bighug1::bighug1:Hello sj well what a story ,you have been to hell haven't you,,i have one thing to say give yourself a big pat on the back,, you have come so far,,from the way you write i believe you can do it ,like you say small steps ,,i wouldn't go out ,then one day ,,just thought that's it if i don't help myself ,,my lie wont be a life ,so i started with small walk ,, then a drive ,go out all the time now even started art college ...if you would have told me 3 years ago i would be going to collage i would have aughd ,,, i still have anxiety ,,but i am not going to spend my life like a hermit either should you ,,just do it nothing will happen to you,,,only you will feel better for it love maggie

S.J.
17-10-09, 23:28
Hi Maggie,

Thank you for your kind words and advice. And for thinking that I'm going to make it through all this... I wonder sometimes. It's been so long coming, I just hope I can keep strong (although I feel pathetic and useless right now) and keep 'the faith'... Anyway, hope to chat again soon. Take care, Sue

gypsywomen
18-10-09, 15:00
hi sue you can do it believe in yourself don't look back take one day at a time ,you will do it believe me ,,i was a quivering wreck,,but i fought ,,,i will never be a 100 per cent but i will not dwell on this ,,just do what i can ,,so can you sue so can you :hugs::hugs::hugs::hugs:

S.J.
18-10-09, 15:32
Hi Maggie,

It's so hard having to wait for a good day, or an improvement in how I feel. I am being realistic, I think. I know it's gonna take time, God knows I've managed to wait 13yrs, and I'm not going anywhere. I'm really worrying about work though... I'm due back this week and I don't think I'm ready yet, especially with it only being day 4 of my new meds. But I'm worrying about money now, as I've been off for 4wks already so SSP has kicked in and I can't pay the rent and bills etc on SSP. So I'm really feeling the pressure, and I'm trying not to worry and stay calm but I can't. I was managing to keep calm-ish but it's all starting to get to now I'm due back at work... So much pressure!!! I'm running out of strength...

gypsywomen
18-10-09, 18:21
sue what work do you do. all i can say you will have anxiety stopping in the house wont you. bad at times ,,reason to much time to think its the last thing you need ..i stopped in got worse ,,it will be so hard ,,but you must on the morning your due back .get up try not to dwell keep busy ,,till its time to go ,,then say to yourself i have to go ,i need the money if i don't go i will only worry more ,,then just go if you find it hard just think good thoughts ,,smile ,,nip to loo if gets too bad rinse face in cool water then look in mirror and say to yourself i can do this ,,believe me once you do that first day you will go back again you can do it you worked before ,,,,,i wish you the best and will pray fo:bighug1::bighug1:r you that you can get strength from within margaretxx

gypsywomen
18-10-09, 18:51
http://www.e-cookbooks.net/mousepad/belief.jpg

S.J.
18-10-09, 23:14
Hi. I have two jobs Maggie. I'm a lunchtime playleader at a junior school every day and then on Fridays and Sundays I am a child care escort at a special needs school which means I'm on a coach for about 6hrs dealing with autistis/handicapped children from ages 8-18. I know what your saying is right but... I FORCED myself to pop into work tonight to speak to the head of care about my situation and about coming back on Thursday (it's the last day of term which is why it's not a friday) I was a nerous anxious wreck. Jane (head of care) was shocked at exactly how much I've gone downhill, a far cry from the Sue she knew before. She feels Thursday is far too soon and she isn't confident that I'll be capable of doing the job properly. She's worried about how I'd deal with a crisis or problem if it arose. And it's never a smooth run, it is stressfull. She was very supportive and encouraging but she's concerned it's too much too soon and I am too but I'm worried about money. I found out tonight that if I'm not back in Thurs then I'll not be paid at all this month. But it's out of my hands now. I can ring on wed and say I'm ok to come in thurs but I have to convince Jane that i'll be able to cope. And then what if I can't? What if something does happen and I have a panic attack infront of the kids? I'll create hysteria and chaos... I know i'm not ready yet really, I can try to possitive but I have to be realistic too and working with children means there is no room for compromise... I'm at a loss as to what to do with myself. I've had enough of the burden of it all, it's too much Maggie

Utility
19-10-09, 00:00
Hi

Just read your well written post and would like say welcome.

You are correct when you mention about trying to focus on the positive aspects and your CBT will help to realise this.

S.J.
19-10-09, 00:08
Hi and thank you for the compliment re my post. Not too good right now though. I really hope the CBT works because I can't do this for much longer. I'm drained from having to try hard and make an effort to live this none existentl life that is mine... Trying to stop the negativity but it's so hard when you don't feel any better!! You know? Anyway, thank you for your message. It's good to talk

gypsywomen
19-10-09, 10:08
hi sj you did well to go in to see head, that's a hurdle ,,so good for you ,i can understand working with children and having panic attack would not be good.just wondered if you could get some help form government money i mean ,,i think we who suffer with this should get help has it is a form of disability don't you agree ,look into it you never know ,,,,love maggie

S.J.
19-10-09, 11:31
Hi Maggie, Thank you, it was a hurdle and a half!! I'm looking into benefits now. Not an easy task by the sounds of it. It involves assessments and all sorts but if it's mental health related then I think I don't have to have their medical. Gonna have to get a letter from my crap doctor and also from the mental health nurse. It's all a bit stressfull to be honest. My head isn't in the right place for negotiations and form filling. Aargh!!! Don't want to play anymore!!!

gypsywomen
19-10-09, 11:51
you wont feel like it no ,,but once it is done and maybe you will get help you might feel better knowing you have money coming in hope you get it ,,love Maggie ,,your stronger than you think believe me you are love maggie