Feeling scared AGAIN

[Dazo]

I have had HA for like 3 years now and its always about ALS. Its very scary at times and makes my anxiety go through the roof.

I have seen 3 neurologists and made all tests there is, the neurologists says no way that i have als but i have anxiety.
I listen to them and i feel good for a while, much calmer and especially on doctor has helped me alot.

He is a neurolog and he let me see him once every six months, just to let me talk and he explains to me that i dont need to worry.

He says for example, 3 years with als isnt nice. Then i would be vey very sick if i was still alive.

Still i cant get it out of my head!!:scared15:, and right now i am really really scared.
Scared that i wont live to be around everything that happens. Not to be around my sister and my family. It makes me very sad and a grown up man like me even cries when i think about this.

Right now i have had 3 months with some symptoms, like cramps, pain and all that but not so bad anxiety.

Today suddenly i thought of als again and anxiety took me at once.

It shouldnt be possible to have this decease with so much checks by doctors and so many years with no new symptoms.
Yet i am scared and sad right now. :weep:

Thanks for listening, all you great people on this site.

/ Daniel

[Carys]

NO, it really isn't possible. You've seen a few neurologists and various other doctors, and honestly, they know what they are looking for ! This is what they do day in day out, see symptoms and make diagnoses. I have some interest in Motor Neuron Conditions - not as a medic but as a total lay-person who has has a family member who has had MND for a few years. I have read quite a lot on it, and have been on various hospital visits accompanying. After 3 years with any form of motor neuron (even the slowest progressing form) you would have deteriorated massively.

Trust the doctors, honestly.

I know it is hard to imagine that you can make yourself feel so ill from anxiety, but really you can. As has been said before, the brain is such a powerful thing.

[Dazo]

Thank you very much Catys!
Sometimes its just so hard to handle, the thoughts and the brain is very powerful just as you say.

[Dazo]

I good night sleep despite my fear!

This morning i feel weak in my arms and they ache a bit and of course the scary thoughts starts to spin again.
Why is it so hard to understand?

[Rachel W]

I promise that you do not have ALS. I was going through the same fear and I still don't feel that I am as nimble with my hands and speech, but it all came on when I started worrying about it, went to an ALS specialist and everything was fine. I assume that you had an EMG? A clean EMG means NO ALS!!! Three years without devastating symptoms = NO ALS!!!

If you need to chat message me.

Rachel

[Dazo]

Hi Rachel W and thanks for your input.
I have done the EMG and ENG and they came out clean, just like MRI and lumbal tests.
I guess three years and still functioning as always isnt als.

Cant understand why i cant understand that. The logical sence is not working right now.

Thanks again.

Daniel

[randomworry]

hi dazo maybe you are trying too hard to be logical the trick here is to not try and prove you dont have als as the doctors have already done that you must occupy your mind until you basically forget about it

all the best

[Dazo]

The fear has been bad for some days now.
I have shooting pains in my feets and back.
ALS fear continue, i try to think logical or just ignore it, its hard.

Yesterday night i was very scared about it and my anxiety was extreme, i really felt sick. I became dizzy, weak, nausseous and my heart bumped and i got palpitatations.

Strange how i can feel sick:unsure:, it continues today.