View Full Version : Celiac Disease...Anyone?
If you suffer with this please could you read my post on Dermatitis Herpetiformis...(2nd page i think) i'm after as much info as i can without having to go to Dr Google as i always end up reading all the negs:blush:
Thank you
Trish.
I've had Coeliac Disease for about 20 years. You can check out the website http://www.coeliac.org.uk/ which is full of info.
Thank you Horse for the link.
Sorry to hear you have had it for 20 yrs:ohmy: can i ask how old you were when you were diagnosed and how long it took for you to be diagnosed?
I have been feeling so 'blah' of late but not knowing exactly what is wrong with me. What i do know is i've got no energy or any drive to do anything apart from just sitting and if i'm honest just feeling sorry for myself:shrug:
I can't wait until my GP is back next week so i can move on to the next step of finding out just what is wrong with me!
Sorry for going on:wacko:
Trish.
Is this confirmed with a blood test from the GP?
Yes it can be Jessica, but you can also get still get a neg result so i'm told.
Trish.
Oh right, mine was negative.
I was prob about 35ish when they discovered it. I had an endoscopy and they take a biopsy of your stomach area (painless). I believe this can now be diagnosed with a blood test but I'm not sure how acurate this is compared to a biopsy.
Getting diagnosed wasn't easy, as Coeliac Disease presents very similar symptoms to IBS so therefore I was told I prob had IBS. It was only that I pushed for further investigation that I got an appointment with a Gastroentologist who predicted Coeliac Disease even before he done the endoscopy.
You wil find that a gluten free diet is the only way forward if diagnosed and has to be maitained for life. It's not too bad at all.
My Dad had A BLOOD TEST 10 years ago and it was negative, then had a biopsy which was positive. My Sister had a blood test 2 months ago that was positive. I went with her to see the consultant who said bloods are 99% accurate these days. She still had to have a biopsy to confirm though. Couldn't get food on prescription if she didn't have the biopsy. Her quality of life has improved DRASTICALLY since she has eaten gluten free!
Thank you Horse & Smudger for your replies:)
Having looked on the website link Horse i have quite a few symptoms together with the rash that my GP thinks is DH.
Roll on next week!
Thanks again
Trish.
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