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stretfordender
15-04-10, 17:07
Hello. I hope you won't mind a newbie boring you with his personal story. Some of you might be able to relate.

Health anxiety probably began, for me, along with all other sorts of anxiety, back when I was a timid and fearful little boy. I was an acutely sensitive child - the kind that is wary of other children, doesn't like to ride rollercoasters at the theme park, and spends a lot of time alone - and I had a very powerful imagination that often used to explore vivid "worst case scenarios."

The first time I remember it being health related was over BSE/CJD or "Mad Cow Disease" which was the big public panic when I was a kid. I must only have been 8 or 9 when I was trying to test my motor function and memory, full of a terrible kind of dread that one of those burgers I'd eaten in the last decade would be the one to reduce me to a pitiable, spasming wreck. That's the first time I can remember experiencing the distinctive, cyclical thought-patterns of HA that are now familiar to me - the feeling that the worst case scenario is, somehow, inevitable, that if you're able to visualise it happening so vividly, then it must be true, and that if you dismiss this or that symptom as "nothing", Fate - or some malevolent force like it - is waiting to punish you for your blasé attitude. You MUST worry, or else you'll be punished for your confidence, but the fact that you're worrying means you must sense the truth - you instinctively know your fate, no matter what any doctor says!

So go the mad inner-workings of the paranoid mind.

I had a reprieve from Health related anxiety through my teens - but it came back with a bang a couple of years ago, when I was 23. I was working in a job I detested, which involved sitting at a computer all day doing mind-numbing data entry - which meant I had eight hours a day in which to sit and notice every minute change in my body and to think about the implications of it. I'd been drinking a lot one weekend, and eating take away pizza, and I was self-conscious about the unhealthiness of that - subliminally I expected to be "punished" (that word again - is it just me who suspects there's a vindictive force governing my life? Is it a Catholic thing, or a HA thing?) for my recklessness, and as I travelled to work the next Monday I felt sure there was a tightness and a pain in the left side of my chest.

"That's okay", I told myself, "At least there are no pins and needles" - but then, no sooner had I thought that than....actually, could I not feel some gentle tingling in the fingers of my left hand? I got into work and typed those symptoms into Google. I was quickly able to determine that I'd suffered a massive myocardial infarction and should phone an ambulance for myself immediately. After reading that, perhaps unsurprisingly, I started to go "pale, sweaty, faint and generally unwell" like the heart attack victim I so clearly was.

Not being quite mad enough to believe that catastrophic diagnosis, I did, however, seriously start to suspect I had some latent heart condition that needed surgical treatment. Those five Domino's pizzas over the last two years had obviously built up sufficient cholesterol to totally clog my 23 year old arteries and a triple heart bypass was probably the order of the day - my imagination went to work, and I could feel the cold fear of lying on the hospital bed, in a surgical gown, being wheeled in to theatre - the frustrated face of an anaesthetist trying to find my elusive veins the last thing I would ever see.

Here's where it gets really funny: I went to Tesco on my lunch break and bought Aspirin and dark chocolate because I heard they thinned the blood and reduced the risk of heart attack! Sadly, they didn't really do the trick and when I felt a fluttering in my chest later in the afternoon that was the final straw - I had to go to the walk in centre.

The next three or four weeks were a kind of protracted saga of rolling health crises, during which time I had a hospital ECG, a 24 hour heart monitor and blood taken, while my symptoms "progressed" to regular palpitations, sore, tender ribs on the left side and then the right, very sensitive arm pits, aching glands in the neck and tremors in the left eye lid. Naturally, during this period I had a potentially fatal cardiac arrythmia, bone cancer, lymphoma and multiple sclerosis. In my opinion. In my doctor's opinion I had...anxiety.

Since then I've bounced between intermittent mini-crises with gaps of a few healthy months. I read about Charley Boorman's testicular cancer recently, and sure enough, shortly after, I started to get a dull ache in my right testicle. The thing is...the ache really WAS there. I wasn't imagining it. But there was no lump, so I remained mildly concerned rather than panicked, and after an anxious fortnight it faded and went - probably some mild infection.

Recently I read on a forum a post from a man who was diagnosed with lymphoma at 32, having had pain in his abdomen from an enlarged spleen. It got me reading up again and thinking about Lymphoma. The two Ls, Lymphoma and Leukaemia, must be my biggest fears. Something about the way they strike the young as well as the old, the way they can give such apparently trivial and vague symptoms, masquerading, almost, as a flu or a general tiredness until it's too late. I am genuinely terrified of such a diagnosis - of everything that being a cancer patient would entail, the feeling of loneliness and isolation from the carefree, "healthy" world outside, the dreaded chemotherapy, the constant knowledge that something is inside you, and progressing, the needles, the blood taken, the gloomy disinfected hospital corridors of looming death....the very word "lymphoma" nauseates me somehow, makes me sick with terror.

And surely, for someone with Health Anxiety, cancer of any kind must be the worst torture of all - because from then on, once you've had that diagnosis, you live in the shadow of it forever, don't you? Even if you're in remission...every subtle change in the body, every tiny pain or lumpy feature and you're thinking "It's back isn't it? It's back and it's moved to..."

*shudder*

Anyway, I've been on high Lymphoma Alert, if you like, for the past week since reading that guy's story on the forum. And this morning, while getting dressed, I checked my neck and felt two pea-sized swellings half way between the ear and the shoulder. I was in my GP's office by 9am. He confirmed it was my lymph nodes I could feel (:ohmy:) but said there didn't appear to be any "swelling" that he would consider abdnormal, said it was quite normal to be able to feel nodes in the neck - and even showed me one of his own, quite visible as a little peanut shape under the skin behind his ear - but sent me for a blood test to "put my mind at ease."

As always, my thoughts have followed a familiar pattern: initially, I'm comforted by what the doctor says. Then, I start to ask myself, "What if he didn't check thoroughly enough? What if it's just the very early stages, so it seems almost indistinguishable from normal size? He's told me the blood test results will be back tomorrow, so does that show he secretly thinks it's an urgent problem?" - and so sneakily, through the back door, anxiety creeps and creeps back in.

I'm less stressed than I was first thing this morning, but I don't dare be "calm" - because calm confidence, as I said, is what life will punish me for. Similarly, on a plane, if I'm not gripping the arm rests for dear life from landing to take off - if I have the temerity to loosen up and "enjoy" the flight - I'll anger the gods! So I await the results of my bloods with due trepidation. And even if they come back all clear, I imagine checking these nodes on my neck will be a regular compulsion for the next few weeks. They may well have been there, just like that, for years. My whole life perhaps. But I've noticed them now and that's it.

I can see the funny side of my Health Anxiety - I can see how ridiculous many aspects of it are, especially in retrospect, when symptoms have come to nothing. But really, when you're in the midst of it, it's not funny. It's DRAINING. It plunges you into a strange parallel-dimension of dark, death-filled imaginings....where you start to look at other people and feel jealous of their carefree, unworried existence. Just the other day I was watching some burly builders swaggering down the street stuffing bacon butties in their mouths and I thought "I bet they've never had a crippling fear that they've got lymphoma....oh, to be like them."

I marvel at people who somehow manage to just LIVE in this world, without analysing and fretting over every minute of it. People who find a swelling somewhere or have an unexplained pain and just say, "Ah, it'll sort itself out." People like that AMAZE me.

But I don't think I can ever be like that. I think fundamental aspects of my personality like sensitivity, intuition, powerful imagination, acute self-awareness - all of which have plenty of good applications, making me a generally compassionate, understanding and gentle person - also lead to me being intensely fearful and powerfully aware of worst case scenarios. I soak up information like a sponge. When I hear about Delta Goodrem discoring a lump on her neck, I start to see myself in a story like that....my life becomes a story with an already-written tragic script, and words I say to other people become poignant, ironic words looking back from the vantage point of my funeral.

That's why I'll never joke about cancer with friends. I have visions of being that person who joked about having cancer and then turned out to really have it, or that person who dismissed his symptoms as "just feeling run down" and ended up collapsing, having an enormous tumor discovered, and being given weeks to live.

Incidentally, I should say that I blame some of my HA on my dad who's one of those people who ALWAYS has a story about some fella he knew whose nose bled for a few weeks, he turned out to have a brain tumor and was dead two weeks later, or a fella who went on holiday to Croatia, had a stroke and is now in a wheelchair at 52, etc., etc.

Anyway, this has been a mammoth post, but I just wanted to share the bizarre, sometimes comical, but always traumatic, workings of a HA addled mind. I was lurking for a while and saw a lot of people talking about things I recognised, which was really comforting, so wanted to try and give the same effect.

I'm off to go and make sure my lymph nodes haven't grown.

Peace, love and good health.

cattia
15-04-10, 20:32
I love your post! Not becasue I love that you have to live with this, as wel all do here, but because I can relate so much to your story, and the way you tell it. I too deal with my HA by adopting a kind of fatalistic black humour, and other people genuinely believe that I find it funny, because I do see the irony of it and I do talk about it jokingly to other people, but the sad truth is that in the small hours when those thoughts are racing round your mind, you can't make light of it, and it really isn't funny at all. I also find that my symptoms don't always fit the classic 'anxiety' symotms. I delveop all sorts of real physical pains, and I 'know' they can't be anxiety because who ever heard of a pain in your right rib (or whatever this week's symotom is) being caused by anxiety. Pins and needles, palpitatons, stomach upsets yes, but not pain in random places. However I have learnt over the years that there really isn't a single sensation in the body that anxiety can't casue. This is what makes it sooooo frustrating, becasue every single one of those symptoms could so easily be something other than anxiety. I can also relate to what you say about the doctors. I am just the same. I leave the surgery feeling elated, like I have a clean bill of health, a fresh start, then within hours, the doubts creep in. He obvioulsy didn't examine me thoroughly enough, or the test he did was not sensitive enough, or he got my results mixed up with someone else, etc etc and so it goes on.

Interesting that you make the Catholic link, I was bought up a Catholic too and wonder if this has anything to do with this doom and gloom thinking? Every time I get a new syptom, I think 'I have been lucky so far and everything has always turend out to be my anxiety, so by the law of averages, one of these days it has to be something really serious'. I play out worst case scenarios in my mind a lot and somehow seem unable to avoid torturing myself with them.

Anyhow, it helps to find somewhere like this where there are others who can relate. I think anxiety of this sort can so easily be taken as some kind of social joke, but when it's your life that's being taken over by it, it is no joke at all.

blondie47
15-04-10, 20:47
O.K. this is really scary but two seconds in to your post the thought came to my mind, "he must be a Catholic". Takes one to know one. :winks: I can remember being a small child and laying in bed for hours worried about God punishing me for whatever Sister said I did wrong that day.

I'm so glad you took the time to write your experience, because so much of it rings so true for me as well. You tell a good story - maybe you can journal your experience as a way to get rid of it?

Jimpy
15-04-10, 21:05
your post has so squarely hit the nail on the head that I have saved
it. You have worded HA so well and your story really is mine also. Especially the heart part. Welcome to the site mate

jim

Worrier
15-04-10, 21:45
Hi,

Well I wanted to let you know that I read all the way through your post and can really relate to you and all of it.

Firstly though I must say you are such an articulate, well spoken young man and come across as so sincere and genuine.

I never worried about my health until almost 8 years ago, when the palpitations started and I honestly thought I was dying, because in my mind there was no way that my heart could feel that weird and that there couldn't be something wrong with it. So after a 4 hour doc visit after 4 1/2 months of suffering, they went away. Strange that! Anyway it left me always wondering, feeling, poking, assuming that something was wrong. But through it all I kept going, dealing with those completely uneasy feelings alone and in my head, and albeit very difficult some days, I just had to get up, go to work and deal with it.

These days I have some minor things that I worry about but generally I am not all consumed by this. I know that worrying does not change the outcome so am trying to convince myself to stop the perpetual worrying and live life while I have it.

Anyway just wanted to say hello and tell you my side of things. The biggest thing for me is I never want to reach a ripe ole age and look back and say "if only" so that is why I keep going like the energizer bunny no matter what.

Hang in there and let us know how you are getting on.

Take care
Natalie x

agnes
15-04-10, 22:43
Thank you so much for your post, it was brilliant and described health anxiety so well. I also loved the touches of humour you brought to a condition which can, for the most part, be so unfunny. You clearly have excellent writing/communication skills, I hope you continue to make the most of them.

cookiecracks
15-04-10, 23:21
Thank you for writing that ,it could have been me !All the feelings and thought processes are sooo familiar! Of course it's funny when the rational mind is working but when the worry wort is working it's anything but!
I try not to read the newspaper as there is always some story about a cancer victim and once i start reading feel compelled to read the full article and then normally end up having a bad day.
Oh to be care free and not always think the worst!:)

countrygirl
16-04-10, 10:32
Please could you keep a diary and write a book for us all as you describe everything so perfectly - everything you said I have thought especially the bit about daren't not worry and I am not a catholic but still affected exactly the same - maybe we all have the same punishment problem:D

Serously it would be wonderful for us all ifyou could keep us regularly posted about your HA as you are so easy to relate to and funny with it

Welcome:yesyes:

bexy1970
16-04-10, 11:27
totally agree..fantastic post.. health anx put perfectly, i had just said to my sis that i want to be normal!!!! no one knows how HA feels less you have it xxx

Primula
16-04-10, 11:41
Brilliant post, encapsulates exactly how it feels to have HA. Everything you say describes exactly how i have felt on and off for the last 19 years. Oh to be normal and enjoy life.

LaurenMay
16-04-10, 11:53
I cant tell you how your post made me feel. I laughed so much - not at you but at the situations we all face daily with this damned HA.

Thank you.

daydreamer
16-04-10, 15:54
Excellent post, sounds all too familiar! :)

DoogieJ
16-04-10, 19:31
you're my twin brother i swear!! except you like man utd :P

So much in your story I can relate to...especially looking at others and thinking "i wish i could be like you, not worrying about my health"

margaret jones
16-04-10, 19:47
G8 post i loved reading it there are lots of use about it seems .

Take Care Maggie xxxxxxxxxxxxxxxxxxxx

wyomingHA
21-04-10, 03:48
Wow, you hit the nail on the head. I wanted to mention and talk about one specific thing you said which really hit on something I have considered lately, and directly relates to my current "condition".

You mentioned the thought of, "How could anxiety cause this or that...?"

I think something people like ourselves never realize or discuss, is that not all symptoms or sensations have to necessarily be explained by anxiety. For instance, a racing heart seems to be a literal side effect of anxiety. The adrenaline released truely does cause your heart to race. So for instance, you may be worried about a lump on your neck, which causes you to be anxious, which in turn truely does cause your heart to race. At this point our minds would all quickly look to connect the dots, and find out how a racing heart could be a symptom of the type of cancer we must have based on the lump in our neck. So now the racing heart is a symptom, and it was caused by anxiety.

But now what about when you calm down, yet now you seem to have this tightness in your neck where the lump is?? You arent anxious anymore, so that can't be causing this..you think to yourself. And in all probability, it is not caused by anxiety. To me, the majority of our 'sensations', are a somatoform problem. It is more an issue with our brain focusing so intently on specific areas of our body.

This is something I have been dealing with lately. 4-5 months ago I began a new health anxiety journey which started with sleeping problems and simple intense anxiety I could not control. So in the beginning, I was literally just afraid of being afraid. I knew it was anxiety, but my thinking was there was something wrong with my brain (organic cause) which was causing the anxiety, not my thought patterns. Well obviously this was going to be a vicious cycle... but after a few months google reared its head, and really threw things into a frenzy. Initially it was nighttime seizures, and soon after it was MS. While MS was in full tilt, I suddenly one night had a feeling of not really knowing where my limbs were spatially. Its hard to explain, but basically I could feel everything in my body, and had no numbness or tingling, and I could execute any physical movement with great precision... but my mind kept telling me this weird feeling existed anyways. Well, after a couple of days of focusing on this, I suddenly realized, without me even knowing it, the feeling had entirely changed. Suddenly, I didn't have the same spacey limb feeling( although I could create it again if I thought about it), now the feeling was a simple uncomfortable awareness of my own limbs and body in general. The best way I can describe it is the feeling you get (or some people get) when for instance your hands are really dirty with dry dirt, or the feeling of doing things with your hands when your finger nails are too long. Actually somewhat like the feeling you get when you hear fingernails on a blackboard, only less intense. This feeling would persist regardless of whether I was worried about it or not, and would even persist while I cognitively realized that it wasnt really unpleasant or painful. Soon I realized that it existed simply because my brain was trained at this point to look for it. Once it kicked in, it was around to stay basically until I went to sleep. When I'd awake, it wouldn't be there. Around 10-11 AM, I'd start to think, where is that feeling? And sure enough, ten to twenty minutes later, there it was. So obviously I thought to myself, "you just thought about it, and it appeared, so obviously its nothing to worry about", but then it wouldnt go away, so I would think..."im not worried about it or thinking about it (based on my conclusion that I created it), yet it won't go away!"

As I am writing this it still exists at some point every day, and I know that until I truely believe in my head that there is nothing to worry about, it wont go away. So I have to go to the doctor. I need to put everything on the table, and hopefully the all clear will allow me to atleast get past this current saga!

Anyone have any thoughts on the somataform concept?

oldtime
21-03-11, 13:40
You are spot on with the heightened sense of feelings in your body. You become aware of every little ache, your digestion, your heart beat, muscle tension. It's called hyper-vigilance ( abnormally increased arousal, a high responsiveness to stimuli and a constant scanning of the environment for threats) in the case of Health anxiety the threat you are scanning for is in your own body.

I still have this problem even though I know I have HA and I don't believe any more that I have anything wrong with me other than anxiety. I'm just not sure that my sub-conscious brain really believes this, it still thinks that I'm seriously ill.

Greenman50
21-03-11, 17:07
:welcome:

Great post

kah
21-03-11, 18:20
Wow!! Your post is fantastic.
We all know that each other on here suffers from HA but to know I feel EXACTLY as you do makes me truely feel like I'm not alone. Someone mentioned that you should write a diary of how you feel, I honestly would buy it if you put your diary into a book.

Thank you.
K xxx

sandy40
21-03-11, 19:22
Fab post,truelly word for word sums it all up...i envy those people who have aches and pains and pop a paracetamol and get on with it...up until last July i never even took a tablet,never needed too..where the hell has that person gone???:shrug:

amandy1979
21-03-11, 20:12
Hi, i really enjoyed reading your post, i can really relate to what you are going through also. I too feel the worry of enjoying myself or letting go of the worries just incase i am "punished" as such for doing so. I didnt realise so many others felt like this too!

bloxy
22-03-11, 10:05
Excellant post:yesyes:

Your post described exactly how I feel and the exact way in which my thought process works. I can completely relate to the punishment thing and not allowing myself to feel confident that everything is fine in case it comes back to bite my on the bum!

miss polly
22-03-11, 10:58
Excellent post stretfordender! I'm not a Catholic, but think exactly the same way about my health as you do. I'm on a constant high alert and if I dare to drop my guard and relax then the very things I dread will hit me. It's almost like I'm punishing myself for daring to be well when so many people suffer with these hideous diseases/ailments.
I hope you keep posting!

Trish
23-03-11, 01:18
A great post that sums up everything I feel most of the time. if i'm lucky some days it's hanging about at the back of my mind...those are good days:) other times it's smack bang in my face...lungs, bowel, stomach, heart, blood...

...I detest HA:mad:

Thank you for summing it up so well:)

Lanesra
07-04-11, 23:09
I'm also new here despite having read the forums for a few weeks now and this has definitely been the most relatable post for myself and many others it seems.
I'm glad I'm not the only one who feels that 'shameful, karma feeling' when tucking into a pizza and therefore not being able to enjoy it and it's comforting to know that someone my age also has the same feelings.

Sometimes I will see people on tv - example: The blonde girl who won Big Brother a couple of years ago, totally innocent and naive and all she cared about was what outfit to buy for her cute little dog. Back then I would have looked down on her for living in that little bubble but now I'd do anything to be as blissfully ignorant and redundant and yes I feel so damn ashamed of saying and feeling that!!

What must it be like to not have a care in the world?

Good luck to fellow HA sufferers in fighting this horrible battle x