janni
24-06-10, 20:27
I am noticing more and more people posting with Fibro possible Fibro and I wondered how many of us believe it is connected to our psychological/Anxiety problems. In essence I am trying to find out if this is a mind/body condition and I am looking for the best way forward for treatment. The relationship with my Psychiatrist is diminishing because she does not believe it can be so PHYSICAL. grrrrrr
Here is my fibro tale.
:ohmy:
Today is a typical day in fibroland. Found it hard to get up and go in bath with weakness. Accompanying anxiety. I have deep pain in my upper back with other pains in my chest with tooth pain too (going to dentist in am). I have to set alarms on my mobile to remember to take my medication and it is a bad day. My feelings of not coping are taking over.
Onset:
2006: Chronic stomach pain, burning gnawing intense. Could not stand up with it. Ultrasound showed nothing. Backpain on slight activity, was later told that I have a weak back and should be working to strengthen the muscles, I also have hypermobility syndrome(double jointedness) not a good combination.
Odd things started to occur in 2007, neurological symptoms, numbness, anxiety and feeling I couldn't talk. Somatization disorder was given then.
2008 Things began to peak. I was having electical zapping pains running through my fingers. Chronic headaches. Back pain ongoing. This then led to debilitating fatigue. I lay down. With no children to take care off it was easier than those of you who have to take care of your kids and I feel deeply for you. I thought I was depressed but looking back I realise that it was Chronic Fatigue and no one bothered to shine light on that until this year. July or August 2010 I felt up to going out. I was shocked at my deconditioned, fatigued body. I couldn't breathe while walking. I thought I was going to collapse. In fact I am sure I was close. That night my ankles swelled up and they never went back down. Chest pain started around this time with other weird tightness in chest and stomach. Acid reflux and a continuous need to burp with little or no relief. Wild palpitations and irregular heart rate.
I have had paramedics out about six times over the last few years. ECGS no findings.
In March 2010 one GP handed me a leaflet on Fibromyalgia. It was my psychiatrist who confirmed I had this and chronic fatigue syndrome. ( The two are overlapping conditions in my opinion.)
I have gained 3 stones in body weight unexplained, fluid retention, etc my body has changed greatly in appearance more veins are showing yet it is a psychological disorder according to what input I have received from professional.
These are a list of symptoms that I experience or have experienced. some come and go some more chronic
1. Pain (chronic, migrates, can affect any part of the body, can be dull, sharp, strangling in character or be sciatica type pain. Chest pain imitates cardiac pain in so increasing anxiety because I never know when to call for help when it is really bad.
2. Digestive. IBS GERD, belching, bloating, irregular bowel movements.
3. Neurological, Numbness, tingling, Hands feet face. Pseudoseizures. Migraine. Smelling/Tasting differences. Forgetfulness (Fibrofog) Weakness in limbs.
4 Cardiopulmonary, breathing irregularities, heart beat irregular, breathlessness on minimal exertion. Exercise intolerance
5 Other, Seizing up with tight muscles, Walking difficulties because of Joint pain or weakness and breathlessness. Losing balance/dizziness/vertigo. The list goes on.
I pray that everyone will find a way to get better from Fibromyalgia the hard to diagnose hard to treat condition that the health authorities have little to offer for.
As anxiety sufferers this multi symptom condition is a burden to carry, and no one will know but sufferers them:lac:selves.
Here is my fibro tale.
:ohmy:
Today is a typical day in fibroland. Found it hard to get up and go in bath with weakness. Accompanying anxiety. I have deep pain in my upper back with other pains in my chest with tooth pain too (going to dentist in am). I have to set alarms on my mobile to remember to take my medication and it is a bad day. My feelings of not coping are taking over.
Onset:
2006: Chronic stomach pain, burning gnawing intense. Could not stand up with it. Ultrasound showed nothing. Backpain on slight activity, was later told that I have a weak back and should be working to strengthen the muscles, I also have hypermobility syndrome(double jointedness) not a good combination.
Odd things started to occur in 2007, neurological symptoms, numbness, anxiety and feeling I couldn't talk. Somatization disorder was given then.
2008 Things began to peak. I was having electical zapping pains running through my fingers. Chronic headaches. Back pain ongoing. This then led to debilitating fatigue. I lay down. With no children to take care off it was easier than those of you who have to take care of your kids and I feel deeply for you. I thought I was depressed but looking back I realise that it was Chronic Fatigue and no one bothered to shine light on that until this year. July or August 2010 I felt up to going out. I was shocked at my deconditioned, fatigued body. I couldn't breathe while walking. I thought I was going to collapse. In fact I am sure I was close. That night my ankles swelled up and they never went back down. Chest pain started around this time with other weird tightness in chest and stomach. Acid reflux and a continuous need to burp with little or no relief. Wild palpitations and irregular heart rate.
I have had paramedics out about six times over the last few years. ECGS no findings.
In March 2010 one GP handed me a leaflet on Fibromyalgia. It was my psychiatrist who confirmed I had this and chronic fatigue syndrome. ( The two are overlapping conditions in my opinion.)
I have gained 3 stones in body weight unexplained, fluid retention, etc my body has changed greatly in appearance more veins are showing yet it is a psychological disorder according to what input I have received from professional.
These are a list of symptoms that I experience or have experienced. some come and go some more chronic
1. Pain (chronic, migrates, can affect any part of the body, can be dull, sharp, strangling in character or be sciatica type pain. Chest pain imitates cardiac pain in so increasing anxiety because I never know when to call for help when it is really bad.
2. Digestive. IBS GERD, belching, bloating, irregular bowel movements.
3. Neurological, Numbness, tingling, Hands feet face. Pseudoseizures. Migraine. Smelling/Tasting differences. Forgetfulness (Fibrofog) Weakness in limbs.
4 Cardiopulmonary, breathing irregularities, heart beat irregular, breathlessness on minimal exertion. Exercise intolerance
5 Other, Seizing up with tight muscles, Walking difficulties because of Joint pain or weakness and breathlessness. Losing balance/dizziness/vertigo. The list goes on.
I pray that everyone will find a way to get better from Fibromyalgia the hard to diagnose hard to treat condition that the health authorities have little to offer for.
As anxiety sufferers this multi symptom condition is a burden to carry, and no one will know but sufferers them:lac:selves.