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Gemma T
06-08-11, 13:20
Hi everyone

Im Gemma. Not new to this site. I joined in 2009 as I had health anxiety which I successfully overcome so have not been on here in a while. Unfortunately it is back.

Was wondering if anyone had any imput or similar experience to the one I am having.

Last October I begun taking penicillin for a boil and my bottom lip swelled up. Its just on the inside and not obvious to look at me. It looks as though the centre of my lip has grown a hill. No lumps aside from what are expected in your lip. I thought it was an allergic reaction so I stopped taking them and was told it would go down. Well it didnt, the inside of my lips were very sore so I went to the doctor. He said I may have an allergy to something other then the penicillin. He gave me antihistamines and told me to keep a diary. Well I was taking them and eat a sandwich with tomatoes in and my top lip started burning and tiny white spots appeared on my lips (the spots have not gone away but I was later told by two GP's that they are Papillae or something like that and that it was cosmetic).The inside of my lips became so sore i could not eat anything acidic, salty or spicy.

I went back to the GP who tested me for b12 and folic acid deficiencies, she assured me that it was not an allergy as my mouth had not reacted in that sense. I had to pick the results up from another doctor as mine left and he gave me a heart attack. He told me that my b12 and folic acid were low but not low enough to cause my problems and the reaction i had when i eat the tomatoes was a serious reaction and that why the antihistamines did not work. This was odd to me considering i had also been eating lasangne and spaghetti?????? He gave me my vitamins and sent me on my way.

I was very confused as i had been told it wasnt an allergy and then told i had a servere allergy. I also had two symettrical cysts in my cheeks come up and was convinced it was oral cancer. I went to see another GP and explained everything that happened. He assured me that I am not allergic tomatoes and that my mouth was fine. He went above and beyond to assure me i did not have oral cancer and that it was just cysts caused by rubbing on my teeth. I went away fairly happy with this and plodded along for the next few months. I also saw my dentist at the time and he was happy it was nothing serious and told me to come back in 6 months.

Problem is my lip had not gone down and the inside of my mouth was still irratated. I went to see a different GP and when he looked at my b12 and folic acid results he said they were very low and are more then likely to be the cause of my problems. I was again tested and my results had come up a little but was still very low. He also assured me it was not cancer and told me to come back in 3 months and i will be re tested. I also saw the dentist again and explained what my gp thought. He told me he could not see any problems and to come back in 3 months. I also noticed some small lumps on the side of my tongue and the dentist said it could either be tooth damage or an ulcer. Horror of all horrors as i knew ulcers can mean cancer. I asked if it was anything to be concerned about and to top it off he said not at the moment but if im not better in three months he was referring me. Well thats when my health anxiety really kicked in. I have been to the gp three times since worrying these lumps are cancer but on the plus side the burning on my lips did stop and i was able to eat salty and acidic things, spice can be a problem though. Everytime i am told that they are not and i have a healthy mouth. I also have these lumps on the other side and my gp told me they could be taste buds or caused by my teeth but not to worry as. I have kind of accepted the taste buds or teeth theory as it would be ultra rare to have symmetrical cancer on both sides of the tongue. But now I am also experiencing pain in my tongue along the sides where these lumps are and sometimes in the centre of my tongue where the hill type bit is. And yes my lip is no different. Yesterday the sore and burning lip was back but seems to have gone today.

Well after my long winded story i dont have to tell you guys im conviced i have oral cancer. Its pretty obvious lol every thing i read tends to pint towards this. And yes i was a smoker. Smoked for 7 and a half years but because i was so worried i gave up and ive been smoke free for 7 weeks (not such a bad coping mechaism).

To date none of my symptoms are any worse then they originally are. Sometimes they look and feel alot better and the next its back again.

On the plus side i rarely get ulcers. I had one a few weeks ago which was gone in one day. I took a chunk out my cheek when eating raisons and it was healed up in a couple of days. Im thinking that oral cancer would be abundantly clear by now. I mean its nearly been a year and no one has told me to give up smoking. Not even suggested it.

But like all the sites say: a thickening of the lip (esp the lower as this is normally where lip cancer is), discomfort and soreness persisteing longer then 3 weeks, lumps (some element of doubt about my tongue) are all sides of cancer. Not to mention the fact that I went to the ent a few years ago because of an over active right lymph node, alot better now but lets me know when im run down and stressed or ill. Oh and my dodgy right ear. Once in a while I get shooting pains up my neck into my ear and it hurts to push the tragus. All signs that my cancer has spread to my lymph node.

Im only 26 and smoking 7 and a half years aint drastic but im convinced i have cancer and no one else seems to acknowledge it. I have not been to a specialist and had no biopsies and have been really good to last so long considering my state of my mind. I dont know if i should be proud of myself for not pushing to see a specialist or not. I choose to trust my gps and dentist because i know i have health anxiety and i know how it works. Plus they are fantastic and ive been seeing them since i was 5. I know half my sensations are phantoms conjured up by my over analysing but doubt gets the better of me.

I dont know if im asking anyone for reassurance or not (mean you guys). I am at a loose end right now and im driving myself mad. Just to have someone to talk to who knows what Im going through would be nice.

I applaued anyone who has managed to sit through my ranting and i thank you for taking the time.

Love and support always

Gemma x x x

snowgoose
06-08-11, 13:43
HI Gemma:)

so sorry your health anxiety is back ...........it takes over your life doesnt it ?
At the moment I am fretting over lymphoma cos of night sweats [the fact I am menopausal doesnt ring the correct bell of course when I am fixated :blush:]

anyway let me reassure you the docs and dentist would so not miss oral cancer
emphatically not :hugs:
it is in older people and is linked with smoking and drinking alcohol .
excellent you have given up the fags ..keep going !!! but you are not a long term 40 a day gal smoking for 40 years xx

were you ever given anything for the low B12 and folic acid deficiency?

I believe we all have a weak spot in our system that shows up when we are anxious and under par ...........

I truly believe you have not got mouth cancer ......you have been checked lots of times xx

have you thought of multi vits etc ?
also mouth washes you get at a supermarket etc often contain an alcohol base which dries out the mouth . try a gentle salt based home made one .

take care :hugs:

Gemma T
06-08-11, 14:02
Thanks for your response and support.

I was given b12 and folic acid tablets. I had been given them by the doctor who scared me but i didnt take them much because i thought it had nothing to do with my problems. Would make sense considering i was no better then started getting better when i took them on advice of a nice doctor.

Yeh i have switched to a non alcohol mouthwash. Listerine killed me lol

Im sure half my symptoms are mind over matter because they are sensations and i know that if i continue to run myself down my gland will play up. I even caused tonsillitus a month ago and that was not nice.

Its just so hard to cope everyday. I manage to convince myself I am fine then all of a sudden im having panic attack over it. Im forever analysing my mouth and I have been warned by the doctor that i will find what i want to find. I have nail extensions as well so i have probaly caused alot of damage lol

When my lymph node came up i was convinced it was lymphoma. Id be dead by now if it was. It was up constantly for months and when i got to the ent and i had a scan it was swollen by still to small to take a biopse. It was put down to normal bodily reactions and since then Ive been pretty good with it. Just lets me know when things are getting bad.

Oh and when i had tonsillitus my glands came up and i looked like i had the neck of a body builder. Trust me, lymphoma would make itself very obvious. Hope this helps.

Thank you again

x x x:hugs:

snowgoose
06-08-11, 14:14
thank you for reassurance Gemma ...........lovely to get back :hugs:

please dont fret over oral cancer ............it is most certainly sensation fixation .
but no less horrid I know .

time to see your doctor do you think for some CBT or counselling do you feel ?

you are so young and it is not right you should be so unhappy .xx

Gemma T
06-08-11, 14:42
Im on the waiting list for CBT. My doctors are so good and so supportive. They always check my symptoms and are so sympathetic. Ive had a few tell me about their health anxieties when they were training. One said what ever they learned that week he had. Another who has been there since i 5 told me he still gets and checks and knows how difficult it is. Im actually really lucky to have such a good heath centre over the road.

If you need to talk in private feel free to inbox me. I know how it feels and how bad it can get.

I am definately too young for this. I blame this evil male who I allow to use me as when ever i see him my anxiety hits rock bottom. Thankfully ive deleted his contact details. Im not in a good place as it is and dont need some bone head making it worse. I know in my heart that he dont deserve me. Mad or not lol

x x x :bighug1:

suspicious1
06-08-11, 19:56
hi Gemma,

I also have very similar symptoms and they started when I was on antibiotics 6 years ago. Swelling lips, sore mouth, tongue and throat, lots of lumps and bumps and irritated feeling most of the time in my mouth. I also had very low levels of b12 and iron, I had injections of b12 and iron tablets for a few months. I still had reactions after that but it improved a bit. It seemed to me that the antibiotics along with low b12 set off some sort of immune/allergy problems in a mild way. I had lots of tests for other things, it definately wasn't cancer although I did worry about that to start with especially as I was very tired too but the b12 helped with that.

anyway years on my mouth is still irritated very easily by eating but I find chewing gum helps neutralise any acidity after eating and keeps my mouth feeling more comfortable. Other than that I try to eat as healthily as possible to keep my immune system good and minimise the reactions. It has got better and not worse and I'm used to it all now.

I hope that you learn to cope with it and not be panicked by it and not worry about cancer, the Dr or dentist would have picked that up by now.

Gemma T
07-08-11, 13:32
Thanks for your message. It is reassuring as it all started when i took the antibiotics. Its been going on since october so if it was cancer it would be obvious by now or i would be one hell of a medical phenomenom lol.

I had a lump appear in the roof of my mouth yesterday and my lymph gland is playing up. Ive been good so far. I just keep thinking back to when i caused bad tonsillitus and trying to accept that i am causing alot of my symptoms by stressing out. Im pretty sure the lump is a result of some sharp Mc d fries i had yesterday even though i dont remember causing irratation.

Its such a shame that im so sensitive to spice now. When ever i eat something spicy the inside swells and it get a lump that comes up on the inside of my top lip. It goes when the irratation goes. Im such a massive fan of spice so Im gonna have to deal with it.

Thank you again x