Thank you Carnation and sial72. Positivity and hugs much appreciated.
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Thank you Carnation and sial72. Positivity and hugs much appreciated.
Those groups sound good. Like Carnation says, even getting to one will help and they will help with the anxiety/depression too, albeit with some extra initial anxiety just going to them but after a few sessions you could feel much more positive about them.
If you can only do the one with your friend, it's a start and after a few sessions you may even feel strong enough to try the other one on your own.
It's all good progress no matter which you do. Good luck. :hugs:
Maybe going to one or both of these groups will help you feel less on your own and more supported? Just waiting for appointments/scans must be so depressing and demoralising and now at least you are doing something positive to help yourself.
I really hope the NHS gets its act together really soon. You must feel very let down and rightfully so.
How are you 23tana? Have you heard anything yet? :hugs:
Nothing yet. I'm trying hard not to get depressed. The Parkinson's support person is coming to see me next week.
I've been to the singing group, which was scary. Fortunately we started with breathing exercises so I got my feelings of panic under control. It's movement class tomorrow. I'm more nervous about that, so I hope I get through it ok.
Thanks for asking
I am pleased you went to the singing class, I think that will be good for you. :)
Good luck with the movement class.
Before the support person comes next week, make sure you have a list to refer to for any questions you want to ask. Make the most of the visit while you have them there.x
Good luck for the movement class-anticipating the first class will be the worst bit and I do hope you feel comfortable there and that it brings you much needed support. Am pleased to hear that you have finally got someone coming round to your house too-as Carnation says, just make the most of the person's visit and make her earn her salary!:D(Don't know why I'm assuming it will be a woman?)
Well I got lost on the way which didn't help with my anxiety, but I made it to the movement class. It was hard work and quite upsetting as it brought on the tremors. I managed not to go into a full panic attack, which I was pleased with myself about.
I got quite a lot of advice from the other members as to what to ask the support worker - enrollment with a speech therapist being a priority.
So now I'm going to take a nap and hope my heart stops pounding.
Well done you, for making it there. :yesyes: :):hugs:
Well done from me too!
Saw my GP today and I spoke to the consultants secretary. They have no idea when the scanner will be fixed. I've to ring back next week. Doc still can't start my meds.
This is really getting me down. The anxiety makes the symptoms worse and now I feel on the edge of depression. It's a daily battle against my body and my mind.
I thought they were going to send you somewhere else? :shrug:
Next week? Oh, this is getting ridiculous.
Look, the positive is they obviously do not think this is urgent.
But, the negative is the frustration and waiting and being mucked about.
I know it's hard but you must keep yourself busy with things so the time passes quicker.
My Father had Anxiety and Parkinsons and that is exactly why he had loads of jobs lined up to keep is mind away from worrying and Anxiousness.
You are alive today and will be tomorrow and next week and next month and so on, so live and make plans. Don't let the depression win, you have support on here, you have your classes that you have just joined and join that support class as well.
Try to get as many people around you as possible, it helps sooo much.
And never be afraid to ask for help.
Sending you hugs 23tana. :hugs::hugs::hugs:
Thank you for the wise words and hugs, Carnation.
I've heard from someone else who had similar problems with our health authority. I guess they can't help the scanner breaking down, but there were so many promises of support when I was diagnosed that have not come to fruition.
I'm planning on going to Wales for a few days in October to see my mum on her birthday. I may extend the stay. And I'll keep up with the classes. I just wish I could control the anxiety as I know it's pointless.
Thanks again for the reply.
I finally have a date for my scan. They have a cancellation on 1st October, so of course I said yes! Seems constant pestering paid off!
I am anxious about it though. The whole process takes 4 hours, with 25 minutes having the machine go round your head. I hope I can hold still.
That's just 7 days to go! I know the whole process sounds very daunting and lengthy but I'm sure you will be offered some "help" should you need it particularly for those 25 mins.. Am really pleased that you have got a cancellation-you so badly need to have more information on your condition in order to move forward xx
That's great news 23tana. Not about having something around your head for 25 minutes, but great that you now have some progress and not too long to wait. :)
As you know I will be away on Holiday, but I will look in from time to time. :hugs:
Thank you pulisa and Carnation.
Hope you have a great holiday Carnation x
Getting panicky about the scan now. Only 2 more days to go. I'm allowed to take my meds as normal before I go, so will take a Diazepam. I'm really feeling anxious about the machine being around my head. I hope it's not noisy like an MRI scan. Has anyone had a DaT scan?
Tremors are worse due to the anxiety and I've a constant feeling of panic. Tips for calming down please anyone.
Hi 23tana
I had a head scan 6 months ago but don't know if it the same one, the one I did was not noisy.
Tips for calming down:
1. Check "Eft for anxiety" or "eft for panic" on youtube.
2. Watch Claire Weekes interviews on Youtube, she is amazing and for some reaso (despite her clothes and the way she speaks lol) she always manages to calm.me down.
Best of luck, sending you hugs and energy xx
Last day before the scan. I'm permanently anxious and having panic attacks. I hope I can get through this!
I will be thinking of you tomorrow. The worst bit is always the build-up as you know only too well. Get the scan over and done with and you'll be onto the next stage and will have gained more knowledge into managing your condition. Distraction will be nigh on impossible today-just hope the day passes as quickly as possible and then you're dealing with tomorrow and progress xx
Agreed, the build up is the worst. Before you know it, it will be over. It's ok to be nervous about it. This is something you've been waiting for for a long time, it will be good to get it done finally. Thinking of you :hugs:
Just back from the scan. It wasn't too bad. Now to wait for results.
Glad it's over and you got through it!!
Very relieved you got through it-you must feel exhausted?xx
Hi 23tana. I am still away on my hols, but thought I would just take a peek at your thread. I am glad you got through your scan day ok.
Keep strong and positive and thinking of you. :hugs:
Results tomorrow. Panic attacks today. Distraction isn't working so I guess I'll just have to ride it through until tomorrow.
The scan was nowhere near as scary as I thought it would be and fairly quiet - no ear muffs needed. I shut my eyes and the 25 mins seemed to go by quickly.
I know it's natural to be anxious about the results, but I really could do without it as I have questions to ask and want to appear rational not a quivering wreck. lol
I'm sure you'll go well prepared with your list of questions written down for when your mind goes blank...if it does.
Thinking of you and good luck xx
Good Luck for tomorrow 23tana. x :hugs:
Good news. It's not Parkinson's Disease. It's Parkinsonism caused by the tablets I'm on. That's symptoms that mimic Parkinson's.
Stopping the tablets or changing them should allow all the symptoms to clear up. That could take up to 2 years or might only be months, they can't say. At least it's not going to get worse.
I'm so relieved and totally exhausted. I can't say thank you enough for your support. Thanks :D
:yesyes: That's brilliant news! I am soooo pleased for you. :)
And, you won't have to move now. Fantastic 23tana. :hugs:
Have only just spotted this but so pleased for you!! I can't believe that this wasn't suspected before and you have been through all this trauma........
You must feel so relieved but I'm sure you'll be feeling angry somewhere down the line? To think that tablets can cause such symptoms.....
Hi,
The amount of support I have had on this site has really helped me over the last year.
And in all honestly, I think it helps people with HA to be able to focus on supporting others on the site including with a diagnosis.
I want you to know that although I don't know a lot about Parkinson's I am here for you and, and completely get you when you said you couldn't even type the subject line.
The research into the condition has come on leaps and bounds, and no its not what anyone wants to hear but I know that you can get through this and still live your life to the best of your ability. As anxiety sufferers we make this difficult for ourselves, but in some ways this will be able to help you appreciate the important things in life rather than focusing on every little thing that could go wrong. Essentially your fear has become true, but rather than let that consume you you can embrace it and turn a negative into a positive as they say.
Easy said than done I know.
But the NMP community are always here :).
The OP hasn't got Parkinson's? Another cause was found fortunately.
What tablets were you on???