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Can’t stop worrying about MND
Hi all, I know I sound like a broken record just having a really bad day today - i have been twitching for 6 months now and I am going out of my mind I’m so worried I have MND at 29! My whole body seems to be aching on and off and I can’t shake fear
I keep self testing myself daily to make sure I can lift weights and jump up stairs
It’s a nightmare
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Re: Can’t stop worrying about MND
Are you getting help for your anxiety?
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Re: Can’t stop worrying about MND
Hi Blue iris I’m currently on citolapram and was doing so well to be honest I stupidly read an article which has triggered me
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Re: Can’t stop worrying about MND
Hey Murphy93,
I'm sorry your worried. You might be best to weather this storm out and let it pass. You said you were doing well and the Citolapram was helping. But then you were triggered. I've alway felt meds were more of a bandage so to speak. They cover the wound but they will not heal the wound. You should really try to change your mindset in regards to your fear of MND. Try to start a new hobby, spend time with friends, maybe charity work. Anything that will help you move on and resist the urge to lookup and read anything that is going to trigger your fear. Before you know it it will be easier and your fear will be further behind you. I just feel anxiety is a part of a person and only that person can fix it. Good luck and take care.
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Re: Can’t stop worrying about MND
Quote:
Originally Posted by
Yourboymj99
Hey Murphy93,
I'm sorry your worried. You might be best to weather this storm out and let it pass. You said you were doing well and the Citolapram was helping. But then you were triggered. I've alway felt meds were more of a bandage so to speak. They cover the wound but they will not heal the wound. You should really try to change your mindset in regards to your fear of MND. Try to start a new hobby, spend time with friends, maybe charity work. Anything that will help you move on and resist the urge to lookup and read anything that is going to trigger your fear. Before you know it it will be easier and your fear will be further behind you. I just feel anxiety is a part of a person and only that person can fix it. Good luck and take care.
Thank you for the support Yourboy I’m so down about how I’ve been feeling the past 7 months. Thought I was over it but guess I’m not - I genuinely feel I’ve put my body through so much stress I’m shaking I’m sore all over it’s horrible yet still jump to als conclusions .
I know medication isn’t always the answer I am definitely going to consider your advice!
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Re: Can’t stop worrying about MND
I have been twitching for almost a year as well...has yours let up at all? I had blood work, which came back fine. Now my dr. wants to send me to a neurologist, so I'm freaking out!
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Re: Can’t stop worrying about MND
Hi all, I hope you are doing good,
It’s been a while since I’ve posted and I honestly thought I was getting better,
Had a major set back today I’m terms of my anxiety and now I am again Analysing everything going on with my body.
I still have awful all over body tremors, twitching and muscle pain, got myself into such a state tonight back down the als route .
Spent the full night strength testing as usual, 10 months and counting - I’ve nearly wasted a whole year of my life on this worry .
Sorry for going on just hoping someone was able to lend some words of wisdom for me tonight or some tough love actually!
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Re: Can’t stop worrying about MND
10 months of thinking you have ALS ? Well, by now you'd probably be using a wheelchair is you had ALS ! You don't have it, and never did have it, and to be frank with you (you wanted tough love lol) wasting every single evening strength testing is astonishing, aren't you bored of it by now all that testing ? Even people with ALS don't waste every evening testing or worrying about their condition, meaning most are living a better quality of life than you. There is no ALS, what there is are 'pure and simple' physical symptoms of anxiety.
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Re: Can’t stop worrying about MND
Hey Murphy,
Im sorry to hear you've had a setback and fell back into the hole. Remember, it's only a setback. It happens. Body tremors, twitching and muscle pain are all common symptoms of anxiety. I've got a broad knowledge of the neuromuscular system due to my profession and trust me, you do not have ALS. I've even had a few setbacks. Someone will ask me "how can you suffer from health anxiety" with the work you do? Like I said before, it's a part of me and from time to time anxiety will catch me off guard and I have to work through it. Just like most everyone else on this forum. Picture yourself not reacting to the feelings you've been experiencing. Go grab a drink with a friend or go visit your family. Start a new hobby or anything to keep you busy and not so focused on what you feel and fear. Live like you feel great and you will start to feel great. Hang in there, this will pass. Your going to be fine.
Take care
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Re: Can’t stop worrying about MND
A big thank you to you both for replying! It really does mean so much and I more than needed that tough love Carys Lol!
Hi your boy it’s comforting to know you have experience in this profession and I really appreciate your words,
I went to the gym this morning and worked out for an hour - I gave it my all and boy do I feel better for doing so
It’s so easy to get wrapped up in the thoughts of my head that I forgot how to function normally
Guess I will just need to take this one day at a time and hopefully slowly recover from this
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Re: Can’t stop worrying about MND
Quote:
I went to the gym this morning and worked out for an hour - I gave it my all and boy do I feel better for doing so
It’s so easy to get wrapped up in the thoughts of my head that I forgot how to function normally
Guess I will just need to take this one day at a time and hopefully slowly recover from this
Wow, well done you - I think you are making brilliant progress on 'recovering from it' already. A get up and go attitude and distraction are the best attributes needed at this time.
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Re: Can’t stop worrying about MND
Having a bad night tonight read an article in the news which has triggered me now I am in a panic .
I wish I could stop worrying about this but I don’t know how to
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Re: Can’t stop worrying about MND
Is anyone available to chat - I’m having a bit of a panic attack tonight and need tips to calm down
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i Wish it would all end
Hi all
Just having a real bad couple of days Again and I am absolutely fed up Of living my life like this.
I have literally been worried sick since the end of January this year that I have MND and here I am ...still here!
I’m so angry at myself for letting this get on top of me, some days I am doing so well and then there’s days where I just want to fall apart.
I’m dragging myself through life at the moment and just don’t know what to do, I don’t know how to get it in my head that I am ok ?
For people that I have been down this rabbit hole , how does it end please let me know how you did it and got out the other side,
Healthy anxiety is winning again at the moment and my anxiety is becoming a full time job, I am In tears alone on a Friday night.
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Re: i Wish it would all end
I got out with therapy. I was as far down as I could go and that's what got me out. And work. You can't stop working on it. I have seen a therapist on and off since 2015 and now have one I see once a month to stay on top of things. I wouldn't have made it through without that. I also know many, many people who are incredibly successful with medication. Either way, start by either talking to your doctor or looking into therapists. Don't expect you can do this alone.
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Re: i Wish it would all end
Drugs, CBT and bloody-mindedness. I had to hit the point where the desire to not be miserable outweighed the fear.
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Re: i Wish it would all end
Thank you for replying to me , I think it’s time I seek professional help and medication I see no way out from this
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Re: i Wish it would all end
Quote:
Originally Posted by
Murphy93
Thank you for replying to me , I think it’s time I seek professional help and medication I see no way out from this
Yes - there is no reason to take your mental health any less seriously than your physical health. Just like sometimes we get illnesses that our body is able to fight off on its own and other times we need to see professional help or take medication, sometimes our mental/emotional health reaches a point where we can't recover on our own. There are so many resources out there and no reason to keep needlessly suffering!! Good luck!!
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Re: i Wish it would all end
I am suffering a serious setback and I don’t know what to do with myself I can feel a panic attack coming on and i am alone myself not sure how to stop it.
I honestly can’t stop worrying about MND - it’s taken 11 months of my life now and I am a mess still, I’m not sure how I can continue like this .
Really think I’m at my rock bottom
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Re: i Wish it would all end
What symptoms are you experiencing? Sorry to hear you are going through this. Healthy anxiety sucks.
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Re: i Wish it would all end
Hi back roads thank you for replying to me , I’m literally at my wits end with this.
All over twitching for 11 months now! Can’t shift it can’t seem to think it’s anything else other than this scary illness,
Now I’m having the classic symptoms of an anxiety attack and just trying to get myself back under control :(
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Re: i Wish it would all end
I've been twitching for over 3 years. It sucks. Wish we could find a remedy. So far, I haven't found anything that clearly helps.
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Re: i Wish it would all end
Yes yes yes. Been where you are. Finally sought medication and am on meds and I see my therapist weekly. It’s a miserable feeling. I just got to the point where I felt like I owed it to my family to be the best me. Get some help. It will help you. In the meantime start by reading some of the free CBT books on here. You can get better. And when you are better you can relapse. But learning how to cope when the shadows creep in makes a huge difference
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Re: i Wish it would all end
I really feel for you and can relate to your post. I’m going through a terrible time right now and wonder each day how I’m going to make it through. I am scheduled to start seeing an OCD therapist next week. But I am still sure I have a particular disease and can’t imagine ever being free from it. I wish I had good advice ... I would say to certainly look into meds and therapy, because your life is worth fighting for. Here’s hoping we can find peace.
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Re: i Wish it would all end
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Originally Posted by
Scaredtoo
Yes yes yes. Been where you are. Finally sought medication and am on meds and I see my therapist weekly. It’s a miserable feeling. I just got to the point where I felt like I owed it to my family to be the best me. Get some help. It will help you. In the meantime start by reading some of the free CBT books on here. You can get better. And when you are better you can relapse. But learning how to cope when the shadows creep in makes a huge difference
If you don't mind my asking, what type of medication helped you the most?
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Re: i Wish it would all end
Quote:
Originally Posted by
BackRoads
If you don't mind my asking, what type of medication helped you the most?
No I don’t mind at all. Currently I’m on Wellbutrin and Zoloft together. Now I know some people
Question this combo as one can amp up your anxiety but for me it’s the right combo. It literally keeps me from shutting down. Like right now I’m very panicked and scared about something but I’m still able to function and be somewhat rational without going off the rails. I also have Ativan and Xanax as needed but I really try to avoid taking those unless I’m having a full blown panic meltdown
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Re: i Wish it would all end
Hi all thanks for the replies , I hate that we are all feeling like this but it’s nice we can support each other, anxiety is an awful awful burden . I have had a terrible month and I don’t even know why . Have managed to get my fears some what under control then it just comes back with a vengeance . Today first day of a new month and I am going to try and enjoy this festive season ! I agree regarding medication I think I may visit docs - I’ve avoided them for 11 months now but may have to give in and ask for help . I started the cbt work books last night many thanks for the tips . I feel like I have leg myself down by getting in such a state this year. I have literally wasted the whole year worrying about a rare disease . I remember stupidly googling on the 1st January 2019 and Almost a year later here I am . I’ve spent most of my time consumed with these thoughts and just surviving rather than enjoying life I cannot go into another year like that
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Twitching and shaking
I’m under immense stress just now and feel that my anxiety is crippling me . The one I am struggling with big time is the all over twitching and internal vibration feeling.
Does anyone have any success stories of how they beat these symptoms,
I feel like I’m at breaking point, I live alone with no one to talk to and really am feeling so down about life it’s reducing me to tears every night. I’m so worked up
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Re: Twitching and shaking
Quote:
Originally Posted by
Murphy93
I’m under immense stress just now and feel that my anxiety is crippling me . The one I am struggling with big time is the all over twitching and internal vibration feeling.
Does anyone have any success stories of how they beat these symptoms,
I feel like I’m at breaking point, I live alone with no one to talk to and really am feeling so down about life it’s reducing me to tears every night. I’m so worked up
Sorry you are going through this. I wish we could find more success stories. I've been struggling with this for over 3 years. My anxiety is sky high.
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Re: Twitching and shaking
I’ve had a terrible past couple of days , feel like I’m never going to get out of this rabbit hole - this is the worst I have ever felt, and it’s coming up to a year now. A whole year wasted .
I’m so tense and terrified all the time and the twitching is still there after 11 months .
Had another panic attack last night and honestly could just burst into tears .
I am going to go back to my doctor tomorrow as I can’t continue like this
The ALS rabbit hole is one the worst and i am still convinced something serious is going on .
Has anyone had experience of twitching for this long and had any success stories ?
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Re: Twitching and shaking
Quote:
Originally Posted by
Murphy93
Has anyone had experience of twitching for this long and had any success stories ?
Not one of any of the ALS posters has ever actually had it :winks:
Positive thoughts
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Re: Twitching and shaking
Thanks Fishmanpa ☺️ I really do hate that I get myself into this awful state sometimes .i hope I can get Over this
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Re: Can’t stop worrying about MND
So today marks a whole year of worrying . One whole year ago I started to obsess over MND and I am ashamed to say I still am .
Having a bit of a panicky morning and I wish I could move on with my life
Please someone tell me straight
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Re: Can’t stop worrying about MND
Hi
This is just a courtesy reply to let you know that your thread was merged with another of your threads.
Please when posting on similar topics add it onto your previous post rather than starting a new one.
It is nothing personal it is just to make it easier for people to follow your story and to give you advice as a whole.
Elen
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MND fear had gotten all too much no idea where to go from here
Hi all
I am really struggling I mean really really struggling with this fear and have done for one year now,
I am lying wide awake and been looking thorough the archives for some comfort. I see a lot of users posting “ I had this fear years ago - I remember having the fear “
My question is how do you get over it ? How do I make it a distant memory. Is it the passage of time
I have been twitching for one year now and my anxiety is literally sky high I’ve been barely living just getting through each day I’m so nervous al the time and feel so sick . I barely want to plan for the future .
Any words of wisdom would be truly welcomed I don’t want to go into another year like this - I also turn 30 this year and would love to not be in this mess .
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Re: MND fear had gotten all too much no idea where to go from here
Honestly? You acknowledge its existence and then you redirect your attention towards something more positive and productive. At first, you might have to do it several times a minute, but time will make it easier.
If you're not already on meds, an antidepressant can really help if it's too tough to manage on your own.
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Re: MND fear had gotten all too much no idea where to go from here
Hi
This is just a courtesy reply to let you know that your post was moved from its original place to a sub-forum that is more relevant to your issue.
This is nothing personal - it just enables us to keep posts about the same problems in the relevant forums so other members with any experience with the issues can find them more easily.
Please also read this post:
http://www.nomorepanic.co.uk/showthread.php?t=213239
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Re: Can’t stop worrying about MND
Hi
This is just a courtesy reply to let you know that your thread was merged with another of your threads.
Please when posting on similar topics add it onto your previous post rather than starting a new one.
It is nothing personal it is just to make it easier for people to follow your story and to give you advice as a whole.
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Re: Can’t stop worrying about MND
Quote:
Originally Posted by
BlueIris
Honestly? You acknowledge its existence and then you redirect your attention towards something more positive and productive. At first, you might have to do it several times a minute, but time will make it easier.
If you're not already on meds, an antidepressant can really help if it's too tough to manage on your own.
Thank you for the reply Blue Iris I appreciate it :)
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Re: Can’t stop worrying about MND
Quote:
Originally Posted by
Murphy93
Thank you for the reply Blue Iris I appreciate it :)
Why not show your appreciation and act on the pages of advice you've received throughout the last year?
Positive thoughts