Re: ALS Fear and struggling
Hi
This is just a courtesy reply to let you know that your post was moved from its original place to a sub-forum that is more relevant to your issue.
This is nothing personal - it just enables us to keep posts about the same problems in the relevant forums so other members with any experience with the issues can find them more easily.
Please also read this post:
http://www.nomorepanic.co.uk/showthread.php?t=213239
Re: ALS Fear and struggling
Quote:
Originally Posted by
4bready
Hi folks...I know there are many threads and I have been reading up. Just wanted to voice that I have been in ALS rabbit hole for past 48 hours. 47 year old male...Started with my right foot feeling tight and like I cant lift my toes as far as I normally can, thinking foot and shin is getting weaker and my shin muscle is sore. I started wearing flip flops about a week ago on and off, but still I go down rabbit hole....Therefore, of course, I went to ALS rabbit hole thinking I want to watch my kids grow up. Not much else, just really sad as I have ben doin geeks for a while. This fear is intense. Sorry to vent, just wanted to get this out to a group I feel safe with. All the best to everyone.
Straight away we have cause and effect. We walk differently wearing flip-flops because there is almost no support. You'll be using muscles in your feet that you're not used to using. Nothing to do with ALS...(but I think you know this)
Re: ALS Fear and struggling
Quote:
Originally Posted by
4bready
Hi folks...I know there are many threads and I have been reading up. Just wanted to voice that I have been in ALS rabbit hole for past 48 hours. 47 year old male...Started with my right foot feeling tight and like I cant lift my toes as far as I normally can, thinking foot and shin is getting weaker and my shin muscle is sore. I started wearing flip flops about a week ago on and off, but still I go down rabbit hole....Therefore, of course, I went to ALS rabbit hole thinking I want to watch my kids grow up. Not much else, just really sad as I have ben doin geeks for a while. This fear is intense. Sorry to vent, just wanted to get this out to a group I feel safe with. All the best to everyone.
Hello from down in the hole. My first thought, weirdly, was one of envy because you’ve only been down here for 48 hrs. It’s the flip flops. Get out while you still can!! Good luck
ALS Fear, Scared and Frustrated at self
Hi folks, been here a few times over years and I have ALS bulbar fear firing really bad. I feel like a week ago there are times I start a sentence and don’t finish a particular word and then have to restart the word. For example I told my child “make sure you take several” and just said sev instead of several and had to start several over”. Also it seems difficult to say "sl" sound, my wife swears I sound perfectly normal. It feels like my mouth is tight and tongue is heavy and I slur a word or so. I also have trouble tripping or not completing a word in a sentence every so often, maybe once every 10-15 sentences. My mouth feels tight and tongue stiff and heavy...
So my fear is I am starting to have bulbar ALS and freaking out. My wife insists I sound fine. So upset
Re: ALS Fear, Scared and Frustrated at self
Maybe go back to your other posts about the same thing you've made over the years and read the comments you've already had that you didn't respond to.