Re: Update On My Situation - Just Had EMG
Quote:
Originally Posted by
darkside4k
Hey Everyone,
I wanted to come back and give everyone an update on my health situation. Some of you may remember by very long thread a while back that started about lymph nodes and ended up on ALS a full year later. A brief recap, my symptoms were / are:
- Muscle pain in various muscles throughout body, but primarily in my right shin.
- A feeling of muscle fatigue where my muscles wear out more easily.
- Twitching in various places. Sometimes focused in one place for a week at a time or more.
This has been going on about 7 weeks. I went to PCP which sent me to Rheumatologist, which referred me to Neurologist for an NCV + EMG test in order to rule out any nerve problems.
Today I had the NCV + EMG and both were totally normal. The neurologist said I do not have anything like ALS and ALS is very obvious on an EMG.
I just wanted to provide that follow-up because I know I appreciate when someone has similar symptoms as me and posts an update that everything turned out fine. I don't know where I'll be going from here as I think the Rheumatologist may still want to pursue some other things - but, ALS, which was my main fear, is apparently out of the question based on the EMG results.
Quote:
Originally Posted by
darkside4k
I can already feel myself slipping back into health anxiety. Wondering why I do have shin muscle soreness in my right leg. Maybe I have some other very serious disease or even cancer. Maybe MS. Maybe some sort of cancer. Maybe some sort of debilitating muscular disease. Heck, maybe even ALS even though I’ve had a clean EMG - although I do still accept that is unlikely.
I have to admit I still have strange muscle soreness in my legs, particularly my right shin.
I don’t want to go back to this dark place.
I have to accept that death is always a possibility at any time. I think that is the root of hypochondria. Scared of dying and leaving people behind. Scared of your family members being sad after you’re gone, etc. Scared for my kids to not have a Dad.
But, I need to accept that that is always a possibility. How many kids lost their dads just this week? Thousands? Someone dies in the US every 12 seconds. Multiple people have died since I started writing this post just in my country alone.
Darkside,
What we see here is something we just haven't been seeing throughout your post history on NMP. There is a rational side there that knows they are just fears and they are not grounded in reality.
When you are not posting here, in a spiral, is this the other you? Can you recognise this rational side as you have done here? Doesn't this show the problem is in your mind because why would you be certain during the spiral but know it's nonsense the rest of the time? Do you believe the rational you outside of the spirals is ignoring something dangerous or do you just accept it was how you felt then and not how you feel now?
Re: Update On My Situation - Just Had EMG
I'm wondering if maybe I have thyroid cancer? Maybe that could cause my symptoms?
MS is also a possibility. I really don't know what else could be causing my symptoms. They do not seem to be anxiety related as they have not gone away following my clean EMG.
Re: Update On My Situation - Just Had EMG
Quote:
I'm wondering if maybe I have thyroid cancer? Maybe that could cause my symptoms?
MS is also a possibility. I really don't know what else could be causing my symptoms. They do not seem to be anxiety related as they have not gone away following my clean EMG.
Look back on your threads on here (think back to those on AZ also) have you learnt anything ?
Re: Update On My Situation - Just Had EMG
Honestly my symptoms today were worse than they have been in weeks. Quite severe pains in my legs, ankles, calves, etc. All over my legs basically. Mainly in my lower legs. Both legs involved. I don't understand it at all. I do think *something* is actually going on with me even though it may not be ALS. I do think I could have something serious just because my symptoms have been going on so long and are quite severe.
At this point things running through my mind are brain tumor causing nerve pains... thyroid cancer... some sort of rare muscular disease similar to ALS (?)... some sort of muscular dystrophy?
Re: Update On My Situation - Just Had EMG
This truly is just so sad to see :weep:
FMP
Re: Update On My Situation - Just Had EMG
Quote:
Originally Posted by
darkside4k
Hey Everyone,
I wanted to come back and give everyone an update on my health situation. Some of you may remember by very long thread a while back that started about lymph nodes and ended up on ALS a full year later. A brief recap, my symptoms were / are:
- Muscle pain in various muscles throughout body, but primarily in my right shin.
- A feeling of muscle fatigue where my muscles wear out more easily.
- Twitching in various places. Sometimes focused in one place for a week at a time or more.
This has been going on about 7 weeks. I went to PCP which sent me to Rheumatologist, which referred me to Neurologist for an NCV + EMG test in order to rule out any nerve problems.
Today I had the NCV + EMG and both were totally normal. The neurologist said I do not have anything like ALS and ALS is very obvious on an EMG.
I just wanted to provide that follow-up because I know I appreciate when someone has similar symptoms as me and posts an update that everything turned out fine. I don't know where I'll be going from here as I think the Rheumatologist may still want to pursue some other things - but, ALS, which was my main fear, is apparently out of the question based on the EMG results.
Quote:
Originally Posted by
darkside4k
I can already feel myself slipping back into health anxiety. Wondering why I do have shin muscle soreness in my right leg. Maybe I have some other very serious disease or even cancer. Maybe MS. Maybe some sort of cancer. Maybe some sort of debilitating muscular disease. Heck, maybe even ALS even though I’ve had a clean EMG - although I do still accept that is unlikely.
I have to admit I still have strange muscle soreness in my legs, particularly my right shin.
I don’t want to go back to this dark place.
I have to accept that death is always a possibility at any time. I think that is the root of hypochondria. Scared of dying and leaving people behind. Scared of your family members being sad after you’re gone, etc. Scared for my kids to not have a Dad.
But, I need to accept that that is always a possibility. How many kids lost their dads just this week? Thousands? Someone dies in the US every 12 seconds. Multiple people have died since I started writing this post just in my country alone.
^ Remember that guy? Wasn't he right?
Re: Update On My Situation - Just Had EMG
I go back to the Rheum Dr on Monday to discuss next steps after the clean EMG. This week my symptoms have been flared up again like they were at the beginning of all this. Pain and sore muscles in both legs. Twitching all over both legs. Waves of nerve like pain in both legs and sometimes in hands.
There is definitely something wrong with me as should be obvious to anyone but I don’t know what is going on. I hope we can get some information soon and figure it out. I would like to at least rule out MS. I also fear cancer and my muscular symptoms being paraneoplasm syndrome. I haven’t had any other symptoms that scream “cancer” though.
Could also be muscular dystrophy. I have no idea. But, something is going on.
Re: Update On My Situation - Just Had EMG
Yeah something is going on - anxiety.
MS would be ruled out by the EMG
Re: Update On My Situation - Just Had EMG
Anxiety has absolutely nothing to do with my muscles being in constant pain in my legs. Nothing. Even that suggestion is somewhat insulting that this is all somehow in my head or caused by me being nervous.
There is something wrong with me. MS, muscular dystrophy, something. Just because we don’t know what it is yet doesn’t mean it’s anxiety.
Re: Update On My Situation - Just Had EMG
Then, with all due respect, why are you posting on an anxiety forum?