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Thread: Where to start??

  1. #1
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    Where to start??

    Warning this could be a long one!!

    Hi guys

    Not been around for a while for several reason, firstly I was on holiday last week and the week before and before that I was feeling a bit more positive. But guess what it's all going wrong. There are some positive things too though.

    Well on my two weeks off, I had a day in London where I felt the best I have in a long time, no 100%, but coping well. Spent the day sightseeing and the evening (a friday too!) in a bar in Covent Garden and it was my idea. This from the girl who won't go out at night in Nottingham and especially not on a friday. Even go the train there too.

    The next day though I survived the morning but kept feeling really odd like suddenly my head would feel all tight and as though pressure built up in it and it was going to explode within seconds. Also I had derealisation for about an hour or so, but still I struggled on, scared but not wanting to give in

    I thought hey why not even try Harrods on a Sat pm. Big mistake, firstly we walked there, as there were tube works (had done loads of rides the day before though). Was a lot further than it looked on the map.Got to Knightbridge and my head started to feel weird. Got to the door of Harrods and got a shooting pain in the back of my head, felt like head would explode. Went inside and felt like I would keel over any minute, got very hot and then had urgent need to go to the loo. Of course this meant going deeper into the store. Found one eventually and stomach was upset and I felt very hot. Really wanted to run out but decided we were going to have drink if nothing else. Was feeling as though floor was unsteady by this time, but managed a drink eventhough I started hyperventilating whilst waiting for it. An embarrassed look from Dave soon put pay to that though. Poor thing, the things I put him through. Survived though even if we didn't do much browsing, felt off on the way home when the train broke down but got through it.

    So that was the first week out of the way, had also done a day at Meadowhall, where I felt very wobbly but still carried on.

    Last week we decided to go to Cornwall. We booked last minute and when we got there it was beautiful. We ate out, did some long coastal walks and visited various towns. I felt headachey a lot of the time we were there and had some spectacular feelings in the car as though my head was going burst (which came on in secs and made me hyperventilate). But I was there. However, as the week went on, I started to get more horrible feelings. It started to become that I felt horrible everytime I went into a shop, the floor would feel like it was moving and I'd get quite warm on occasion. Also there were a few times when I had the urgent need to use the bathroom. But still I plodded on. I wasn't going to ruin things. That was until Saturday.

    We spent the day wandering around Bude and I had a large strong cappuchino about I guess 2pm. Then we went for a walk, back to the apartment, had some wine, went out and had a little more wine and ate - well fish and chips on the cliffs anyway. I didn't feel like drinking much and we decided to go back home early. Dave was still hungry and as I'd agreed that we could eat what we wanted on hol, I relented into letting him buy a small pizza on the way home (honestly I think he got in all the junk food you could possibly think of in a few days).

    Whilst I was in the car waiting for him, my legs and arms started to feel kind of tingly. Not really like pins and needles and not really a pain but more of a cross between the two. I had to shake them as they were so uncomfortable. It was like a mild constant electrical shock feeling. Had it before once or twice but not as bad.

    Got home and it continued but not as bad. I had a bit of pizza and decided to go to bed about an hour later. When I stood up the tops of my legs felt really weird. Like they were about to become paralyzed but I could still walk. Very strange. (Don't worry not much more to go)

    So off to sleep I went, I woke when Dave got up to go to the bathroom

  2. #2
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    Dear Jules,

    Glad you did have some lovely times despite the continued symptoms and well done for the London trip .

    The coffee should not have affected you that many hours afterwards for anxiety but cumulatively with the wine and junk food it won't have helped either if you were already brewing a migraine .

    Reading it , it seems to me that slowly it was building up again ,with the pizza shop wait being the prime opportunity when you were alone and had a whizzing mind for the leg symptoms to emerge and scare you and get some attention and this then built up cumulating in the flashing eyes thing which led to your usual hot surge of panic that you've had previously. That must have been really scary for you. The leg symptoms you have had before - the tingling was a variation on what you've had previously. It's not MS symptoms though ..

    Anxiety loves new places and whilst you were away relaxing it was new and strange and you may have had concerns about being so far from home and doctors.

    I'm glad you're calming down a bit now and being rational. I can certainly relate to the tears over this Jules, get it all out as that in itself will calm you a bit.

    Love


    Meg

    'There can only be true courage when first there is genuine fear'

    Dr.David Livingstone

  3. #3
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    Thanks Meg, I was hoping you would say that. Do you think the flashing was a migraine then. I've never had one with flashing before, though I know people can get that, but I just thought it started in one area of vision and moved across. I haven't had a proper migraine for about four years, although the dr has said the left sided stuff I get could be due to them. The eye thing only lasted for about 45 seconds, I would guess but I woke with it. Can you get anxiety attacks, or migraines in your sleep? I woke quite calm I think, until I opened my eyes, though I guess the leg thing had concerned me. At the time I thought I was having a stroke or something.

    I definitely was concerned about being away from drs and home when I was in the middle of that attack.

    Funnily on the first day of my leave I was in Tesco when I got a pain in my head and my vision went blurry. The next thing I knew, my left hand was numb/tingly and within a short time it was in my arm and leg. It lasted for four hours and I felt like I couldn't change gears properly on the way home. Then four hours later, it went as quickly as it came on. I'd just had a coffee then too and wondered if it could be the link. Out of interest how long does caffeine stay in the body for?

    Nearly popped in to see you the other day as my friend has just put an offer in on a house in Donington and I went to see it.

    Love Jules

  4. #4
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    Hi,

    I'm no migraine specialist but the timing and process would fit. I'm glad it was only 45 secs which was quite enough ..

    Yes, you can get anxiety in your sleep .

    Do pop by - just buzz.

    Are you coming on the 26th ?

    Caffiene is a nasty one , I know its actual halflife is not as long as the symptoms seem to last but they use it in painkillers so 6 hours minimum but efects seem to be much longer .

    If I have a diet coke splurge I can feel the effects for 24 hours


    Meg

    'There can only be true courage when first there is genuine fear'

    Dr.David Livingstone

  5. #5
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    Hi Jules

    Just to let you know when I am panicky I sometimes wake up with strange flickering vision. My doctor suggested it might be an occular migraine but when I looked it up apparently you can't get them without a headache....so it's just panic then.

    Emily

    Knowledge is knowing a tomato is a fruit
    Understanding is knowing not to put it in a fruit salad

  6. #6
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    I think you did really well Jules!

    You did all those things and still managed to cope with the panic.
    You know what Mr Panic is like, he just loves new things and does everything he can to stop you from visiting them again.

    I have to admit, the symptoms do sound like that of a migraine.
    I've had so many of them and all different too.
    Sometimes I'm sick, some times I'm totally numb, sometimes only bits of me go numb. Some times I get the flashing thing, sometimes nothing but a headache. Now and again I will get everything at once. Some times I'm just depersonalized with a blind spot where I am trying to look.

    Lets hope it's nothing more serious than that.

    Love, light and Best wishes
    Liz xxx
    With hard work and determination and all the things you know.
    The world is there for you to take. There's nowhere you can't go.


    []Scatty Eccentric & 'Poet Laureate to panic and anxiety'

  7. #7
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    I think all of your symptoms sound like anxiety and panic. I can relate to the hot surges. It scares me to death. And when hubby touches me during one, I am just on fire. I have flashes of light at night when I lay down. It scares me because I always think it is a brain tumor or something. My panic and anxiety seem to go hand and hand with hypochondria. I always jump to the worst possible case scenario and then brew about it forever.

    I went on a brief vacation awhile back and was so disappointed that my anxiety didn't stay home. I think one of my big triggers for anxiety is coffee or caffeine.

    I hope things are going better for you!
    Jenelle

  8. #8
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    Meg

    Yes hoping to come along on the 26th. Though if you'd have asked me yesterday I would probably have wimped. You might need to drag me a long, if I fall into the pits of despair again, ha ha. Let me know if you want me to bring anything along or if I can do anything to help. Hey maybe I could bring a crate of Rescue Remedy!!! What's the plan anyway?

    Know what you mean about the caffeine. I had cut it out completely a long time ago but the odd latte etc has been creeping in as I love them so much. When I first had migraines I cut out coffee completely and they stopped.

    Emily. The vision thing is so horrible isn't it. I looked up (I know I shouldn't have done, it was the first thing I did when I got back from Cornwall on Sunday night) and I read that occular migraines are commonly don't have headaches and so that's what make them occular. Oh I don't know. Just so long as it's not some nasty brain disease.

    Jules

  9. #9
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    I can't remember whether you've still got any of the books or CD's I lent you ages ago ?

    I think I'm all set otherwise.

    Thanks

    Meg

  10. #10
    Join Date
    May 2004
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    Jules,
    sorry you had a bad time and well done you for getting through. I have migranes[sp] sometimes without the headache - I see flashing lights and zig zags and one arm gets pins and needles. [V].

    You just never know with this panic do you? I swear I used to be a rational human being two months ago [don't know if hubby would agree there].
    hope you are calmer now,
    take care,
    love Tess x

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