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Thread: constant swaying and derealisation

  1. #1
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    Feb 2013
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    constant swaying and derealisation

    hi ive had constant rocking and swaying for two months now. i was convinced it was to do with my inner ear bt i seen an ENT and he said it didnt seem like an inner ear disorder. my dizziness got a little better when i was put on a beta blocker. im suffering with derealisation aswell. how will i make this go away? i dont feel anymore stressed than isual im normally an anxious person and thought i dealt with it just fine. ive been trying to be more relaxed and get out more but im still swaying. id love to hear from some of you that feel like this. can anxiety cause this and how can i make it go away thankyou x

  2. #2
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    Dec 2010
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    451

    Re: constant swaying and derealisation

    Hi,

    I get a strange swaying head sensation lately, its like my head get pulled back. I too think its something to do with my inner ear or my sinuses but i'm not sure, i dont know how it can be anxiety but maybe it is

  3. #3
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    Re: constant swaying and derealisation

    are you going to see someone to see if its related to your ear?

  4. #4

    Re: constant swaying and derealisation

    Hi,

    I have had that, I was diagnosed with Larybinitis 4 yrs ago, since then I get the on and off balance thing.. Its probably your ears...

  5. #5
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    Re: constant swaying and derealisation

    did you get tests done to make sure it was labs? i seen the ent and he wasnt convinced it was ear related as i didnt have spinning vertigo and the onset of my dizziness was gradual then i got really anxious about it one day and it went downhill from there. no hearing problems. id luv to hear your story

  6. #6
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    Re: constant swaying and derealisation

    Just because the onset of your dizziness wasn't sudden does not mean it's not ear related! Sometimes I think they're too quick to label things anxiety rather than something else.

    Do you notice what's happening to you when it comes on or when it gets worse? Looking at those patterns can help you figure out what's wrong. There is usually something that sets the dizzy sensations off, although it may be hard to notice it at first.

    I had labs a couple years ago, and in the week or two before it I noticed that I was feeling a bit funny, like looking up and down in my job made me feel slightly off balance. I had my first ever panic attack because I felt so weird walking down the street one day (which apparently can be one of the first signs of labs). When it came on fully I had about 6 weeks of really bad dizziness, but never full spinning vertigo, it was more like that sensation that you get when you've been spinning around for a minute and then lie down - like a feeling of dizziness inside my head rather than full room spinning vertigo. My balance was also off really badly, I couldn't really move around very much.

    It resolved itself, but ever since then when I get sick I often tend to get the vertigo back too. Then at the end of last November, after sleeping really badly on my neck, the full blown dizziness came back again for a couple of weeks and ever since I've been struggling with being off balance and frequent bouts of vertigo throughout the day.

    At first they told me it was just labs again, and I had to wait for it to pass. Then they thought it might be my sinuses so we tried all kinds of things to get them to calm down and eventually they did, but the dizziness still hadn't resolved. So I'm waiting to see an ENT and in the mean time my doctor recommended I make an appointment with a physiotherapist who specialises in Vestibular Rehabilitation Therapy (VRT) which has been an absolute godsend!!

    The physio has explained so much of the weird stuff that's been happening to me over the last few years - he thinks the first bout of labs may have damaged my balance system and every time there is a slight weakness in my body my balance gets weak and that's why I get all wobbly again. Knowing this explains so much to me about why I've gotten dizzy over the years.

    Through the testing he did we discovered that my balance is not too bad, but it's my vision that is causing me most of the problems. We discovered that most of the triggers of vertigo for me are things like looking up and down while I'm looking from my computer to my keyboard, trying to focus on things while I'm walking or moving, even wearing different types of shoes can affect how dizzy I feel!

    Stress and anxiety make it 100 times worse, because the muscles in my neck get tight and affect my ears which can set me off balance, but being off balance also makes my neck muscles tight so it's a bit of a vicious circle lol. I actually think that I have TMJ and that when this flares up it badly (usually from stress) it affects my ear too - but I have to wait for the ENT to diagnose this properly. So you can see how anxiety would make this problem worse for someone, but it's not the source of the problem!

    So he's tailored treatment of these VRT exercises to help me retrain the signals going from my eyes to my brain and help me get back in focus and balance. It's not easy but I'm slowly seeing improvement and hope to be back in balance in a couple of weeks. I still need to see the ENT to get a proper diagnosis, but this work I'm doing with the VRT will benefit me for the rest of my life. Now that I understand it a lot more I'm less anxious about it and have a strong hope that it will resolve.

    If it helps you to figure this out for yourself here's a little list of the symptoms I get, to see if an inner ear disorder may be something that you have too: off balance (feels like I'm drunk), vertigo, blurry/fuzzy vision (usually when moving), difficulty looking up and down repeatedly, difficulty reading and using computers, swaying/rocking sensation when still, tinnitus, nausea, head/neck/shoulder aches, feeling of fullness in ears, crackling sound in ears, brain fog, feeling overwhelmed and weird in crowds or places where there is a lot of visual stimulation (like looking at the stones on the beach or looking around in a shop), major fatigue, difficulty concentrating and gets worse with concentration/stress/sickness/low blood sugar/any type of weakness.

    As for the TMJ the symptoms I get are ones like jaw & facial pain that radiates to my ear, headaches, sinus problems, teeth gringing and clenching, and sometimes a clicking jaw.

    Take a good look at your own symptoms and see if you can figure out the patterns that make your own problems worse. Then perhaps see if you can find someone in your area who does VRT or ask your doctor about it. If you really feel it's not your anxiety then it's worth investigating further to help you solve the problem.

    I've found this website really informative and helpful to understand what's happening: http://vestibular.org/

    Sorry if this was a long ramble about myself, I just thought it might help you figure out if you had a similar problem! x

  7. #7
    Join Date
    Jul 2012
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    879

    Re: constant swaying and derealisation

    Quote Originally Posted by HoneyLove View Post
    Just because the onset of your dizziness wasn't sudden does not mean it's not ear related! Sometimes I think they're too quick to label things anxiety rather than something else.

    Do you notice what's happening to you when it comes on or when it gets worse? Looking at those patterns can help you figure out what's wrong. There is usually something that sets the dizzy sensations off, although it may be hard to notice it at first.

    I had labs a couple years ago, and in the week or two before it I noticed that I was feeling a bit funny, like looking up and down in my job made me feel slightly off balance. I had my first ever panic attack because I felt so weird walking down the street one day (which apparently can be one of the first signs of labs). When it came on fully I had about 6 weeks of really bad dizziness, but never full spinning vertigo, it was more like that sensation that you get when you've been spinning around for a minute and then lie down - like a feeling of dizziness inside my head rather than full room spinning vertigo. My balance was also off really badly, I couldn't really move around very much.

    It resolved itself, but ever since then when I get sick I often tend to get the vertigo back too. Then at the end of last November, after sleeping really badly on my neck, the full blown dizziness came back again for a couple of weeks and ever since I've been struggling with being off balance and frequent bouts of vertigo throughout the day.

    At first they told me it was just labs again, and I had to wait for it to pass. Then they thought it might be my sinuses so we tried all kinds of things to get them to calm down and eventually they did, but the dizziness still hadn't resolved. So I'm waiting to see an ENT and in the mean time my doctor recommended I make an appointment with a physiotherapist who specialises in Vestibular Rehabilitation Therapy (VRT) which has been an absolute godsend!!

    The physio has explained so much of the weird stuff that's been happening to me over the last few years - he thinks the first bout of labs may have damaged my balance system and every time there is a slight weakness in my body my balance gets weak and that's why I get all wobbly again. Knowing this explains so much to me about why I've gotten dizzy over the years.

    Through the testing he did we discovered that my balance is not too bad, but it's my vision that is causing me most of the problems. We discovered that most of the triggers of vertigo for me are things like looking up and down while I'm looking from my computer to my keyboard, trying to focus on things while I'm walking or moving, even wearing different types of shoes can affect how dizzy I feel!

    Stress and anxiety make it 100 times worse, because the muscles in my neck get tight and affect my ears which can set me off balance, but being off balance also makes my neck muscles tight so it's a bit of a vicious circle lol. I actually think that I have TMJ and that when this flares up it badly (usually from stress) it affects my ear too - but I have to wait for the ENT to diagnose this properly. So you can see how anxiety would make this problem worse for someone, but it's not the source of the problem!

    So he's tailored treatment of these VRT exercises to help me retrain the signals going from my eyes to my brain and help me get back in focus and balance. It's not easy but I'm slowly seeing improvement and hope to be back in balance in a couple of weeks. I still need to see the ENT to get a proper diagnosis, but this work I'm doing with the VRT will benefit me for the rest of my life. Now that I understand it a lot more I'm less anxious about it and have a strong hope that it will resolve.

    If it helps you to figure this out for yourself here's a little list of the symptoms I get, to see if an inner ear disorder may be something that you have too: off balance (feels like I'm drunk), vertigo, blurry/fuzzy vision (usually when moving), difficulty looking up and down repeatedly, difficulty reading and using computers, swaying/rocking sensation when still, tinnitus, nausea, head/neck/shoulder aches, feeling of fullness in ears, crackling sound in ears, brain fog, feeling overwhelmed and weird in crowds or places where there is a lot of visual stimulation (like looking at the stones on the beach or looking around in a shop), major fatigue, difficulty concentrating and gets worse with concentration/stress/sickness/low blood sugar/any type of weakness.

    As for the TMJ the symptoms I get are ones like jaw & facial pain that radiates to my ear, headaches, sinus problems, teeth gringing and clenching, and sometimes a clicking jaw.

    Take a good look at your own symptoms and see if you can figure out the patterns that make your own problems worse. Then perhaps see if you can find someone in your area who does VRT or ask your doctor about it. If you really feel it's not your anxiety then it's worth investigating further to help you solve the problem.

    I've found this website really informative and helpful to understand what's happening: http://vestibular.org/

    Sorry if this was a long ramble about myself, I just thought it might help you figure out if you had a similar problem! x
    Amazing post. Very informative. Thank you so much! I have bookmarked for reference as I suffer a lot of these symptoms.

    I have never heard of VRT but I will be looking it up.

    I wish you every happiness

    Cat x

  8. #8
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    Feb 2013
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    Re: constant swaying and derealisation

    So glad you found it helpful Cat! I had never heard of VRT either until my doctor suggested it, and I felt dubious about it but I'm just so glad I went. Even the fact that I now understand whats happening to me brings down my anxiety about it and I can handle it better, rather than collapsing under the stress of it as I did in the past.

    It's amazing what a little understanding can do for our peace of mind

    The best part is that learning to deal with it has forced me to learn how to handle my anxiety and stress levels, and as a result I'm becoming more relaxed and accepting of things. My life is changing

    I hope that this helps you figure your own problems out, and if you want to ask any questions just send a PM!

  9. #9
    Join Date
    Feb 2013
    Posts
    104

    Re: constant swaying and derealisation

    yes he waa very quick in telling me it wasnt ear related. i do have a clicking jaw no pain or anything. you have alot more symptoms than me. i would have a crackle in my ear somes a little facial pressure, swaying feeling when still a little blurred vision when writing bt i have loads of energy was very weak when it all started and felt drunk bt i do feel alot better jus swaying at night time when sitting ive been keeping busy so i dont think about it. i just dont no if its anxiety that caused it. things have been tough looking after three children and nt getting time to myself so im working on that to see if it makes a difference. im on beta blockers nw and since i started them the dropping feeling i had dissappeared. i see my dr on monday and i dnt know what i should say x

  10. #10

    Re: constant swaying and derealisation

    Hi,

    I am reading your post about your constant off swaying feeling and i am experiencing the exact same thing for now 2 months. The same as you, i was convinced it was an ear problem but the ent said nothing was wrong. I have also felt so worried about this so anxiety has made it worse and i have been told it is this anxiety, but i cant understand that since it came on so suddenly (when i wasnt anxious) and continues to persist even if i feel normal. please tell me if you got any answers from this or help as im extremely so upset!!!! thank you

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