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Thread: Started Venlafaxine and reaching out for hope - positive experiences required

  1. #1

    Started Venlafaxine and reaching out for hope - positive experiences required

    Hey there,

    I am new to this forum and in desperate need some support/hope/encouragement/advice.

    Where do I start? A few years ago (I am now 33) I was diagnosed with a long term, physical health condition that deeply impacts all areas of my life (long story for a whole different forum) Before having this physical condition I was aware that I have a tendency towards depression and anxiety but it was more or less at a level I could cope with and through attending regular psychotherapy sessions over a long period of time I slowly learned to embrace my weirdness and accept that I was ‘different’ from most folk. However, nothing could prepare me for what was to come - getting physically ill, which has ultimately led to higher anxiety, panic attacks and major depression.

    Rewind to 3ish years ago - trying to cope with my chronic physical condition along with parenting my then 2 year old son began to take its toll and it wasn’t long before I was on a road to no where - fast. Dealing with constant, chronic pain put my fight ot flight mode on red alert and things got ugly. I had (and still do have) an amazingly supportive partner but I knew I needed some more help before things got any worse so I went to my GP. He prescribed Sertraline. Within days of taking it I started to experience severe panic attacks. A door, that led to a terrifying place had been opened in my mind and I knew then that it would probably never close. Experiencing this level of panic is a life changer for sure. I stopped the Sertraline. My GP gave me Diazepam to help me until the meds cleared from my system. Things calmed but I still needed help. At this point, after years of regular therapy I stopped going to my counselling sessions as I felt in my gut that they were no longer helping me, if anything it was starting to make me feel worse. I needed something else to drag me out of the hole. Round 2 - I was then prescribed Fluoxetine. Same thing. Terrifying panic attacks. There was no way I could carry on taking these meds, especially with a little one to take care of. Again with the help of Diazepam I came off the Fluouexetine. Round 3 - Then I tried Amitriptyline, same thing again. I felt helpless. In the meantime I was also still trying to tackle my physical condition - attending endless appointments, trying various treatments, see specialists, alternative therapy etc, all to no avail and my ability to engage with people and life in general slowly slipped away, leading to more isolation and fear and lonliness.

    I was terrified of trying another medication as I couldn’t risk the panic attacks happening again but now my mind had tasted that level of terror I felt like even without the medication a panic attack was never far away and the fear of having one followed me everywhere. But I struggled on and did my best to get through each day. But, of course my depression and anxiety just got worse and worse to the point that I got chronic insomnia, was constantly shaking, had loose bowels, no appetite - you get the picture. I knew I couldn’t carry on like this so again I went back to my GP. Round 4 - He prescribed me Mirtazapine and again some Diazepam. The Mirtazapine made me real tired at first but that was a blessing to me. Over the space of a few weeks I slowly increased my dose to 45mg. That was last August and I am still taking this medication because it has really helped me with my sleep but unfortunately it has done absolutely nothing for my depression and anxiety.

    Fast forward a little bit. Things got so bad a couple of months ago that I started to have frequent panic attacks again and I became too scared to leave the house. I was feeling more and more removed form life and the people I love as the depression monster swallowed me up and spat me out over and over again. I asked my GP for more help. He wanted me to be seen by a psychiatrist as soon as possible as it was clear I was heading for the danger zone. Round 5 - The psychiatrist recommended I start taking Venlafaxine (I have been prescribed the Venlilac XL slow release tablets). I discussed all my concerns with the psyche about the side effects I have previously experienced in the past. He was really understanding and told me that to give the meds the best possible chance of helping I had to keep my life as simple as possible whist I get used to the Venlalic and use Diazepam if I needed to.

    So about 7 weeks ago at the start of my treatment I made a plan. I decided I needed to remove myself from all the potential triggers that could lead to a panic attack - which basically has meant me staying at home, in bed, my partner taking on all responsibilities to do with looking after house, child care, not having any visitors and not worrying about taking Diazepam if I need it - for now atleast. I started at 37.5mg Venlalic and have slowly increased to 225mg as that is the dose the psyche wanted me to reach. I have been on 225mg for a week now. Though I have felt very anxious I haven’t had a full blown panic attack which is good news and I think it is partly because I am keeping things as safe as possible. Apart from some headaches, constipation, night sweats, muscle tension, clenched jaw, possible heightend anxiety and irritability I haven’t felt that same uncontrollable crazyness that I did on the other meds. I was feeling really anxious any way so it is hard to separate my original symptoms from the side effects, something I am sure most of you may be familiar with. I hope the other side effects will wear off over time but compared to the other feelings I endure they feel manageable.

    But I still feel incredibly depressed and anxious. I take no pleasure in anything, even the little things that used to make me smile are going, going, gone. I feel dead, as though all my reserves to keep going have now run completely dry and it doesn’t feel like anything will ever change. I am so worried that I will never want to leave the house again because life outside these walls is just too over whelming for me. I don’t know how to relate to people. I avoid everything. Fun and happiness feel about as real as a unicorn - mythical. I have regular, intrusive suicidal thoughts and though I would never act on them there very presence tells me how bad things have become.

    I do want to get better. Please can someone, anyone give me some hope in terms of their positive experiences with Venlafaxine/effexor? Is there still a chance this medication could help me? I am not expecting miracles, I just want to be able to cope with life and feel like it is worth living...and I need to get in better psychological shape for my gorgeous little boy (he is now 5)

    I now know that my physical condition isn’t going to get better but if I felt mentally stronger and alive I might be able to take some steps to come to terms with my physical pain and start to build a meaningful life. Not the life I wanted or ever thought I’d have but a life non the less. As things currently stand that doesn’t feel at all possible. I would really appreciate some encouraging words.

    I am aware of the withdrawal horror stories surrounding the issue of coming off Venlafaxine but at the moment I don’t think it is in my best interest to think about this so I will try to cross that bridge if/when I come to it.

    Thank you for reading all of this, I know its been a long one and I apologise for the ammount of info I have given. I just needed/wanted to get it on a page and to reach out to someone. The thought that just one person might read this is in itself some small comfort to me.

    And to anyone out there reading this who is struggling with ‘the darkness’ I totally understand what you are going through. My thoughts are with you and I wish you the very best recovery in which ever shape or form it may arrive.

    Best wishes, over and out, Gem

  2. #2
    Join Date
    Nov 2011
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    180

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Gem, I do feel for you.

    I understand from experience everything that you have written. I want you to know that venlafaxine has helped me to deal with my anxiety and depression.

    I too was on mirtazapine,and it was wonderful for sleep,and to start with helped with the anxiety. However,as the weeks went on, my depression got so much worse, to the point I really felt like giving up. I had some very bad thoughts,and knew I needed help fast.

    My doctor swapped me to venlafaxine, and the dark clouds have lifted. I am not fully better, but I feel human again. My anxiety is improved, and I am back working ( reduced hours).

    I wanted to respond because I don't want you to give up hope. All meds react differently to people and it really is trial and error. Three months ago I thought my life was over, but now I can see the future.

    I hope you feel better soon. xxx

  3. #3
    Join Date
    Mar 2014
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    1,000

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Hi, Gem!
    As has probably been explained to you, the dual action of venlaxafine means that it allows for a single-drug treatment increase in serotonin and norepinephrine, (along with a lesser increase in dopamine). This means it can be titrated up to take advantage of these increases, without causing "new" side effects as may be the case if adding a new drug. So, these are positives! You are also already on mirtazapine, which is the other half of a combination that has been found to be very effective in cases of severe depression. Another positive!

    Personally I am taking only venlaxafine at this point as an antidepressant, and have only been on it for 11 weeks, but like Loreen have had positive effects myself. This is the thread I found when I first went online after arriving home with my prescription. It is an accurate account of the ups and down that may happen when one has acute anxiety and is beginning treatment with venlaxafine, through blips and med adjustments, bearing in mind that she was transitioning from another medication to ven at first. For me it was very reassuring and positive!
    http://nomorepanic.co.uk/showthread....afine+positive

    I miss Pinkdove dearly, but am thrilled that she has taken up her life again, and happily pops on now and again to say hi or lend an ear.

    Finally, you have company on your cutting-edge treatment journey! Thrilled for you and aprilmoon as I think she was beginning to feel like she was perhaps the only person in the UK on your combo, lol!

    Good luck and best wishes
    Marie
    Last edited by SADnomore; 25-05-14 at 02:45.

  4. #4
    Join Date
    Apr 2014
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    216

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Gem, I had a very positive experience with Effexor ER from fall of 2005 to the fall of 2006. I was on it for panic/anx and it gave me my life back. I felt completely normal while on it. I tapered off after one year with no ill effects and had three more panic-free and anxiety-free years. In 2010, my anxiety started creeping back in. I have dealt with it without meds for 4 years and have recently gone back on meds. This time, my doc put me on prozac and I am doing very well at 9 weeks. I would not hesitate to use Effexor, again, but doc wanted to try prozac this time. I wish you well on your road to recovery. Blessings!

  5. #5

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Hello Loreen, Marie and Deepthinker!

    Thank you all so much! All of your replies have helped me so much! After submitting my post I realised it was probably far too long so thank you for reading it and sending me some much needed words of encouragement, support and knowledge and for sharing your positive experiences. I don't feel quite so alone now. I have never been part of a forum before and it blows my mind that I can connect and share this rocky road with people who really understand.

    Loreen, I am so pleased that the Venlafaxine is keeping those dark clouds away and I hope that things continue to get better and better for you.

    Marie, same goes for you - very good news that the Ven is helping and thanks for your recommendation of the thread. I will check it out and I am real pleased to have found Aprilmoon too! A wave of relief came over me when we got in touch with each other.

    Deepthinker, brilliant that the Prozac is working - long may it continue.

    It would be great to hear how you are all getting on at some point if you ever feel like posting an update.

    My thoughts are with you all, Gem x

  6. #6
    Join Date
    Nov 2011
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    180

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Today has been a good day.

    I am on week 8 of ven ( I think ) and today I managed a whole shift at work. This may not seem much, but only a few months ago I couldn't leave my front door without diazapam, so to me it seems like a mountain has been climbed !!

    How are you doing Gem ? Hope things are continuing to improve for you.

    I think it is important to let each other know when we have a good day - sometimes knowing that things can get better is so encouraging.

    Take care xxxx

  7. #7

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Hey Loreen,

    Thanks for posting the positive vibes! Really pleased to hear that you managed so well at work today! You have climbed a mountain. The toughest mountain in the whole world! So, so good

    I have just posted a reply to your other post from yesterday under 'Starting Effexor - useful tips' and then I saw this post from you so my day is on that page.

    Take care and keep posting, love Gem x

  8. #8
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    Nov 2011
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    180

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Gem, sorry you are having a bad day.

    Just read your other post. I think a cat would be great for you. Ours is like one of the family, and very good company , She listens to me without answering back,and purrs when i need her to ! Cats are very good at understanding your mood,and mine often comes to my rescue when I need some TLC.

    Hope your evening is better xxx

  9. #9
    Join Date
    Nov 2011
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    180

    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    The sun is shining,the birds are singing, and today is my birthday.

    Today is also the day when I have never felt so alone. Like being back at school,I feel like the outsider looking in. Not part of the 'in' crowd.

    Gem,thank you for answering,even when you are feeling so ill. I hope you feel better very soon xxxx

    Today is the day I leave.

  10. #10
    Join Date
    Mar 2014
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    Re: Started Venlafaxine and reaching out for hope - positive experiences required

    Loreen, listen, you are on the inside here, with us. Do you need help again? Pm me, please.
    Marie

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