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Thread: Ruining my life

  1. #1
    Join Date
    Sep 2014
    Posts
    72

    Ruining my life

    Hi all.

    This my first post on here after lurking around the forums for over 12 months.

    My HA started out of no where, I was a bit stressed at work but nothing concerning my health.

    i had a sinus infection that would not clear up and was referred to ENT. At the appointment, I was told I had a slight hearing loss in my left ear and that could suggest I had an acoustic neuroma. I panicked and paid privately for a MRI scan of my brain and inner ears which came back normal.

    Since then, i think my HA kicked in. I had my testicles checked for lumps which my GP said were epidermal cysts, I developed a 3 inch white ulcer in my mouth which my dentist thought looked suspicious and sent me to A&E. I was told to wait 2 weeks to see if it would go and it did. I continued to suffer and was back and forth to my GP and out of ours doctors with various symptoms including lumps i could feel in my ear cartilage - which were normal anatomy, a problem with my throat which was normal anatomy and various other symptoms. About 3 weeks ago, I had a suspicious mole removed privately which came back normal. My dentist diagnosed I had torus mandibularis in my mouth and said they were quite common and nothing to worry about. I then done the dreaded Google search and found that if they grow rapidly, they can be cancerous. For someone suffering with HA you can imagine the obsessive checking I was doing. I spent most days going to my dentist who kept on reassuring me they were fine. A week ago I had, had enough and my family were concerned about my mental health so took me to the local hospital. The mental health team were busy and couldn't assess me until the following day. I was still concerned about my Torus in my mouth and a specialist checked them and said its fine and nothing to worry about. I felt relieved for a few hours but then started thinking she said its not mouth cancer but it could be bone cancer. Since then i have been to my GP and out of hours convinced the bones in my hands were growing and i would check them for symmetry. Each bone has been diagnosed as just normal anatomy. I thought the Torus had changed and become moveable - i could feel it move with my tongue. I went back to my dentist and he said it hasn't and is fixed to the bone and nothing to worry about - but I can feel it move which he just said "i'm serious it is nothing to worry about" and wished me good luck with getting my HA under control. This past weekend, i noticed my fingernails had vertical ridges in them and Googled again and that it could be some sort of vitamin deficiency or more commonly contributed to stress.

    I have had enough of this HA - its ruining my life and at times I find it upsetting to look t my children, thinking i wont be here for them and feel guilty.

    Its effecting my work - i cant concentrate because im constantly focusing on my health and my latest symptom/worry.

    I have had an assessment by the local MH team and been referred for CBT but there is a 10 months waiting list.

    I'm currently taking Amytrytyline and mertazapine - which don't seem to be doing much. At first they would help me sleep but now I'm lucky to catch a few hours before I wake up in a state of fear/panic regarding my health.

    Getting to the point, has anybody got any ideas, help that could get me through this, im feeling rather low at the moment as i'm trying to reduce Diazapam from 7.5mg per day to 5mg and think it is sending my HA through the foof

    Thanks in advance and another thanks to the people who contribute to making this forum a life saver at times

  2. #2
    Join Date
    Aug 2007
    Posts
    466

    Re: Ruining my life

    Hi J4,

    What you have just described I could describe just with different illnesses. The obsessional element of HA is exhausting. People will support you on this forum as they have been (to varying degrees) where you are now. My HA was pretty severe and long lasting. I wished I had been in a place to CALM DOWN and listen to advice a long time ago. I can see clearly now (most of the time) but it hasn't always been like that. I have had the. 0.05 % of my chosen illnesses! I have searched until even google had enough of me, I have mentally exhausted numerous health professionals I have even phoned a private breast consultant at 6am at home on a Sunday!!

    Welcome Lucia

  3. #3
    Join Date
    Sep 2014
    Posts
    72

    Re: Ruining my life

    Thanks for the welcome

    Every ache or pain i have I am convinced its something terminal and the fear is horrible. I am fed up of sitting in waiting rooms dreading my appointment and being told bad news. It's a horrible illness that nobody should have to go through. I am considering paying privately for some CBT as i can't wait 10 months on the NHS. How effect is CBT as i can't seem to get my head around how it would work. I had a bit of counseling which didn't do much and a hypnotherapy session which was a complete waste of money.

    I so want to be free of this its an absolute living hell

  4. #4
    Join Date
    Aug 2014
    Posts
    637

    Re: Ruining my life

    I think all of us can completely identify with so much of this. Have you dled the free CBT workbook from the forums here? I'm having to wait too (I feel very lucky that the MH team were able to see me a couple of weeks ago as my family did the same thing) for actual CBT but have been doing that in the interim. CBT is all about changing obsessive behaviours and such and helping us change the way we cope. Let's beat this together

  5. #5
    Join Date
    Sep 2014
    Posts
    72

    Re: Ruining my life

    I have tried the online CBT but find it difficult to concentrate at times - I'm hoping a more personal one on one approach will help

  6. #6
    Join Date
    Aug 2007
    Posts
    466

    Re: Ruining my life

    If you can pay for CBT privately do so.
    My first bit of advice would be to see tonight as a starting point to get better with your HA that you fully recognise that you have. Trawl through the success stories and look at the common denominators such as CBT, exercise, lifestyle choices, distractions, stopping googling, stopping reassurance seeking etc. - all the things that as you are probably aware of and think are not the answer you are looking for, that is the magic answer!! Read CPE's post 'Get a plan', read a recent success story post by Jabz. Read them twice because the answers are there (there are many more but these stick in my mind). Ask questions !!!
    Support is on this forum but you also have to work at it.

  7. #7
    Join Date
    Sep 2014
    Posts
    72

    Re: Ruining my life

    Thanks for the advice - I have read most of the success stories. Ended up at out of hours last night cos i could feel a lump on the right of my xiphoid process - the doctor there assured me it was nothing to worry about and just normal anatomy - but still find this hard to believe - god i hate this HA.

    I went for a walk this morning and intend on doing this 3 times a day to try and release some endorphins.

    Feel pretty anxious today and didn't sleep well last night - had to cancel work today.

    My stomach keeps on growling at me too - probably anxiety - but my mind is telling me otherwise.

    Got the 2nd part of my MH assessment today at 12.00pm and hopefully they have received a letter from my GP trying to bring my CBT forward.

    Tempted to get this lump on my xiphoid process checked again but trying to stop seeking reassurances.

    Hope everyone is having a decent day

  8. #8
    Join Date
    Aug 2007
    Posts
    466

    Re: Ruining my life

    HI J4,
    How did your day go?

    Lucia

  9. #9
    Join Date
    Sep 2014
    Posts
    72

    Re: Ruining my life

    Hi Lucia

    Didn't sleep a wink so had the day off work.

    Been for a couple of walks - exercise ;-)

    Been pretty anxious most of the day - probably lack of sleep hasn't helped

    How's your day been ?

    ---------- Post added at 19:03 ---------- Previous post was at 19:02 ----------

    Seen MH woman and she has suggested trying olanzapine any ideas ?

    ---------- Post added at 19:06 ---------- Previous post was at 19:03 ----------

    Seen MH lady and she has suggested trying Olanzapine ????

    Any experience of this med ? I'm currently taking Amytrytlne and mertazapone

  10. #10
    Join Date
    Aug 2007
    Posts
    466

    Re: Ruining my life

    Sorry J4 my knowledge of medication is limited. I am on sertraline. Did she have any other suggestions in addition to a change of meds.
    I used to walk and ruminate. Now I walk and practice mindfulness. There is so much power in engaging your mind into something other than health. When I was looking for my golden answer to curing HA I used to think what a load of hippy b@ll@x - soo wrong. They always say half the battle is realising that you have a mental issue and not a health issue my battle was not this it was realising that there was no magic fix.
    Are you going to work tomorrow?

    Lucia x

    ---------- Post added at 19:39 ---------- Previous post was at 19:36 ----------

    Ooh my day has been good. Nothing exciting but my mind has been calm and at the minute that's good enough for me !

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