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Thread: inflammatory breast cancer

  1. #1
    Join Date
    Feb 2014
    Posts
    85

    inflammatory breast cancer

    Hey, my anxiety is through the roof at the moment. I found a dimple on my breast 2 weeks ago and was referred to the breast hospital. The scanned the bottom half of my breast and no lump was found.
    However since then I've had pink blotches on my breast that have been there for a week and now I've noticed my nipple is a bit inverted looking and my breast appears quite a bit bigger that the other. I am so scared. Ibc is so rare I don't think any doctor would take me seriously. Now I've just read up on it and it says ibc isn't detected on a scan. I don't know what to do, I'm only 24 x

  2. #2

    Re: inflammatory breast cancer

    Hi,

    In in the exact same position as you - completist terrified that I have IBC. I've sought advice from a BC forum and the ladies have been very helpful - it is very rare, and BC is rare in people our age anyway... Not impossible but rare...

    The scan can show thickening of the skin, a classic sign of IBC, which can promote the doctors to do further testing. The ladies in the forum say that IBC progresses really quickly so after 2 weeks you'd know if it was getting worse and go back to the doctor?

    Basically just think that the skin on your breast is like skin everywhere else - you can get spots, marks, patches etc and the majority aren't anything sinister... I know it is easy to say that and much harder to apply that thought process - I certainly can't :/

    Mine is basically this: In February I got out of the shower and saw a red mark (a little but scaly) but mostly flat just near my nipple, went to see a nurse, gave me an anti fungal cream. Went back to see doctor and he gave me a stronger anti fungal. After this, I saw 2 more doctors, neither of whom saw any cause for concern but the last one saw how anxious I was so referred me to breast clinic anyway. Got the appointment through for breast clinic and went there, the creams had taken the redness away a bit, and the specialist at the breast clinic did not even do any scans... He said categorically it was not anything to be alarmed about.
    That was 10 months ago and the mark has lost its redness and now is pigmented... Nobody is taking me seriously :/ went to the doctors on Wednesday and he couldn't even see the area in talking about and then said the main issue was my anxiety... The patch is super obvious to me but nobody else seems to see anything major...

  3. #3
    Join Date
    Jul 2015
    Posts
    1,143

    Re: inflammatory breast cancer

    Quote Originally Posted by lils23 View Post
    Hi,

    In in the exact same position as you - completist terrified that I have IBC. I've sought advice from a BC forum and the ladies have been very helpful - it is very rare, and BC is rare in people our age anyway... Not impossible but rare...

    The scan can show thickening of the skin, a classic sign of IBC, which can promote the doctors to do further testing. The ladies in the forum say that IBC progresses really quickly so after 2 weeks you'd know if it was getting worse and go back to the doctor?

    Basically just think that the skin on your breast is like skin everywhere else - you can get spots, marks, patches etc and the majority aren't anything sinister... I know it is easy to say that and much harder to apply that thought process - I certainly can't :/

    Mine is basically this: In February I got out of the shower and saw a red mark (a little but scaly) but mostly flat just near my nipple, went to see a nurse, gave me an anti fungal cream. Went back to see doctor and he gave me a stronger anti fungal. After this, I saw 2 more doctors, neither of whom saw any cause for concern but the last one saw how anxious I was so referred me to breast clinic anyway. Got the appointment through for breast clinic and went there, the creams had taken the redness away a bit, and the specialist at the breast clinic did not even do any scans... He said categorically it was not anything to be alarmed about.
    That was 10 months ago and the mark has lost its redness and now is pigmented... Nobody is taking me seriously :/ went to the doctors on Wednesday and he couldn't even see the area in talking about and then said the main issue was my anxiety... The patch is super obvious to me but nobody else seems to see anything major...
    If I were you, I would take some photos of it now, and keep an eye on it to see if it changes. If it is sinister, it will. x

  4. #4

    Re: inflammatory breast cancer

    Hi I have the exact same thing. Please please let me know how you are it would mean so much. Iím soo soo worried had it over a year.

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