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Thread: Fear of Motor neurone/Als can anyone help please

  1. #1
    Join Date
    Feb 2009
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    64

    Fear of Motor neurone/Als can anyone help please

    I have this constant fear of motor neurone disease//als i have twitching in my right arm and legs. Aching right leg. Feel week on riight side too. Everything feels heavy in my arm, and i am so worried about it, have had 2 ecg both clear. Blood test clear even a strengh test which was fine. But i cant shake it, even writing made my two fingers ache. Has anyone got any advice on this as its really took over

  2. #2
    Join Date
    Dec 2013
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    Re: Fear of Motor neurone/Als can anyone help please

    I use to have this same fear when I began having twitching muscles back over the summer. I went to see a neuro. and he did a full exam and told me it was my anxiety. Weakness comes before twitching with that disease. I'm not talking a feeling of weakness but actual weakness. Like not being able to lift your coffee cup etc. Its failing not feeling.

  3. #3
    Join Date
    Aug 2013
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    Re: Fear of Motor neurone/Als can anyone help please

    What Leslie says is right. You don't have this and you really don't want to go down this rabbit hole. I've seen too many literally lose their lives to this fear... and I mean lose their lives above ground... ALS Zombies so to speak, living for years believing they have this awful disease when in fact they don't.

    It's truly in your best interest to get professional help with your anxiety before it takes what's left of your life....

    Positive thoughts
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

  4. #4
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    Feb 2009
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    64

    Re: Fear of Motor neurone/Als can anyone help please

    Quote Originally Posted by Leslie735 View Post
    I use to have this same fear when I began having twitching muscles back over the summer. I went to see a neuro. and he did a full exam and told me it was my anxiety. Weakness comes before twitching with that disease. I'm not talking a feeling of weakness but actual weakness. Like not being able to lift your coffee cup etc. Its failing not feeling.
    Thanks for tne great reply. I am trying to calm myself .quite difficult though

    ---------- Post added at 10:49 ---------- Previous post was at 10:48 ----------

    Quote Originally Posted by Fishmanpa View Post
    What Leslie says is right. You don't have this and you really don't want to go down this rabbit hole. I've seen too many literally lose their lives to this fear... and I mean lose their lives above ground... ALS Zombies so to speak, living for years believing they have this awful disease when in fact they don't.

    It's truly in your best interest to get professional help with your anxiety before it takes what's left of your life....

    Positive thoughts
    I know you are both right, it just wont go into my head. Though i am trying

  5. #5
    Join Date
    Dec 2013
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    1,417

    Re: Fear of Motor neurone/Als can anyone help please

    Believe me I know how hard it is. I'm having my own struggling right now too but with something else.

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