Anyone Else Feel Their Heartbeat Rocking Their Body

[Mercime]

No, this can't happen. 40% blockages in cardiac arteries don't disappear in under a week, cancers don't lie there while the sufferer refuses treatment, then gently and slowly departs this mortal coil. We may well be individuals, but for those of us who have been there, we know the routine.

Cancer is found, your feet don't touch the ground. Scans are done, the tumour is sized, the plan of action is put together very quickly, treatment is commenced. We know the procedures, we know the treatment regimes. We know what happens when there is spread into the lymph nodes, in the case of advanced cancer. The above posts are not what happens, and I genuinely cannot understand why anyone would say that they are, unless they are looking to elicit sympathy. I have empathy, but not with those who deliberately deceive others. It is wrong and unfair.

I would suggest that Michael should focus on his health anxiety, as it is obviously extreme. It would be time well spent to enlist specialist help in that area.

[mnaha]

It is classified as an unknown primary. I had an appointment yesterday with a surgeon /ent he did a scope and looked and looked and looked although they have done head and neck MRI's ct scans and nuclear medicine scans of the neck head and throat they cannot find a trace of anything. My oncologist never gave me a diagnosis other than that I had three choices already mentioned before in my last post ..It is SCC and they have looked and looked and looked for primary and have had internal scopes and everything you can think of and cannot find a source period. The surgeon recommend surgery but with no guarantee the doctor recommended chemo and radiation with no guarantee or radiation no guarantee but did tell me for the moment it was contained. I don't know why ,maybe you could email him yourself and ask. He is one of the most foremost authorities on cancer in Tucson. His name is Guillermo Gonzalez-Osete, MD.

He sent me right to the ENT and the ent did all kinds of exams and scopes and scans etc and found nothing. They said the nodules in the lungs were benign and they were nothing at all other than things that form in people's lungs from being exposed to caves and underground places . Nothing that would interfere or cause any kind of issue with breathing or the lungs.. I forgot what he called it but he gave me the PET report and the MRI report and other records .Perhaps I can look it up for you . They found nothing absolutely nothing wrong with my lungs.

They also concentrated on everything artery and cardiac related and there was nothing absolutely nothing. I think I need to switch cardiologist because I have had two doctors already tell me they had looked at the same results as the cardiologist and seen nothing..so that is in the works.. Anyway for any other classification you can write my oncologist so maybe he can give you an detailed description of diagnosis but as far as I am concerned .. that is all I know other than I am suppose to see him again in five days..

As I said I have pretty much made up my mind ... no surgery ,no chemo or radation.. perhaps radation but I am no way going to get my throat cut open and if nothing else spread what is there already if there is anything there. Call me stupid...its ok but I would rather live what is left of my life without worrying what will happen tomorrow.

For all we know we could all be vaporized by a meteor tonight or tomorrow and then what would any of it matter.. Anyway thanks for the remarks as to glad I was feeling better but if you have any other questions write to my doctor and I can also give you the name of my other attending doctors including ER doctors and also PCP's.. thanks

[MyNameIsTerry]

Mercime,

I don't think any of us can say we know how it all works, we are not medical professionals specialising in these areas. Even then, delays in treatment do take place. Whilst I can't comment on this specific case, I can on a case you are not aware of and it did take longer than I expected. I was surprised to read that delays of weeks are not necessarily as important as people think, I would have thought it the other way.

So, I'm simply not going to believe any member, an anonymous person, claiming they know how it all works. People's experiences do differ. I know people who have also had very fast treatment, but because I've seen one that took longer I'm not going to disregard their experience and remain open minded to delays.

I'm just saying that about the time issue though.

[mnaha]

No, this can't happen. 40% blockages in cardiac arteries don't disappear in under a week, cancers don't lie there while the sufferer refuses treatment, then gently and slowly departs this mortal coil. We may well be individuals, but for those of us who have been there, we know the routine.

Cancer is found, your feet don't touch the ground. Scans are done, the tumour is sized, the plan of action is put together very quickly, treatment is commenced. We know the procedures, we know the treatment regimes. We know what happens when there is spread into the lymph nodes, in the case of advanced cancer. The above posts are not what happens, and I genuinely cannot understand why anyone would say that they are, unless they are looking to elicit sympathy. I have empathy, but not with those who deliberately deceive others. It is wrong and unfair.

I would suggest that Michael should focus on his health anxiety, as it is obviously extreme. It would be time well spent to enlist specialist help in that area.

Yes I have health anxiety ,,,,,,DUH.. but the fact I am reporting only what has been told me and what is going on. I can supply a full list of my doctors the hospitals and even some of the technicians and all the doctors.. As far as I am concerned I am going with the program for each and every ailment that I have at the rate recommended and have no idea why a cardiologist would tell me one thing and two other doctors something else. Geez.. How many times have I read the same thing happening in the UK.. it happens all the time..different doctors different thoughts and different diagnosis. I am just glad I didn't let the two other idiot doctors that told me I had renal call carcinoma take my kidney and adrenal gland five years ago.. People have to think before they give permission for stupid decisions. Also I did not know you all were foremost authorities on medical things and diagnosis here. I am sure glad we have so many specialist and doctors here that are qualified to say what is what.. sure builds a lot of confidence in their false hope that everything that happens is anxiety.

[Mercime]

With all the major misdiagnoses you have had, you could make a fortune. Litigation sounds the way to go.
By the way, I don't claim to be a foremost authority on anything. But I know enough about it to know that what you have said doesn't add up. That's fact.

[Fishmanpa]

It is classified as an unknown primary.

Just the fact that you cannot provide an official diagnostic classification affirms my thoughts. And now, ironically (highly ironic), you have the same diagnosis that I had? Not only Head and Neck SCC but an unknown primary which affects only 1-2% of ALL SCC Head and Neck cancers? I know others personally who I met while in treatment and more on the Head and Neck cancer forum I was part of that all went through the same thing. So yeah, I know. And I also know, no ONC worth his salt would let you walk out without laying it out there and based on what you say you've been diagnosed with, you would have been told it's a death sentence left untreated.

Cancer is an uncontrolled growth of abnormal cells. It doesn't come and go nor does it stop once it starts. I watched as the nodes in my neck grew from a grape to looking like I had the mumps in a few months. By the time I went in for surgery, I was feeling unwell and in constant discomfort from the tumors pressing on structures on my neck. Not only that, if the cancer starts traveling the lymph highway, SCC will take hold elsewhere in your body. If you had a biopsy and were diagnosed with SCC, then you sure as hell better treat it!

But you're right Michael. You'll live a long and healthy life and the miraculous reversal of a 40% blockage in your heart bodes well for many, many more years.

Positive thoughts

[MyNameIsTerry]

Talk to your doctors, Michael, they are the ONLY ones who understand fully in terms of diagnosis, treatment, etc and follow their recommendations. Non treatment of cancer is a one way ticket and your family would prefer you were around for years to come.

[mnaha]

With all the major misdiagnoses you have had, you could make a fortune. Litigation sounds the way to go.
By the way, I don't claim to be a foremost authority on anything. But I know enough about it to know that what you have said doesn't add up. That's fact.

I really could care less about what you think adds up or doesn't . This is an A and B conversation C your way out.! Jack

---------- Post added at 00:16 ---------- Previous post was at 00:12 ----------

Just the fact that you cannot provide an official diagnostic classification affirms my thoughts. And now, ironically (highly ironic), you have the same diagnosis that I had? Not only Head and Neck SCC but an unknown primary which affects only 1-2% of ALL SCC Head and Neck cancers? I know others personally who I met while in treatment and more on the Head and Neck cancer forum I was part of that all went through the same thing. So yeah, I know. And I also know, no ONC worth his salt would let you walk out without laying it out there and based on what you say you've been diagnosed with, you would have been told it's a death sentence left untreated.

Cancer is an uncontrolled growth of abnormal cells. It doesn't come and go nor does it stop once it starts. I watched as the nodes in my neck grew from a grape to looking like I had the mumps in a few months. By the time I went in for surgery, I was feeling unwell and in constant discomfort from the tumors pressing on structures on my neck. Not only that, if the cancer starts traveling the lymph highway, SCC will take hold elsewhere in your body. If you had a biopsy and were diagnosed with SCC, then you sure as hell better treat it!

But you're right Michael. You'll live a long and healthy life and the miraculous reversal of a 40% blockage in your heart bodes well for many, many more years.

Positive thoughts

Maybe radiation maybe not. I will decide and if meant to die so be it. I am tired of doctors ,hospitals and anxiety. I am sick of all of it and so ready to say goodbye to it. I am sorry you were so ill and maybe I shall follow the same route but to the grave but not trembling in a closet or corner being terrified and stupid enough to keep coming on here and getting brow beat every time I report anything that I know. You keep your advisory status here and in about a year if I am still around I will come back and report ...or not..

---------- Post added at 00:23 ---------- Previous post was at 00:16 ----------

Talk to your doctors, Michael, they are the ONLY ones who understand fully in terms of diagnosis, treatment, etc and follow their recommendations. Non treatment of cancer is a one way ticket and your family would prefer you were around for years to come.

I know Terry or so they say but think they would be better off if I wasn't around. I am a pain in the butt and well, my time on this earth has been far better to me than I planned or could have even hoped for. Yeah I might be missed a little but not that much and as far as I am concerned 61 years of anxiety and misery about being ill is too long. I am tired so very tired and just don't want to bother anymore.

At this point I am just not sure I want to see another doctor or ER or hospital or anything medical related. I was sure I would get rebuffs here for anything and everything I have said and frankly I don't care. I am sick of all of it and those people that try to make me out to be a liar. I hope they get theirs...

You are the only descent person on here and if they loose you they lost everything. I won't be back. I assure you that. I am fed up with the bull crap and the idiots that keep saying im lying.. To hell with them and anxiety and medical crap. Im done. You take care and continue to be the fine human being you are and take care of yourself. I ask them to delete all my post under this screen name and my other one and they won't do it and I don't want to do it myself ,its too time consuming and just boring. Take care my friend and thanks for being my only friend here.

[MyNameIsTerry]

Michael,

I appreciate your kind words, thank you.

As I've said before, this forum is for everyone so we all have equal rights to being here. If you change your mind and wish to stay, you are welcome. We don't all get on around here, I know people who dislike me and I've thought of leaving a few times but decided I shall go when I want to and not because of disputes with others. That's just forum life but it is amplified on here with our conditions. There are loads of great people on here, don't feel that disputes with a small number are representative of the forum. I've had many arguments and the amount of new members coming through largely washes old issues away.

If you do choose to go then I wish you all the best with your health in general. I do hope you choose the right solution to get treatment for all of this because your family obviously need you or else they wouldn't still be with you. They wouldn't be at the hospital with you if they didn't care and they obviously wanted you to move closer.

I know going so many years with anxiety is soul destroying, others say the same on here. It's a fear of my own too. Depression can all so easily set in the more we think about what we are losing or not getting, I get this too and try my best to keep it out of my thoughts but it's not possible all the time.

Take care and all the best.