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Thread: Severe Health Anxiety for over 4 years.

  1. #1

    Severe Health Anxiety for over 4 years.

    Hi everyone,

    My names Scott and I’ve been suffering from this crippling condition for a number of years now without being able to shake it for good.

    I’ve met various people who suffer from various levels of anxiety but have never spoke to anyone or read about anyone who is at my level which worries me. I will go through a brief outline of my experience of how mines came on and what I have went through during this time.


    I suffered badly with depression for a 2 year period prior to my health symptoms coming on, it was every day during that point of being convinced I was losing my family, freedom and life. When that was resolved I was on cloud 9 for around 3 months feeling back to myself then the below happened…

    It all started in October 2012 when I was lying in bed one night watching TV, suddenly the room began to spin and my eyes felt all out of whack. I brushed it off and just went to sleep but when I woke the next day I felt I wasn’t in my own body and had terrible head pressure and an ‘off’ feeling. I went to my GP after a few weeks of this feeling and they thought I had a sinus infection so rounds of antibiotics later still no resolution so I started my googling (worst decision of my life) which had shown me brain tumour…a few weeks after convincing myself I had a deadly tumour I developed a continuous tinnitus and pressure got worse. I eventually checked myself into A&E who put me into ECU where I received a CT scan with contrast. Negative.


    I didn’t stop there like most would though because I read CT scans can miss tumours and MRI is the best test so I went private to see a Neurologist who performed a MRI and lumbar puncture which was negative and subsequently put me on amitriptyline (it worked which leads me to think it was nerve related). (At this point I spend £500 of my own money).

    Maybe about 6 months later dealing with the relapses of head pressure and uping my dose of medication I experienced really bad pains in my abdomen, bloating and constipation. This continued for a few weeks before I started to Google again then saw Bowel Cancer which my grandfather and uncle died from. Of course at this point I’m in a frenzy and start breaking down…even going to the point of writing letters to at that point my unborn son. I spend a month of utter despair and break downs before getting a colonoscopy which turned out all clear.

    Maybe a few months after that I started to feel really itchy all over for no reason, I didn’t google it until I felt my collarbone and though I felt a hard lump…Lymphoma. I did have this fear before as I had a lymph node come up behind my ear a year before but it eventually went down although never fully away. So again I am in fight or flight mode crying, feeling utterly helpless. So I went to GP who didn’t feel anything and I asked to see a specialist but refused so I paid for a private one (£170) who told me it was nothing.

    Fast forward to this year where I started to feel itchy again, developed a chronic couch thatr afer 8 weeks still persisted, had constant low back pain for weeks and the lymphoma fear is back with a bang. I put it all down to anxiety and tried to work past it until I was randomly feeling my under my jawline where I felt a bone hard lump that seemed to be stuck to the jawline…it all made sense now! This was a cancerous lymph node and I was dying. Off to the GP in a mess again, he does this time acknowledge there is a lump there and send me for an x-ray which doesn’t show anything, he tells me to leave it. I of course Google and see that this would be difficult to pick up in a dental x-ray so again I make an appointment to see the head and neck cancer specialist that I saw before. ( Before I went to see the specialist I went to A&E in a panic wanting a chest X-Ray as I knew lymphoma in lymphoma it's common for it to effect there and it made sense that it was lymphoma as my couch was a symptom.) She has a feel doesn’t think it’s a lymph node or anything to worry about but said I could have a ultrasound (combined cost of appointment and scan £560) Scan didn’t show anything and told not to worry and just keep an eye on it.


    My back pain does not resolve so I go to see an Osteopath (£62 a visit) I have been 5 times over the past 2 months, nothing is working. Last week I had a lumbar MRI (£349) which showed disk disease and a prolapsed disk which could explain my pain. I am still convinced I have cancer that is spreading to my bones however.

    So here I am today nearly £2,000 spend in scans and specialists and still waiting to fall down dead by lymphoma or another cancer.

    I have seen my GP told him I have this health anxiety, he gave me a referral for a self-help group but I think I need something more than that, sitting in a group I doubt will help me. I need a therapist or something I’d imagine since the extent of this is so bad and to anyone looking in I must look a complete nutcase.
    Last edited by Scottio19; 09-12-16 at 11:24.

  2. #2
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    Re: Severe Health Anxiety for over 4 years.

    Hi Scott,

    Sounds like you have it rough!! For context, mind if I ask how old you are and if you have a job?
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  3. #3

    Re: Severe Health Anxiety for over 4 years.

    Hi SLA,

    I'm 30 years old and I work in finance. (well redundant in March but I'll find something!)

  4. #4
    Join Date
    Dec 2016
    Posts
    167

    Re: Severe Health Anxiety for over 4 years.

    Quote Originally Posted by Scottio19 View Post


    It all started in October 2012 when I was lying in bed one night watching TV, suddenly the room began to spin and my eyes felt all out of whack. I brushed it off and just went to sleep but when I woke the next day I felt I wasn’t in my own body and had terrible head pressure and an ‘off’ feeling. I went to my GP after a few weeks of this feeling and they thought I had a sinus infection so rounds of antibiotics later still no resolution so I started my googling (worst decision of my life) which had shown me brain tumour…a few weeks after convincing myself I had a deadly tumour I developed a continuous tinnitus and pressure got worse. I eventually checked myself into A&E who put me into ECU where I received a CT scan with contrast. Negative.[/FONT][/SIZE]
    I had a similar situation around that same time... Headache and dizziness that wouldn't go away. Also had tingling aching arms, ringing in ears, other stuff too. Happened out of the blue and scared me. Had MRI, saw specialists... my HA went through the roof. I thought MS for sure. They gave me klonopin and nortriptyline. Eventually everything was clear and my neurologist says I have CFS or post-viral syndrome. He thinks I got some virus that affected my nervous system. I also had brain fog, saying the wrong words... some weird symptoms. They have slowly waned but not gone away completely four years later...

    I also have been at this for a long time. Health anxiety dating back to an adolescent. It seems I am on a 3/4 year cycle with HA events... and each time it takes me months to get back to normal. They seem to be getting worse the older I get.

    Might I ask if you have ever tried anti-depressants? I have been on and off for 20 years and I think I'm finally coming to the conclusion I should just stay on them... at least a maintenance dose... forever. These HA episodes are terrible! (I also have depression but not major, had some bad post-partum depression after my first was born.)

    In my 45 years, I have seen all kinds of specialists (I have very good health insurance) thinking I have: skin cancer, esophageal cancer, stomach cancer, impending heart attacks, ms, liver cancer, etc. My current fear is ALS.

    So I can empathize completely. I't such a tough battle to wage.

  5. #5

    Re: Severe Health Anxiety for over 4 years.

    Thanks for the post.

    The only thing I have taken so far is 50mg Amitriptiline which I've stopped taking the past 3 months. I know that's a kind of anti depressant but maybe not the best for what I'm suffering with.

    I seem to only have a few months of feeling back to some sort of normality then a new symptom appears that fuels the fear and panic again. I really don't want to keep doing this as it's taking its toll on my family and no doubt my mental health.

  6. #6

    Re: Severe Health Anxiety for over 4 years.

    I posted a thread in IBS and forgot I had this one.

    It's came back with a vengeance this time. Drained me
    Of another £3000 on tests and specialists. More CT scans, Scopes and bloods taken and I don't feel any better for it as the pain hasn't gone away or the fear for that matter. It's went from a brain tumour, Lymphoma, Bowel Cancer to now Pancreatic cancer.

    I feel awful for my family, young children seeing me fall apart like this

  7. #7
    Join Date
    Feb 2018
    Posts
    259

    Re: Severe Health Anxiety for over 4 years.

    Quote Originally Posted by Scottio19 View Post
    I posted a thread in IBS and forgot I had this one.

    It's came back with a vengeance this time. Drained me
    Of another £3000 on tests and specialists. More CT scans, Scopes and bloods taken and I don't feel any better for it as the pain hasn't gone away or the fear for that matter. It's went from a brain tumour, Lymphoma, Bowel Cancer to now Pancreatic cancer.

    I feel awful for my family, young children seeing me fall apart like this
    This has been going on for four years, i think if you had anything serious you would be dead or extremely ill, you wouldn't be on here typing about your worries, you have had so many tests and scans and nothing sinister has been found if i was you i would be jumping over the moon.

  8. #8
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    Re: Severe Health Anxiety for over 4 years.

    Spend your money on therapy not more scans and tests.
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