I was there already and people reassured me. Bad choice I know. Bad choice that I've read so much. And now each times I get a twitch or a spasm it is killing my mood. And makes me think the worst.
The single relief at this point is the EMG which was clean. But I'll ask for another one at 3 months after, even if doctors were not concerned but for my peace of mind.
Senior Member
Please don't go on the forums again. Listen to FMP. You've made people with a horrible disease, reassure you, a healthy person that you don't have it. It's messed up.
What are you doing for your anxiety besides getting medical tests?
I'm still a work in progress.
Currently working on: World Domination
I have spoken with my neuro last time and he prscribed zoloft 50 mg / day. Problem here is that I am an occasional drinker and I have to stop it completely. Doctor prescribed me but he mentioned that It should be my choice as he doesn't see an advanced grade of Anxiety.
My problem here with BFS or whatever I have is time. I found the bfs facebook support group where I see people dealing with kind of the same condition.
Me and my wife were planning for another baby but the worry that I can develop my dad's disease combined with twitching made me stop every plan.
I am now just working , coming back home, no social activity and everything goes with me as auto-pilot...
Time will pass and maybe after 6 months of twitching if no weakness is developed I should probably come back to normal.
Junior Member
You've been through a hell of a lot recently, and it's absolutely no wonder you're dealing with this now. I, like others, will advise you to seek help and support for your grief.
Twitching is caused by many things-too much caffeine, medication, anxiety, stress etc. ALS does not present first and foremost with twitching. You've had a clear EMG. You're fine in that department.
OK, it is entirely possible that you can get a clean EMG and sometime in the near or distant future still be diagnosed with something, but is it probable? And can you live your life like that? Forever wondering what if? My answer would be is that no, you can't. That's not living.
If you search hard enough, you'll always find oddball cases which don't reflect the norm. ALS is incredibly rare-so rare it's a wonder anyone even knows about it enough to worry about it-and it is even rarer to be one of the oddball cases.
I suspect that this anxiety is a result of the grief that you've suffered-and I'm sorry for your loss, but please seek support for that, and put your mind to rest about all of this.
Don't ever tame your demons, but keep them on a leash.
Advanced Member
Same to be said about the cancer boards which is sworming over with hypocondriacs thinking that the cancer victims and their families are there to reassure them. Some of them are even denying they are hypocondriacs. Shameful it is!Originally Posted by Fishmanpa
Junior Member
I do not mean this to be nasty-but this is more than a bad choice. This is disrespectful to those that are suffering. You have been given a clean bill of health-something these people would love to have-and you've allowed them to reassure you.
They do not need people, hyped up with HA, invading their forums with their worries. It's not helpful to you and it's not helpful to them.
Of course it is killing your mood. Because you've drawn a conclusion without examining all of evidence. Not only that, but you're ignoring the evidence to the contrary of your fears!
I don't think getting another EMG in three months will give you peace of mind at all. There are countless people spread across forums like this one, that have the same mentality. "Just another test to really put my mind at rest." It's almost like they think that this next test, unlike all the others they've subjected themselves to, will be the "elusive one." It will be the "Holy Grail" of tests, and once the results come back from that, finally, will they listen and be able to move on and accept.
More often than not, the test reassures briefly. The fears quickly re-emerge, and a new search for the "Holy Grail" begins. It's not normal to regularly get EMGs without cause. What makes you think that that EMG will grant you peace of mind where this one did not?
Don't ever tame your demons, but keep them on a leash.
Well... a part of BFS is the non progression of the symptoms and given I have only 2 months of twitching some people which gets 6 months old and they have no weakness It is safe. I am much more relieved now after seing neuros and tests, I am trying to focus while at work and hopefully I'll get the peace of mind.
And yes you are right, I cannot live in a constant fear. I am not visiting any more als/mnd forums right now and I was quite happy with my progress of staying away.
I am looking forward and thank god that I found this forum cause I feel that I belong more here...at least from now.
The problems even with my clean EMG is that my DAD is in the equation and I hope I'll not develop the same...at least nowJust want to see my daugther growing to at least being major...
I will do some research in getting help with my anxiety and even if I'll need to use medicine I will do an effort.
Intermediate Member
Your dad isn't "in the equation." You don't have familial ALS. Your chance of developing it is the same as the rest of the general population.
Junior Member
You need to get out and do stuff. Staying busy helps get your mind off of twitching. You got the clear from the specialists, Now go do something that you enjoy.
Yep @nivekc251, totally right. It's just that 2/3 reports on the internet which I saw people started initially with twitches still keeps me down. Given I have only 2 months and 1 week of them, making 6 months will be reassuring as if no weakness or other symptoms will develop it should be ok, I still pray and hope ... Then I will be reassured that I don't have MND, at least for this decade.
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