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Thread: I fear it's bulbar onset ALS

  1. #1

    I fear it's bulbar onset ALS

    Hello all. For the past almost 3 months I've been experiencing a strange vocal condition. I cannot sing without my voice cracking. I struggle with the volume of my voice at normal speaking levels. My voice feels flat and my pitch is out of wack. Overall, it just feels weak.

    A trip to my GP led to a normal bloodwork test. He recommended that I see a ENT, who performed a laryngoscopy and found nothing out of the ordinary, except for some mild reflux. She recommended that I see a speech pathologist, and I have made an appointment.

    I am at a loss. It appears that noting is physically wrong with my throat, but something is causing this. I have had als fears in the past for silly things, but this is really worrying me. I am only 28 years old... Usually much too young for als. But I know it's happened.

    Has anyone experienced something similar?

  2. #2
    Join Date
    Aug 2013
    Posts
    24,683

    Re: I fear it's bulbar onset ALS

    Please read this... And please, do not go on the ALS forums!

    Positive thoughts
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  3. #3
    Join Date
    Jul 2017
    Posts
    915

    Re: I fear it's bulbar onset ALS

    Quote Originally Posted by Fishmanpa View Post
    And please, do not go on the ALS forums!
    Too late :(

  4. #4

    Re: I fear it's bulbar onset ALS

    Quote Originally Posted by melfish View Post
    Too late :(
    I'm no stranger to reading those forums. It was gonna happen.

  5. #5
    Join Date
    Jul 2017
    Posts
    915

    Re: I fear it's bulbar onset ALS

    I lurk there too. I haven't, however, posted because I think it's both disrespectful and selfish to expect those suffering from or caring for those with this dreadful illness to alleviate our anxieties.

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