Then if you are desperate you must do so. It honestly IS that simple, your life has 'become' this set of symptoms and you have nothing else to focus on and distract yourself with. You say you want to work, you want to do something to make yourself more healthy...then take that first step.
There are people on this forum who have had to drag themselves back from far more serious physical illness, and force themselves in taking steps to improve their lives. Why not volunteer with some people who are really needy - charities and community groups are crying out for volunteers, if you visit your local library you will probably find a board there with a choice of volunteering oppportunities.