Terrified I have Chrones or bowel cancer

[Honeynut]

No one has diagnosed you with pancolitis, you found that through googling. You need help for your mental state because this is not healthy or constructive at all. I think you need to take time away from the internet and focus on your mental health. These forums seem to not help you at all.

[Jenni855]

Pancolitis is inflammation of the whole colon.

[Honeynut]

You said yourself a few pages back that you googled that and found that it’s the worst case of colitis and you must have that. You could still have crohns.

[Jenni855]

Pancolitis is just another name for inflammation of the whole colon. Crohns is possible but he said ulcerative colitis is more likely so I would be surprised if it was.

[Honeynut]

These forums are not helping you. You go and ask for help and advice and then you don’t listen to any of it. I am going through this too. Do you know how scary it was to bleed every single day for three weeks?? I didn’t get out of bed for weeks and I cried every single day in fear. I didn’t have the money to pay for a private colonoscopy, I had to wait. Everybody around me told me I was fine and I refused to believe them because I kept telling myself I must have cancer as the blood was extreme and I was dropping weight. I became so suicidal and thought my life was over and then when I finally got to see a doctor and he said IBD to me, the relief was IMMENSE. My life isn’t over because I have ibd and neither is yours and I wish you’d wake up and see that. You should be celebrating that you still have a life to live. You’ve been on medication for what? A week? Medication can be altered if it doesn’t work until it does. You have got to relax because the anxiety is going to continue your flare and then yes, you will end up in hospital. I needed someone to be blunt with me when I was going through this and then when somebody actually was, it woke me up and I fixed myself. I really really hope you do the same because this really isn’t worth ruining your own life over. You’re doing it to yourself, not your body.

[KK77]

These forums are not helping you. You go and ask for help and advice and then you don’t listen to any of it. I am going through this too. Do you know how scary it was to bleed every single day for three weeks?? I didn’t get out of bed for weeks and I cried every single day in fear. I didn’t have the money to pay for a private colonoscopy, I had to wait. Everybody around me told me I was fine and I refused to believe them because I kept telling myself I must have cancer as the blood was extreme and I was dropping weight. I became so suicidal and thought my life was over and then when I finally got to see a doctor and he said IBD to me, the relief was IMMENSE. My life isn’t over because I have ibd and neither is yours and I wish you’d wake up and see that. You should be celebrating that you still have a life to live. You’ve been on medication for what? A week? Medication can be altered if it doesn’t work until it does. You have got to relax because the anxiety is going to continue your flare and then yes, you will end up in hospital. I needed someone to be blunt with me when I was going through this and then when somebody actually was, it woke me up and I fixed myself. I really really hope you do the same because this really isn’t worth ruining your own life over. You’re doing it to yourself, not your body.

Unfortunately, Jenni is too deep in the HA warren and only relates to negative outcomes.

I wouldn't upset yourself, Honeynut. Some people refuse to accept help - and that is their choice.

[Capercrohnj]

Nm not worth it

[BikerMatt]

Sorry i don't understand Jenni. Can the specialist not exactly tell you what you have? Does it not work like that? or am i being a little thick?

[Jenni855]

Not that it's a competition as to who has it worse but I have been dealing with this since October and have had long stretches of bleeding, constant diarrhoea, acid reflux, vomiting, urgency. I was forced to go private as the weight was dropping off me almost dipping to below 6 stone. I thought things would improve once I started on the meds but they haven't. I am just drained by it. I still can't work as the aching is so intense. All my worst fears have come true for me in this and I want to believe that one day I will be painfree but I can't see it happening and that thought is quite frankly unbearable.
I am tired of hoping and being strong and my family and friends expecting me to be happy that I am on meds and that the diarrhoea has stopped for now. I am fed up of being in pain and of wishing for things to get better.
Matt he just said he couldn't be certain that it wasn't crohns but was more likely ulcerative colitis and on the notes it said the whole colon was inflammed.

I will stop posting for now as am in a very bad place.

[Capercrohnj]

The meds are working if your diarrhea stopped. Also.vomitting and acid reflex are definitely NOT symptoms of UC.