Well done YNWA
I know exactly how hard that was for you because I experience that every day!
I've had to encounter three conversations while I was out and appear interested and relaxed when I was neither.
It takes all my strength and determination to do what should be such an easy thing as walking and popping into a shop.
I'm feeling the fear, accepting the fear, not running away or fighting it and meanwhile my body struggles to cope with all that.
I keep going in hope that one day I will feel at ease and feel normal. It is possible, so I keep trying. If I don't then my life is disabled and limited.
This condition we all have is beyond any doctors cure. We have to be our own doctor, carer and therapist.
But it does become so tiring and we become so despondent, but if we help each other, share, comfort and give hope then we are all on the same path to hopefully a happier and better life. x
Sue, you have a right to be angry.
We do all the things suggested under the sun and still we are looking for more cures.
How many times do I hear, "I've had this for 20 years, 30 years?" And reoccurring relapses. GPs that shake their head or look at you like you are a hopeless case.
Why wouldn't we be angry.
But in the same breath we wait for the moment we notice a glimmer of relief to encourage us to keep going and trying. It's not a disease but a debilitating condition.
And we cry ourselves into depression so have that to deal with that as well.
We have no choice but to pick ourselves up and try and try again. The flip side is not a pretty picture.
We need to help each other, give hope and love and we are lucky to have found that here for each other. x
Darksky, after some heavy writing from me, your lists are a brilliant idea. x