Hello everybody.
I recently posted (my very first post!) about my anxiety about travelling down to London (a 4 hour car journey) to Great Ormond Street for treatment of Neuroblastoma...Im now HOME!!!!!
We started out early on Monday morning about 7am, and for the first hour my anxiety was at about a "5" on the scale of 1 - 10. I took an anti-emetic tablet which made me sleepy, but i didnt actually fall asleep. I was so suprised that my anxiety almost vanished for the rest of the journey and i felt almost as relaxed as what i do n a journey nearer to home! I started becomign more bothered about the actual hospital appointment than the getting there, which is very unlike me! I was STUNNED!
The appointment went well too! My new Oncologist has reffered me for 2 new clinical trials, the first one starting next Tuesday at the Royal Liverpool Childrens hospital (which is about 2 hours from where i live). If all else fails, i will return to London for a different Chemotherapy concoction, and possibly full body radiation depending on MIBG and CT scan results.
Coming home was a slight disaster! We got a little lost, and realised that we had been travelling down the A roads a bit too long, and were actually meant to be on the motorway LOL. My mum kept seeing signs for Cambridge and was panicking, so we stopped at a the next service station and got out the map (which we probably should have done ALOT sooner!) .......anyway.....the 4 hour car journey turned out to be a 9 hour car journey!!!!! Yes, 9 HOURS! I panicked alot more on the way home than i did on the way there, which is understandable seeing as we got extremely lost, and i felt quite sick!!! But i am SO proud of myself for going, it seems quite unreal.
Tomorrow we plan to take an hours train journey into Manchester to do some shopping (as i have never been before!) and im really looking forward to it. I think my Neuroblastoma is a blessing in a way, i dont think i will ever stop trying to overcome Agraphobia now!!!
Daisy x
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