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Thread: MS Diagnosis

  1. #1
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    MS Diagnosis

    I’ve just had a diagnosis of multiple sclerosis after various symptoms – lower body weakness and loss of balance when walking, bowel and bladder disturbances, visual disturbance in one eye, heat-related weakness including from hot showers and baths, episodes of numbness and tingling, an odd electric-shock sensation down one side of the body when bending the head forward – and confirmed by multiple lesions in the brain and spinal cord as shown by MRI scans.

    Actually, I was relieved that it was nothing worse. Also, I’d used Google to check out my symptoms, and MS was the most likely possibility to cover all of the above, so it was no surprise. Sometimes Dr Google is right (!), but it still needs an expert – in this case a neurologist specialising in MS – to make a diagnosis.

    I’ve been referred for an appointment at an MS clinic based in a local major hospital in a month’s time. I’ll post again when that happens to follow up.

  2. #2
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    Re: MS Diagnosis

    So sorry to hear that hanshan.Is the hospital John Hunter?

  3. #3
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    Re: MS Diagnosis

    Hi Lola-Lee - Thanks, I'm just so glad it's hit me in my early sixties when I'm winding down anyway. Yes, it's John Hunter Hospital and the doctor in charge of the MS clinic is originally from Germany, with lots of experience, so I'll be in good hands.
    Last edited by hanshan; 19-06-18 at 11:43.

  4. #4
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    Re: MS Diagnosis

    I don't know the Dr,but I have seen a physician at that hospital and he was very good, I lived at a place called Dungog years ago.I wish you well hanshan.

  5. #5
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    Re: MS Diagnosis

    Thanks again, Lola-Lee.

  6. #6
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    Re: MS Diagnosis

    My very best wishes to you, Hanshan. No matter how prepared you were for the diagnosis it must still be a shock. I'm glad you have confidence in your Consultant and will be looked after by a team of experts in the MS field.

    Please let us know how you are and how you are coping? You have always given wonderful advice and help to people on NMP and if in some small way we can offer you support then please tell us?

  7. #7
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    Re: MS Diagnosis

    Sorry to hear this, Hanshan. Very unusual for MS diagnosis in your age group but you have pragmatic attitude and I wish you all the very best.
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    Never Surrender, Comrade

  8. #8
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    Re: MS Diagnosis

    Hello Hanshan, I wish you well. There is treatment out there. All the best and sending you
    __________________
    Magic

  9. #9
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    Re: MS Diagnosis

    Thanks guys. I really appreciate your support - it means a lot. The usual MS diagnosis (I have learned) is female by a ratio of 3:1 and aged in their 20s-30s, but around 15% are late-onset (around 50) and the male-female ratio is about even. My first episode of facial tingling and numbness dates back to the early 2000s - I can't even put a definite date on it. It lasted a couple of weeks, then cleared up completely without me doing anything, and I thought it was just a pinched nerve at the time.

    But the good news is that there are new meds to slow or stop the progression of the disease, and lots of research going on. Also, in my particular case, I feel fairly normal just sitting at the computer - it's only when I get up and try and move around that it kicks in - lack of balance and rapid fatigue. But I can say that anxiety and depression are far worse!

    My appointment at the MS clinic is still not for another month. I have a vague feeling that it is like getting married and meeting the relatives!
    Last edited by hanshan; 01-06-18 at 03:01.

  10. #10
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    Re: MS Diagnosis

    Hi Hanshan,

    Sorry to hear that, wish you all the best in your recovery.

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