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Thread: Had a major setback need someone to talk to

  1. #1
    Join Date
    Jun 2014
    Posts
    75

    Had a major setback need someone to talk to

    Iím so disappointed in myself ! Iíve been doing so well over the past month regarding my fear of MND and for some stupid reason decided to google as I am still twitching 4 months later - I have now convinced myself I have it and have been crying on the bathroom floor ever since . I am so mad at myself for doing this

  2. #2
    Join Date
    Nov 2018
    Posts
    1,149

    Re: Had a major setback need someone to talk to

    Don't be mad at yourself? This happens to all of us from time to time. Re-read FMP's sticky thread, use your coping strategies and you'll soon get to feeling better again.

  3. #3
    Join Date
    Jun 2014
    Posts
    75

    Re: Had a major setback need someone to talk to

    Hi Blue Iris thanks for getting back to me - god I was at a low point last night :( trying to start afresh today itís so difficult ! I am going on holiday tomorrow and wish I could relax

  4. #4
    Join Date
    Nov 2018
    Posts
    1,149

    Re: Had a major setback need someone to talk to

    Baby steps, Murphy. Where are you going?

  5. #5
    Join Date
    Jun 2014
    Posts
    75

    Re: Had a major setback need someone to talk to

    Off to Tenerife for some sun hopefully !!

  6. #6
    Join Date
    Nov 2018
    Posts
    1,149

    Re: Had a major setback need someone to talk to

    Ohh, wonderful! I'm just glad to have a few days away from work.

  7. #7

    Re: Had a major setback need someone to talk to

    Hi Murphy93,
    I am still in the same boat as you but the longer these twitches continue the more reassurance that nothing else sinister is happening.
    Do I worry? Yes but not as much as 3 months ago. ALS is not subtle and would be progressing and getting worse.
    I have noticed that when I am tired or have my period that twitches become 10 times as bad. This leads away from our fear as it would not show this way.
    It is horrible and I am like you and act normally, work etc and then a twitch occurs and the feeling of dread returns.
    Have you been referred to a neurologist?

  8. #8
    Join Date
    Sep 2016
    Posts
    97

    Re: Had a major setback need someone to talk to

    Murphy, congratulate yourself for recognizing that you fell off the wagon and climb back on. And kudos for your good month with HA under control. (And I’m major jealous of your trip--have fun!)
    __________________
    Formerly Canbud.

  9. #9
    Join Date
    Jun 2014
    Posts
    75

    Re: Had a major setback need someone to talk to

    Hi all thatís me back from my holiday - was nice to have a break and see some sun . Thank you so much for your replies! Funnily enough I barely twitched when away - maybe once a day in my foot or thigh . Unfortunately had a bit of a panic attack on my last night . Iím experiencing body fatigue all over like I have the flu my legs and arms and neck ache !! I hope this is just my body exhausted from anxiety . I have not been referred to a neurologist no my doc just doesnít seem concerned - I told her last time and she took some muscle blood tests ? That was all. Iím vit d sufficient so currently trying to build this back up . I just wish I could get out of this fear - not sure how long als takes to read itís ugly head but Iím hoping 4 months and nothing maybe be a good sign ?? I hope you are all doing well and getting some nice weather like we are in the uk for a change

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