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Thread: Terrified I have ALS

  1. #1

    Terrified I have ALS

    Hi all, I am new here and terrified I have ALS. Since Xmas I’ve had constant twitching in my lower legs, mostly my calves. It is all the time. Occasionally the odd twitch in my face or elsewhere but usually a one off or only lasting a few minutes.
    My muscles ache and if I tense them they feel like they’re going to cramp. I’ve got stiffness in my groin muscles and my hamstrings are so tight it hurts to straighten my legs.
    I’ve had a blood test which only showed a minor vitamin d deficiency which I’ve been taking 800 units of for two weeks. No difference.
    I’m so anxious and convinced myself I have ALS, even going so far to arranging things for my wife and children for when I die. I’m finding this so difficult.
    Does anyone else have these symptoms?
    Google tells me I have ALS and a maximum of two years to live!!!!

  2. #2
    Join Date
    Nov 2018
    Posts
    7,777

    Re: Terrified I have ALS

    Google LIES! Read this to find out why.

  3. #3
    Join Date
    May 2008
    Posts
    1,981

    Re: Terrified I have ALS

    SO MANY people have these symptoms. I have terrified myself about ALS because of twitching. And calves are one of the most common places for twitches.
    I even went so far as to visit a neurologist- who said twitching in the absence of clinic weakness (this is the sort a doctor detects - not “perceived weakness”, where the patient themselves think they have noticed a body part is weaker) is completely meaningless. She said she has had at least 3 people a week in her office worrying about twitching and in her entire career NOT ONE of them has gone on to develop ALS.

  4. #4
    Join Date
    Aug 2013
    Posts
    24,676

    Re: Terrified I have ALS

    Quote Originally Posted by BlueIris View Post
    Google LIES! Read this to find out why.
    You beat me to the punch BlueI...

    Positive thoughts
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

  5. #5
    Join Date
    Nov 2018
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    7,777

    Re: Terrified I have ALS

    It's the best post ever, basically, FMP.

  6. #6
    Join Date
    May 2008
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    Re: Terrified I have ALS

    Quote Originally Posted by BlueIris View Post
    It's the best post ever, basically, FMP.
    From the best poster ever, basically, FMP. We are your fan club!! Xx

  7. #7
    Join Date
    Nov 2018
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    7,777

    Re: Terrified I have ALS

    *waves a little FMP flag*

  8. #8

    Re: Terrified I have ALS

    Thank you for your replies. Is it common for calf muscles to twitch 24/7 though?
    I’m bloody terrified

  9. #9
    Join Date
    May 2008
    Posts
    1,981

    Re: Terrified I have ALS

    Yes. Actually there was a poster on here a few months ago who had that very thing. And drew the same conclusions as you too (wrongly). Have you heard of BFS?

  10. #10

    Re: Terrified I have ALS

    I have read about it but I can’t believe my legs are twitching for no other reason than als. I’ve read the post but even that’s hard for me as I read symptoms and I think I have them.
    My arms are heavy and my leg muscles are twitching and burning now ten to the dozen and I’m panicking at some point I’m going to get the als diagnosis. It’s unbearable
    I appreciate your reply but I don’t think anything is going to help me. Sorry ☹️

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