Lump next to ankle bone

[Bedworth]

Finally spoke to the specialist he said the ultrasound looks fine to him, though he hasn’t spent the 6 years training in that field he feels confident in his working knowledge that it looks relatively standard to him. He also said hopefully the surgery won’t be too far away and that’ll be the end of my worries. I hope so. I’ll update again if something relevant happens.

[Bedworth]

I spoke to the Sarcoma Support Line and they asked me to go back to my GP and ask for my Ultrasound to be sent to the Hospital in the City close to me so a Sarcoma specialist team can take a look at it. They said it was to put my own mind at rest as they would have expected it to have grown significantly since I first found it if it was a Sarcoma and I’ve done very well by having an Orthopaedic Surgeon look over my Ultrasound.

The one thing they keeps getting to me mentally is that the people who did the Ultrasound said it wasn’t a cyst it was a joint effusion, which are very different and you have them drained, but the surgeon keeps acting like it’s a cyst and has talked about how he can quickly slice it out. It doesn’t add up.

[Bedworth]

Didn’t go well, GP refused to send the US over, Nurse on the support line called them but GP wouldn’t change their mind. It wasn’t even a GP I’ve ever met before, they were just going by what was on the record that the US was fine and required no further investigation. Once again I asked why the US people said it was an effusion that can only be drained but the surgeon said the opposite and it should be sliced out but once again I was given no answer.

It’s all so very damn tiring, I’m going to set up a private MRI appointment and see who I can get to look at it privately. It’s getting too much. I just want clear answers but I keep getting different ones and being blocked by my GP’s so I have to do things privately.

[Bedworth]

Has anyone here ever had a joint effusion that was painless and presented itself as a lump? I can’t find anything online about effusions with these symptoms.

[Fishmanpa]

Still pursuing a diagnosis for a benign issue I see Why can't you just let it go? We all have lumps and bumps and they're not sinister.

Regardless, I hope you find peace...

Positive thoughts

[Bedworth]

Because of the constant different diagnosis from the different people I’ve seen and the type of foot sarcoma I’m worried about is constantly misdiagnosed until later stages. I understand the typical and healthy reaction would be to let it go but when one person tells you one thing, then another tells you something else and just shrug at you when you mention the difference in diagnosis and symptoms not adding up you feel very insecure.

my biggest worry at the moment is that the people doing the ultrasound told mr it was a joint effusion, which can only be drained.

When I went to my GP to ask about joint Effusions after reading they are swellings of the entire area, painful and only last a month or two which is the complete opposite what I have he had no answer and told me to not worry about it.

my Orthopaedic surgeon ignored the effusion diagnosis and said he could slice it out and draining would be pointless. However you can’t remove joint effusions as it’s the capsule swells with fluid leakage, not a growth. When I asked him how did I get a joint effusion without injuring my ankle he just shrugged and said I must have injured it severely.

The nurse at the Sarcoma helpline I explained this too was confused about the diagnosis but in the end she was blocked by a GP I’ve never met from helping me and said she couldn’t do anymore.

Something doesn’t add up and I just want a clear answer.

[Bedworth]

I haven’t posted for a while but there isn’t much to add, I’ve seen my doctors and talked to them about my worries and was dismissed, I’ve asked for a referral to see a sarcoma specialist at the private hospital and been denied which is crazy since I’d be paying for it.

So all I can do is wait for my surgery next year. I’m hopeless.

[BlueIris]

You could carry on dealing with your anxiety.

What would be the point in seeing a sarcoma specialist when you plainly don't have it?

[Bedworth]

You could carry on dealing with your anxiety.

What would be the point in seeing a sarcoma specialist when you plainly don't have it?

I’m on the waiting list for a higher tier of therapy since I’ve done CBT.

Synovial Sarcoma is hugely misdiagnosed and needs specialist attention to be diagnosed correctly.

[Bedworth]

Had my pre-surgery assessment, blood test, mrsa swab, ecg and blood pressure checked. Blood pressure was fine, still waiting for the results for the rest of it. The lump has actually shrunk to almost nothing so I’m not sure whats going on and need to speak to a doctor. The nurse at the hospital couldn’t comment in it.