Multiple Sclerosis (MS) Fears

[MisguidedDoddle]

Hi All,

I;m having a pretty hard time dealing with feelings that I have MS. It is mainly the fact that every now and then I get weird twitches and spasms in my face and legs, and that my right leg feels like stiff and awkward to move- I am moving with a bit of a gait.

Now I feel like this could be for many different reasons. I had a very stressful time last week, got little sleep and didnt eat too much. I also sat with my legs in unusual positions, my right big toe also eroded quite a lot of the base of my sole through friction! I am hoping these are the reasons my legs feel bad. But it feels strange that the gait is coming on more now, that it hasn't gone away after a week, and that I am getting these strange sensations on my legs and face. I am going to the doctors tomorrow, going to try and focus on my anxiety as the main reason I am there, but this is also genuinely very much concerning me. I am finding it had to eat or relax at all, and I am going into times of frequent panic at work and generally feeling really quite awful.

Any support would be really, really appreciated!

Thanks in Advance,
Misguided Doddle

[BlueIris]

Hi!

Please try not to worry? MS is rare, weird bodily sensations aren't. It sounds as though you've had a really rough time lately, which won't be helping.

Why not book a GP appointment to discuss your fears? You can explain what you're feeling and ask for help with the excessive anxiety.

[MisguidedDoddle]

It's mainly the slightly weird walk and tension in my right leg which is causing worry, though of course I've been putting that leg through quite a lot of tension recently!

I have indeed, this is the last week of my placement and last week was very very intense, so it is a bit of an odd time. i have lots of time off after this so hopefully that will help me to relax.

I have got a GP appointment booked for tomorrow at 11:30, I'll be sure to keep you posted of the results! Thanks for the help and reassurance, it means a lot.

[BlueIris]

May I ask what sort of placement you're on? If it's Health and Social care, you're going to be on your feet all the time, that's going to make things feel weird.

[MisguidedDoddle]

I do programming at an investment bank. I sat in lots of weird positions last week, like crossing one leg under the other whilst jiggling the right leg, frantically moving my big toe eroding my show, slouching etc. I also have a 2 hour commute on a train (4 hours total there and back), so my posture isn't so great then either. But I have only noticed this slightly lopsided walk in within the last week, though it does line up with the stress and weird positions

[BlueIris]

Believe me, that'll do it, yes.

[MisguidedDoddle]

Having the doctors appointment today. Quite a bit nervous about it all. I forgot whether I booked it for 11:10 or 11:30! Regardless I will keep you posted about the results. In all honesty I am very much hoping she doesnt find any cause to send me off to tests, and tells me what I am experiencing is normal. I would be more worried if she offers me tests because that to me suggests she thinks something is wrong!

[pav1984]

Having the doctors appointment today. Quite a bit nervous about it all. I forgot whether I booked it for 11:10 or 11:30! Regardless I will keep you posted about the results. In all honesty I am very much hoping she doesnt find any cause to send me off to tests, and tells me what I am experiencing is normal. I would be more worried if she offers me tests because that to me suggests she thinks something is wrong!

Even if they do send you for tests i would not stress too much. For MS they will give you an MRI. They are looking for scarring on the brain. This on its own isnt enough for a diagnosis as perfectly healthy people can have this. Took me 9 years for a diagnosis as they need 2 episodes to confirm.

I had a lumber puncture as well but i think that was because of the MRI result.

I doubt very much you have anything to worry about but even if you did have it, most people with MS live perfectly normal lives. They have their problems but doesnt everyone? Please dont waste time worrying about this. Enjoy today and worry about what if, if it comes.

[MisguidedDoddle]

Even if they do send you for tests i would not stress too much. For MS they will give you an MRI. They are looking for scarring on the brain. This on its own isnt enough for a diagnosis as perfectly healthy people can have this. Took me 9 years for a diagnosis as they need 2 episodes to confirm.

I had a lumber puncture as well but i think that was because of the MRI result.

I doubt very much you have anything to worry about but even if you did have it, most people with MS live perfectly normal lives. They have their problems but doesnt everyone? Please dont waste time worrying about this. Enjoy today and worry about what if, if it comes.

That is all very true. My anxiety is the main driver, I know regardless of whether if I am or am not diagnosed my anxiety will still chase me. This isn't the end of the anxiety road whatever happens. I just feel so tired that I have to keep dealing with this. With life feeling like a struggle when nothing has actually even happened yet. I just hate feeling like this

[BlueIris]

I'll be thinking of you. Genuinely don't think you have anything to worry about, though.