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Thread: Have I Got Neurofibromatosis / Nerve Related Cancer?

  1. #31
    Join Date
    Jan 2015
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    1,987

    Re: Have I Got Neurofibromatosis / Nerve Related Cancer?

    Quote Originally Posted by MyNameIsTerry View Post
    So, consider what you have learned from this thread:

    1) avoidance. That GP wants to help you and you didn't go. Anxiety can make appointments scary or it can make (and I think some HAers do this more than other themes) the person feel they don't need to address something when feeling a bit better.

    2) Researching things with a clear bias towards the worst stuff.

    3) Not reading what you find properly. That NHS link states most are benign and you don't have all those (quite obvious) symptoms as you haven't been mentioning them on here.

    4) Finding a criteria list and thinking it's easy to get diagnosed when most of that list points towards a specialist examining you and performing tests.

    5) It's more likely something harmless and someone with more objectivity (thanks to Seymour) points to what you should have considering in the first place. And the reason you didn't? Your OCD.

    I suggest you mention this to the therapist once you start. It's further evidence of your faulty thinking.
    It's definitely that, I start thinking about rushing to the doctors when I'm panicking but if I stop worrying then I often put it off. I'll definitely go next Tuesday, my Dad said he would take me too.

    Yep it's a benign condition but it's just the fact that these potential lumps can lead to cancer and I may not know I have them if they're in my body

    And yeah, thanks to Seymour, now I'm convinced that it's just a fungal infection especially since it the skin sort of very mildly turns flaky like I'm scratching off a little dead skin, but I don't know because of how long I've had it

  2. #32
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    Jan 2015
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    1,987

    Re: Have I Got Neurofibromatosis / Nerve Related Cancer?

    Quote Originally Posted by unsure_about_this View Post
    Yes I have coped with it fine, need to have brain scan every 3-5 years due to non cancerous spot on brain, specialist sent me for a spine a few years ago, my mum also has NF she had more lumps cut off than me.
    Gosh I would be freaking out, but realistically it's not really serious as you know and has a normal life expectancy attached to it, it even said on the NHS website that it's very rarely life threatening. I'd just have to adjust to it, if it is NF-1 which it could be since my sister also had a nerve related issue

    I suppose worrying about that is like worrying about getting run over in the sense that it's pointless because it probably won't happen especially if you're careful. Maybe that was a bad analogy

  3. #33
    Join Date
    Jun 2019
    Posts
    281

    Re: Have I Got Neurofibromatosis / Nerve Related Cancer?

    Quote Originally Posted by Toby2000 View Post
    It's definitely that, I start thinking about rushing to the doctors when I'm panicking but if I stop worrying then I often put it off. I'll definitely go next Tuesday, my Dad said he would take me too.

    Yep it's a benign condition but it's just the fact that these potential lumps can lead to cancer and I may not know I have them if they're in my body

    And yeah, thanks to Seymour, now I'm convinced that it's just a fungal infection especially since it the skin sort of very mildly turns flaky like I'm scratching off a little dead skin, but I don't know because of how long I've had it
    Like I said without treatment it can go on for years.

  4. #34
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    Jan 2015
    Posts
    1,987

    Re: Have I Got Neurofibromatosis / Nerve Related Cancer?

    I showed the marks to the doctor at the end of my appointment today

    He diagnosed a fungal infection and prescribed me some cream

    Thanks Seymour, you were right.

  5. #35
    Join Date
    Oct 2016
    Posts
    4,197

    Re: Have I Got Neurofibromatosis / Nerve Related Cancer?

    Quote Originally Posted by Toby2000 View Post
    I showed the marks to the doctor at the end of my appointment today

    He diagnosed a fungal infection and prescribed me some cream

    Thanks Seymour, you were right.
    That’s great, I hope it clears up soon.

    Without wishing to be annoying, it shows how the anxious mind can catastrophise symptoms.

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