Have I Got Neurofibromatosis / Nerve Related Cancer?

[Toby2000]

Hi everyone,

I was going to take a break from the forum and I will get round to replying to everything on my other thread which is concerning bowel cancer but something sickening just struck me

I'm now seriously worried about these marks on my skin

I first started seeing them only in the middle of my chest around 2-3 years ago, maybe even 4, but over the past year they've started to spread down my chest slowly

https://imgur.com/a/RAyV61A This is taken from an above angle

Now I read that these suddenly appearing and spreading can be caused by a condition called neurofibromatosis

The scary thing is that my sister had a childhood cancer called ganglioneuroblastoma or something and that was also related to the nerve tissues

https://www.nhs.uk/conditions/neurof...pe-1/symptoms/

In most cases, the skin is affected, causing symptoms such as:

• pale, coffee-coloured patches (café au lait spots)
• soft, non-cancerous tumours on or under the skin (neurofibromas)
• clusters of freckles in unusual places – such as the armpits, groin and under the breast
• problems with the bones, eyes and nervous system

https://www.nhs.uk/conditions/neurof...pe-2/symptoms/

Some people with NF2 may also develop a small number of coffee-coloured patches on their skin, called café au lait spots. But having lots of these spots is usually a sign of neurofibromatosis type 1 (NF1).

I put off going to the doctors today because I'm back to having normal bowel movements and my anxiety has calmed down but now it's spiking again with this :(

Please help me

[BlueIris]

You're still growing, it's natural for the marks on your skin to change. Calm the heck down.

[nomorepanic]

All you have done is move on from one worry to the next though Toby and this is typical HA.

Treat that and these things won't worry you half as much

[Toby2000]

You're still growing, it's natural for the marks on your skin to change. Calm the heck down.

All you have done is move on from one worry to the next though Toby and this is typical HA.

Treat that and these things won't worry you half as much

I know it's typical HA and everything, I accept that for sure and I'm getting help for it at some point soon, but it's the fact that they're spreading or I'm at least getting more of them now, and the fact that my sister had a nerve related cancer although I think it was intermittent

[Toby2000]

The only reassuring thing is that cafe au lait marks tend to be brown and mine are more.. sort of yellower mixed with skin tone. I don't know

[nomorepanic]

Well we don't know - we are not doctor's.

[Toby2000]

I'm going to go tomorrow then and ask about it :(

[BlueIris]

Just be aware that the more often you go, the harder it's going to be for you to be taken seriously.

[Toby2000]

True but this could be grave so needs checking out

[BlueIris]

Keep telling yourself that, Toby.

Or rather, don't, but you're doubtless going to anyway.