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Thread: Bulbar ALS/MND

  1. #11

    Re: Bulbar ALS/MND

    No, but I don't think this is just anxiety. I'll be seeing my doctor soon to try to get a neuro referral.

  2. #12

    Re: Bulbar ALS/MND

    Today my tongue feels weird. Kind of like it's burnt by food, but I've not burnt it. It feels a bit clumsier and quivers a lot when stuck out too. Would sticking it out to check it a lot make it feel like this? Or could this be an early sign of weakness? Needless to say the throat is still so tight and pressured.

  3. #13
    Join Date
    Mar 2019
    Posts
    75

    Re: Bulbar ALS/MND

    The feeling of your tongue being burnt would be a sensory feeling, which ALS would not cause. Burning feelings can be attributed to anxiety though and the fact that your focused on your tongue so much it's no surprise your experiencing these sensations. I don't know anyone who could hold their tongue completely still while continuing to hold it out. Your holding your tongue in an unnatural position which stresses it. Your also stressing the muscles in the throat by holding the tongue out checking it which could be contributing to the tight/pressured feeling a long with the anxiety. I know it's hard when your mind is spiraling and questioning everything. Try and relax though and don't self check.

    Take care

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