Hi all, newbie here.

2 years ago I suddenly developed bodywide fasciculations/ twitches. They're pretty constant, mainly in legs but all over. I was in a panic once I Googled ALS. After 4 months of NHS waiting I got a clear neuro exam and EMG on both legs and an arm (clean aside from a few fasciculations in calf).

Fast forward to 2 weeks ago and I suddenly developed a tightness around my throat. Swallowing feels harder and tighter, kind of constricted or pressured. Sometimes my swallow feels delayed, or I have a sudden urge to swallow that catches me by surprise. I've also started having lots of ear crackling and popping which seems like eustachian tube dysfunction.

I now fear that it was bulbar onset ALS all along, and the EMG missed it as they only checked limbs. I think I have the start of dysphagia and the muscles in my ENT area are now weakening. I doubt if my doctor will take me seriously after the panic last time though. I don't know what to do. I'm sure this isn't right though.