Originally Posted by
HelloPanda23
No problem, but since I’ve gone through the same fear for 1-2 months, I’ll try and help you get over it again, because I know how consuming it can be. Twitching in ALS is the last symptom, as it’s caused much after you’re paralyzed and can’t move. Your twitching is something very common in people with health anxiety, benign fasciculation syndrome. Look, if you can stand on one leg, and complete your day to day tasks, then you don’t have ALS and you’re wasting a lot of money; last I heard it was $400 to get checked for ALS, maybe even more. The twitching some people experience before ALS isn’t caused by ALS, but rather by things like working out, being stressed out, and etc. People who get ALS sometimes assume that the twitches they had prior to the onset of the disease is related to ALS, but it’s not. Look, when you go to your neurologist, he/she is going to test to see if you can stand on one foot, if you can grab and hold certain things, and other simple things of that sort. After that, he’ll say that you don’t have ALS, and that it’s a waste of money to get an EMG. I however, believe you’ll force them for the EMG, of which is both painful and pricey. After this, you’ll feel confident until out of nowhere your symptoms get worse, and then you start to think your neurologist made a mistake while doing the EMG. This has happened to so many people in the ALS rabbit hole, and the only way to get over it is to either accept the possibilities of getting ALS, or lose of the fear as a whole. I’ve done both, and I’ve done it without any medical help. If I can do it, you can too. If you truly believe you need the EMG or the check up with the neurologist, then so be it, but in my opinion, it’s pointless because as I said even in the worst scenario, in which you do have ALS, it makes no difference to find out early, as the disease has no cure. Best of luck.