Very afraid

[pulisa]

Having the endoscopy will show if the crohn's is affecting her oesophagus and then she would be referred back to the gastro team which may give you more of a sense of security knowing that you had access in theory to a specialist rather than a GP? It may just be a case of reflux though especially as she sleeps so much. Could you try propping her up a bit more when she sleeps?

[Scass]

It’s good that they are arranging appointments for her. I know you’re frightened, but there’s nothing you can do at the moment, and we all know that fear doesn’t help.

Is your daughter out of isolation now? Have you discussed the fact that now your daughter has had it, that maybe your wife could stop living in her room?


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[pulisa]

I just wonder whether she is being sedated by these drugs far too much? It can't be good for her to spend so much time asleep?

[fishman65]

Hi guys. Thank you for your very kind input. You both make some very good points, but things have gotten away from me this evening so I'll have to reply tomorrow. There are so many things going through my head, what with my Dad frailer now too. Thanks for listening.

[fishman65]

OK I've got her an appt for a blood test, the 24th!! So not in a hurry. She is saying her voice is croaky so I'm assuming that's the crohns.

The amount of medication is a concern and I've often wondered which is having the greatest effect, the fibromyalgia or the medication. Her fitness levels must be as low as they can get. The consultant she last saw regarding the fibro said exercise was the key, she repeated this each time we saw her. I suggested short walks with myself in attendance but she won't.

Meanwhile the anxiety has been having a ball, lots of old patterns creeping back in.

[fishman65]

It’s good that they are arranging appointments for her. I know you’re frightened, but there’s nothing you can do at the moment, and we all know that fear doesn’t help.

Is your daughter out of isolation now? Have you discussed the fact that now your daughter has had it, that maybe your wife could stop living in her room?


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Sorry Scass. Yes our daughter is back at work, neither myself or Mrs F caught the virus. Of if we were exposed to it, our immunity must have fought it off.

[Catkins]

OK I've got her an appt for a blood test, the 24th!! So not in a hurry. She is saying her voice is croaky so I'm assuming that's the crohns.

The amount of medication is a concern and I've often wondered which is having the greatest effect, the fibromyalgia or the medication. Her fitness levels must be as low as they can get. The consultant she last saw regarding the fibro said exercise was the key, she repeated this each time we saw her. I suggested short walks with myself in attendance but she won't.

Meanwhile the anxiety has been having a ball, lots of old patterns creeping back in.

Would she do something at home? Yoga maybe? That might help her and if you did it too it might help with your anxiety? There are lots of things on YouTube.

[pulisa]

The croaky voice could be related to reflux?

I have a chronic pain condition and choose not to take medication on the advice of the pain management consultant and also because as a carer I can't be sedated. I do rely on stretching exercises to help me cope with pain connected to nerve ending irritation which mimics shingles. I know it's hard to understand but exercising helps you break through the pain barrier and get a greater tolerance so that it becomes more like a background irritation. To begin with I couldn't bear the pain and was afraid of it but now I take it in my stride and have got a lot more flexible as a result which is a good thing for a wrinkly!

But if she'd rather take to her bed then there's not a lot you can do. It's up to her ultimately. You do everything for her so she has no reason to change her lifestyle.

[fishman65]

Would she do something at home? Yoga maybe? That might help her and if you did it too it might help with your anxiety? There are lots of things on YouTube.

Hi Catkins. That's a good suggestion thank you. However, if she doesn't want to do something she won't. No amount of persuading will make a difference. It wasn't always like this, in the early days of our marriage she did her share of housework etc.

As for me I already do an advanced 'over 50s' cardio workout most days. Plus dumbbells and stretching exercises. I should probably try yoga too.

[fishman65]

The croaky voice could be related to reflux?

I have a chronic pain condition and choose not to take medication on the advice of the pain management consultant and also because as a carer I can't be sedated. I do rely on stretching exercises to help me cope with pain connected to nerve ending irritation which mimics shingles. I know it's hard to understand but exercising helps you break through the pain barrier and get a greater tolerance so that it becomes more like a background irritation. To begin with I couldn't bear the pain and was afraid of it but now I take it in my stride and have got a lot more flexible as a result which is a good thing for a wrinkly!

But if she'd rather take to her bed then there's not a lot you can do. It's up to her ultimately. You do everything for her so she has no reason to change her lifestyle.

You're not a wrinkly Pulisa. But yes being flexible has advantages.

I'm sure her croaky voice is her crohns as she's told me its in her throat too now. I've been to buy ice cream and yoghurts. She had mashed swede and faggots earlier.