Fearing ALS

[BlueIris]

I know it's tough, but what sort of hobbies or interests do you have?

[Seymour]

I usually like reading, watching movies and going to shows and museums.

But at this time I am so worried about my body that I literally can’t concentrate or find interest in anything.

[BlueIris]

Baby steps, maybe? Even simple phone games can really help.

Got my own health scare at the moment and I've had to put my hobbies aside because I can only concentrate on casual games.

[Seymour]

I’m trying to go for walks even though my legs are hurting and feel like spaghetti.

[BlueIris]

Okay, pro tip: stop reminding yourself and us how awful you feel.

There's a lot of value in faking it til you make it.

[Seymour]

I agree with you.

I’m wondering if the cortisol and adrenaline I’ve been pumping for months could be the cause of twitching and pain. Is this a known occurrence?

[KK77]

I agree with you.

I’m wondering if the cortisol and adrenaline I’ve been pumping for months could be the cause of twitching and pain. Is this a known occurrence?

How about the preexisting "physical" condition you have along with your anxiety disorder, rather than imaginary illnesses?

[Seymour]

Ankylosing spondylitis doesn’t cause this but it is an inflammatory condition and I will talk to my rheumatologist about my legs. Sounds more neuro though but could be inflammatory I guess.

[KK77]

Ankylosing spondylitis doesn’t cause this but it is an inflammatory condition and I will talk to my rheumatologist about my legs. Sounds more neuro though but could be inflammatory I guess.

How can you be so certain the cause is "neuro", especially since you've had a clear MRI? How do you know that your AS hasn't progressed - as you already have this condition?

You appear to assume many things, Seymour - most to fit your imagined fears.

[Seymour]

AS doesn’t cause that type of pain in the legs. Myositis might.

I walked 2.5 km today. Legs felt tired and a bit sore but better than last week. Am I right saying that with ALS things never get better even slightly?