So worried about what’s wrong with me...

[Carys]

I think my brain stem could be compressed I read that it can happen in chiari.. It can cause the heart arrhythmia, dizziness, and unsteadiness..

Then, indeed go to the doctor if you think all the problems are from your diagnosed condition. If you have Chiari Malformation then I am surprised that nobody is monitoring you, some specialist/consultant or other as you have this condition. (oh, and I just looked up symptoms and don't see heart issues associated with it)

[Hypo27]

Hypo, we know how you feel we have to live it everyday everytime you posts. Its the same overdramatic post

I assure you there’s nothing over dramatic about how I feel it’s that bad. Look up stories on people with Chiari Malformation maybe you’ll get an idea how bad it can affect someone.

[Hypo27]

Then, indeed go to the doctor. If you have Chiari Malformation then I am surprised that nobody is monitoring you, some specialist/consultant or other as you have this condition.

I am seeing a neurosurgeon about it next month unfortunately doctors just aren’t aware how bad this condition can be. My pcp has never even heard of it when I told him I had it.. My malformation is about 6mm which they classify as mild chiari but from my research some people with small herniations suck as myself have severe symptoms. Just like a lot of people have severe herniations and have no symptoms at all it’s a very puzzling condition..

[Carys]

Yes, I have read some things, and indeed this condition seems to be able to throw assorted physical issues at people, including emotional and psychological problems. So, contact your neuro consultant and go see them and tell them that you think it has got worse and list your symptoms. NO point in being on here talking to us is there really. They can then assess you correctly, decide what is HA and what is a real physical issue from your condition.

[Hypo27]

The last time I saw the neurosurgeon in February he didn’t think it was quite bad enough for surgery but said If my symptoms got worse it may be an option..

[Hypo27]

Yes, I have read some things, and indeed this condition seems to be able to throw assorted physical issues at people, including emotional and psychological problems. So, contact your consultant and go see them and tell them that you think it has got worse and your symptoms. NO point in being on here talking to us is there.

No I guess not I just feel so alone and hopeless I have no one to really talk to about it..

[Carys]

There will be Chiari forums about in the US, do a search and find some, then you can chat to people who do understand the condition. There will also be Chiari facebook groups.

[Hypo27]

They are wanting to do another cat scan of my head but I’m so scared I’m going to get brain cancer because I’ve had quite a bit of scans of my head already...

[Hypo27]

I’ve had over a dozen....

[Hypo27]

Should I tell them not to do the scan?