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  1. #1
    Join Date
    Jul 2016

    I had my PIP meeting yesterday and I don't know how it went :S

    After nearly 2 months of proving to CAPITAS that I have agoraphobia and do not leave the house they finally did a home visit. Pure stress.

    The told me that because I indicated going outside causes "frustration" that was not evidence that I can not leave the house. They didn't even contact my medical professionals until after I appealed their decision to not give a home visit.

    The lady turned up on her own with a laptop. I hadn't slept well and my partner woke me up so I stumbled into the living room trying to keep my eyes open. She asked me questions that I'd already answered on the form and about my condition. She asked "How does aspergers affect you?" ... I told her I have no idea, I am normal, the rest of the world thinks I'm not. That's the only answer I could give her.

    But here's the thing ... this lady didn't ask any sorts of questions that psychiatrists, or medical professionals, ask. There was no questionnaires, or grading scales used. It felt very unprofessional. I've had countless meetings with professionals related to mental health and their questions are in depth.

    I was a tired mess yesterday. I don't think I answered the questions correctly. I was pinching myself and checking my heart rate the entire time because I just wanted to run out of the room. I don't think she'll take me seriously at all. Nobody takes anxiety, depression or aspergers seriously. They don't understand the impact it has on daily life. Even when I am feeling good, they day is still a struggle. I don't even think I was in the position to be answering the questions because I'm not a good speaker. I clam up when speaking and say the least words possible. This means although I know what I mean when I say something, to others it could be interpreted completely different. It's a common "problem" of mine.

    Why can't they do meetings over messenger while in the same room? I feel I could explain myself so much better in text. I can write for England, but I dislike talking.

    I feel like the person that done the assessment didn't do a correct assessment. At least not by the standards used by real medical professionals. So it's basically her "judgement" on whether I am awarded PIP. And I don't think she was qualified to even make that judgement.

    I haven't got a response yet, but I'm expecting to have to appeal. It ****ing sucks because I have a genuine problem and I'm in a financial mess because I can't work. I had a bad day today at home. Almost spiraled into self harm but I averted it by using a pen to draw on my arms instead. It actually worked! The stress on my head at the moment is terrible. I feel so flat and deflated. I'll save that for another thread.

    Something really needs to be done about these so called medical professionals that are able to over rule a doctor's decision. I get there's people trying to abuse the system, but it really ****s it up for those of us who have to unfortunately rely on the system in times of need.

    Trust me I'd rather be working. But I don't know what day tomorrow will be and I can't commit to client jobs, or a 9-5. I tried it recently, and I had to refund the client because my head wasn't in it.

    I'm 35 this year and I feel like a complete failure. I'm uni educated. Insanely smart with computers and programming. Yet I am now in a situation of begging for benefits.
    I write a blog: Irrational Brain

    I'm not insane. Everybody else is.

  2. #2
    Join Date
    Oct 2019

    Re: I had my PIP meeting yesterday and I don't know how it went :S

    I wish you all the best i had a difficult time with benefits i lost everything i had my DLA stopped when being assessed for PIP and then had all the PIP assessments and went to tribunal and i lost. It broke me. three years with no claim or acknowledgement for my mental health after i had been on DLA for approx 8 years. I met a wonderful psychiatric nurse last year who basically told PIP to approve my application, not assess me or visit me as i was too high risk, they rang me i cried for the whole conversation the lady was a mental health nurse which is who should be doing these assessments and basically she awarded me my benefits for the next 4 years no questions, my issues have actually got worse since then but thankfully im in receipt of them its helped a little not to have money ontop of everything else to worry about. honestly good luck i wish you all the best x

  3. #3
    Join Date
    Oct 2019

    Re: I had my PIP meeting yesterday and I don't know how it went :S

    my brain is not registering anything.... this was several months ago? how did it turn out? x

  4. #4
    Join Date
    Jul 2016

    Re: I had my PIP meeting yesterday and I don't know how it went :S

    They gave me low rate PIP, which is 100 extra a month as they acknowledge that I have agoraphobia.

    But, benefits are awful. I can't live on this money. Since I've been on benefits I'm in all sorts of financial trouble.

    Mid December I've got a large contract for a web development project so I'll be off them in a couple of weeks. I am hoping that not having the benefits behind me will push me more to work hard to look after the family.

    As you know from my recent posts I'm at the end of the line in terms of help from professionals and I'm now fending for myself and picking myself up. It's working well.

    I was told to appeal the PIP decision by the mental health team. But I can't be bothered with it all. It's hassle and headache.

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