Twitchs for 27 months. scared als! :-(

[Carys]

I read everywhere that it takes an emg to exclude the als and my neurologist does not give it to me. I just had a clinical strength test. is it possible to have 27 months of twitching and be it benin?

You've seen a neurologist, they don't think you have ALS. I have answered above lolo that is absolutely possible to have 27 months of twitching and it be benign, infact 27 months of twitching with no other neurological changes is DEFINITELY benign.

If you had ALS, after over 2 years with twitching you would be definitely in a wheelchair with a slow or fast progressing form. Its isn't ALS. You can search on this forum for ALS (or MND as we call it here in the UK) and search for twitching and you will find lots and lots to keep you going for hours. Oh, and Hypo is right, it is very uncool (an understatement) to be bothering diagnosed people on a forum for this condition.

[Fishmanpa]

Read THIS as many times as you need to.

Positive thoughts

[lolo95fr]

what worries me is that my legs feel weird but I can walk miles or run. I also escape things from hands like keys and obviously it is a symptom of the als :-(

[Carys]

what worries me is that my legs feel weird but I can walk miles or run. I also escape things from hands like keys and obviously it is a symptom of the als :-(

You've seen a neurologist, they don't think you have ALS. I have answered above lolo that is absolutely possible to have 27 months of twitching and it be benign, infact 27 months of twitching with no other neurological changes is DEFINITELY benign.

If you had ALS, after over 2 years with twitching you would be definitely in a wheelchair with a slow or fast progressing form. Its isn't ALS. You can search on this forum for ALS (or MND as we call it here in the UK) and search for twitching and you will find lots and lots to keep you going for hours. Oh, and Hypo is right, it is very uncool (an understatement) to be bothering diagnosed people on a forum for this condition.

[Hypo84]

what worries me is that my legs feel weird but I can walk miles or run. I also escape things from hands like keys and obviously it is a symptom of the als :-(

Nothing anyone writes here will help you as your brain is not processing information in the rational way.

Find some good therapist and seed professional help. If necessary, take meds.

[Carys]

....but it would certainly help if you read what we are writing Mind, I think using English might not be easy ?

[Fishmanpa]

what worries me is that my legs feel weird but I can walk miles or run. I also escape things from hands like keys and obviously it is a symptom of the als :-(

Clinical Weakness—ALS is about failing, not feeling.

ALS is about failure—falling down, being unable to stand on your toes, being unable to button your shirt, being unable to lift your hand, etc. It is not about these things becoming more difficult. It is about these things being impossible… no matter how hard you try. If you can do normal things, but it is more difficult, you do not have ALS. If you used to be able to do 100 curls and now one arm can only do 50; that is not ALS. If you used to run 2 miles and now you can only run 1; that is not ALS. If you used to run 2 miles and now you can’t lift up one of your feet, you may have clinical weakness.

It really does happen that something stops working all of a sudden. It is generally one muscle so it will not be a whole limb but the movement done by that muscle is suddenly gone. An example is a calf raise. It won't happen. Think of it like your wifi signal. You are surfing the net, then signal is lost and you can't do anything online no matter how hard you try or how long you wait for a page to load. This is what happens to a muscle in beginning ALS it has lost the signal from the nervous system that tells it to work


Twitching

If you have muscle twitching and the internet says that is a symptom of ALS, pay attention. Twitching (fasciculations) is sometimes a symptom of ongoing ALS. It is seldom, if ever, a first symptom of ALS (especially if it is all over your body). Twitching is very common and is frequently caused by too much caffeine, Rx meds, fatigue, over-exertion, anxiety, stress, and many other common causes If you have twitching without clinical weakness, atrophy or hyperreflexia, your twitching is probably not from ALS, which is a very, very rare disease..

This is taken from the post of a member who saw Dr Orla Hardiman a leading ALS specialist. "I asked her about contradictory information about fasics being a precursor of MND. Here is her answer 1. As you know, fasics are common in patients with MND. But we don't look for fascics to suspect MND, we look for weakness, atrophy or change in reflexes.2. Fasics themselves are no real indicator of MND or any other disease.3. In most cases, fasics are of benign origin.4. I have NEVER had a patient with BFS who progressed in MND. And I had a lots of MND (and BFS) patients in my clinical practice.5. In most cases PALS don't even notice fasics by themselves. Usually their spouse, or someone else is the first one who notices them."


Anxiety

Anxiety can be a real problem that can endanger your physical health. It is what leads many folks to this forum, but it is a self-fueling fire—the more anxious you become, the more twitches you will have, the more you obsess with perceived weakness in your arm or leg or hand, the more dents you will find… and the more you will become convinced you have atrophy. If you can’t stop using the internet to diagnose your problems, or if you cannot stay away from this forum, that should tell you something important about your mental health.

Positive thoughts

[NancyW]

Maybe seeing the REAL ALS will help you see what you DO NOT have...

Watch "Stairs 4-7-13 (Part 2)" on YouTube
https://youtu.be/vf-L6kiEtJk

[lolo95fr]

thank you for all those informations. so you think it unlikely to have als with 27 months of twitching all over the body without any other visible sign? I'm afraid of having hidden muscle weakness. 27 months of twitch is long and it haunts my mind. the more I think about it the more I twitch. moreover, I do not have twitch when I am active. I have twitch at rest only. it looks like popcorn!

[Carys]

Read them again lolo, really read them carefully, they answer your question. I think you are not actually really reading what has been written here.

so you think it unlikely to have als with 27 months of twitching all over the body without any other visible sign?

The sooner you accept this is purely benign and a product of anxiety, the quicker it will disappear. You need to ask yourself this question, why are you wanting the thoughts of complete strangers on the internet, when you have had a consultation with a neurologist who says it definitely IS NOT ALS ?!

Please do not even think about returning to bother people on an ALS forum, but those very people who have the condition dont think you have the condition either.