Twitchs for 27 months. scared als! :-(

[lolo95fr]

if I have read everything, I swear to you. right now my left calf twitch, it's like that for 27 months. I hope this is not a sign of als in progress and that one day it will disappear. Is it possible that it is benign and that it lasts for life?

[Carys]

The reason I keep saying you don't seem to be reading what people are saying is that there are numerous posts here, some with links to benign fasciculation syndrome, one with a large link from FMP about ALS. There are many repeating over and over that you definitely don't have it and the reasons for that and yet you come back with this, as if we've not spoken at all.....

I hope this is not a sign of als in progress and that one day it will disappear.

Is it possible that it is benign and that it lasts for life?

I've personally answered this twice. It is CERTAIN it is benign, there is literally NOTHING ELSE IT COULD BE OTHER THAN BENIGN. After 27 months if you had a slow progressing form of ALS you would be in a wheelchair unable to move some body parts, and in some fast moving ALS cases - already Dead. It will last as long as your anxiety lasts. Then ALS community a neurologist and all of us say that this is NOT ALS.

Now its over to you to say its not ALS.

[Carys]

Now, lolo, go and read other peoples threads on here. Do a search and you will have enough to read for months and months. ALS/MND is a common theme on here, infact there are many active threads right now. People talk of EXACTLY the same things as you, same symptoms EXACTLY (see Seymour for instance).

[lolo95fr]

thank you again for your words. I am also on facebook groups on fbs. I see that all the people who live have an emg to exclude the als, to see several emg. I saw 2 neurologists and 3 family doctors, they do not offer me emg. should an emg be required or can it be excluded after a certain time? thank you for everything

[Carys]

I saw 2 neurologists and 3 family doctors, they do not offer me emg.

They haven't offered you one because they don't think you have any reason to need one, it would be an unneccesary test. They have trained for years and years in their specialist fields, there are clear and obvious indicators of ALS which they can easily test for with manual checks and through discussion, and you don't have them. If after those two consultations they thought there were some doubts, you would be offered an emg. SO, to repeat, If any of those family doctors or those two neurologists thought there were any indications that you have anything matching ALS they would have offered an EMG. They were right not to offer one, as now over 2 years later there has been no progression in your 'symptoms' at all. You clearly have a case of Benign fasciculations and they are all right.


Good news isn't it, three family doctors and two neurologist are absolutely of the belief that you don't show anything of concern that requires an emg. All those other people who have had an emg have had symptoms that have caused concern to their specialists, yours don't.

What is fbs ?

[Carys]

Lolo95fr, we have SO many people here like you, so many that have come over the years as this is probably the most common health anxiety theme we see on no more panic. We have heard and seen the pattern so many times before and you match the Health Anxiety patterns perfectly.

[lolo95fr]

thanks for those reassuring words. the doctors do not care about the fasculations whereas me it destroyed my life. I have always been hypochondriac but I have never been so scared since my fasciculations 27 months ago

[Hypo84]

The fact that fasciculations are destroying your life is your choice.

[BlueIris]

thanks for those reassuring words. the doctors do not care about the fasculations whereas me it destroyed my life. I have always been hypochondriac but I have never been so scared since my fasciculations 27 months ago

The doctors don't care about the fasciculations because they're medically insignificant.

[Carys]

the doctors do not care about the fasculations whereas me it destroyed my life.

You need to now live your life despite the fasculations, and you will find that one day they are gone, reduced hugely or they might come and go based on your anxiety level. The reason your doctors 'don't care' is because it is not a sign of anything wrong with you, APART from anxiety. The reason why they have 'destroyed your life' is because of your constant fear that you have ALS and reenforcing that fact month after month after month and not accepting the conclusion of 5 highly trained medical professionals. There is no need for them to destroy your life, they need to be ignored/accepted. There is no sinister reason for the symptoms you are getting, and myself, like many others have had them for many years.


Edited to add - I see two 'colleagues' LOL got their responses in before me, but said the same and far more succinctly as I was too busy typing many sentences.