Update On My Situation - Just Had EMG

[darkside4k]

Sadly my muscle pains and twitches have continued and are causing me quite a bit of problems. The Rheumatologist has referred me to a local hospital for a muscle biopsy to determine if I have any muscular dystrophies, mainly Becker's Dystrophy as they already did some blood tests on some other forms of dystrophy.

He says if this comes back normal there isn't much else he can do on his end but he thinks it is a good idea to get this biopsy based on my symptoms. I'm pretty bummed, as I was hoping after my clean EMG the symptoms would go away if they were anxiety based but I don't really think they are anxiety. They are too constant and consistent and too painful.

If this muscle biopsy comes back normal I will still have some worries about MS being a possible cause, but I will have to talk to my primary care doctor about that.

Lately the hotspots have been behind my knees and in my calves. Behind my right knee is sore pretty much 24 hours a day. Then I get pains all up and down my legs and last a few seconds and go away, then come back a few minutes later, etc.

[KK77]

And how did you become aware of "Becker's Dystrophy"?

You're lucky to be able to afford all these (unnecessary) tests but I totally disagree that anxiety can't cause your symptoms. And the rest...

[Carys]

Yeah, you keep on searching Darkside, one day...one day...something will appear ey.

[darkside4k]

The doctor mentioned Beckers. I had never heard of it.

[pulisa]

The doctor mentioned Beckers. I had never heard of it.

But I'm sure you've researched it thoroughly now.

You can still cling on to the MS diagnosis if miraculously this latest biopsy comes back clear.

[Carys]

muscle pains and twitches have continued

Oh look, your very first thread on this site almost exactly three years ago - December 2016. You complain about twitching, fatigue, tightness, muscle pains in your hands, fingers, arms, thighs and calves, sounds like the same 'illness' you have now Darkside. So, you've come a full circle in the last three years, with a large number of terminal illnesses in between of course, but now you are back to the same thing you started with. Go back and read it - learn something for once ! Oh don't tell me - this time is different ? I honestly can't believe your doctor is indulging you like this.

https://www.nomorepanic.co.uk/showthread.php?192302-Worried-I-Have-ALS-Arm-Fatigue

[pulisa]

I think it's a question of the patient needing to have a sense of getting his/her money's worth from the consultation? The more tests the better and more "thorough" the consultation, thinks the patient.

[MyNameIsTerry]

And how did you become aware of "Becker's Dystrophy"?

I think I tried a pint of that once!

[Carys]

Nice little emoticon you found there Terry lol You are right it does have the sound of an ale lol

Pulisa - yeah you are probably right. I was thinking though of Darkside's GP/PCP, who seems to give referrals willynilly.

I find it interesting Darkside, that you keep repeating the word 'SYMPTOMS' , the definition being - a physical or mental feature which is regarded as indicating a condition of disease. What you have aren't symptoms, you should stop using the word which validates your belief that you have some illness to uncover. What you have are sensations and feelings.

[KK77]

I think I tried a pint of that once!

No wonder you had the "shakes"