hugs

[pulisa]

I'm terribly flawed, Carnation and am only doing what any parent would do but thank you xx

Another bad day but tomorrow will be better.

[KK77]

I'm terribly flawed, Carnation and am only doing what any parent would do but thank you xx

Another bad day but tomorrow will be better.

Then all parents are flawed as you can't do any more, Cmrd P.

I really hope the med switch will make a difference and I'm pleased they're making an effort to get him well again.

[Carnation]

That's called being human Pulisa

[SarahNah]

Just wanted to say I'm thinking of you both still x

[Carnation]

Me too xx

[pulisa]

my son is now home but it's been so hard and I just haven't coped. I've got to get my act together and try and get some "normality" back.

The "intensive support" promised by the home treatment team following discharge has been a joke. You're on your own basically. My daughter's anxiety is markedly increased and it's not fair on her.

I've managed to arrange some private trauma therapy in jan for my son-the hospital here don't cover ASD and PTSD.

Sorry to be low-I'm knackered. Thanks so much for your continued support xxx

[Carnation]

I was quite shocked to hear that your son is home already.
What possibly can be achieved in such a short space of time?
I think you've done the right thing in seeking private help, not that you should have to. But it looks like you'll have to scan for more outside help off your own back.
Have you tried MIND?
Try anything you come across, it's no time to try and do it all yourself.
And for yourself, you need help, support, a break.
Anything going, you take it!
If I was still living in your area, I'd be over helping you and giving you a break, but there are people that will help, it's just finding them.
Don't stay in the dark Pulisa, let us be on here to support you and remind you that there are people on here that care! xx

Theres also an organisation called 'Think Action', they might be worth a look. x

[Scass]

I hope you get some help Pulisa. Perhaps Mind is a good idea, at the very least they could signpost you to an organisation that offers the right kind of support.

I’m sure you don’t know where to turn, so I’m glad you can write your thoughts here if need be.

I think of you & your family often and am always wishing you all well x

[KK77]

my son is now home but it's been so hard and I just haven't coped. I've got to get my act together and try and get some "normality" back.

The "intensive support" promised by the home treatment team following discharge has been a joke. You're on your own basically. My daughter's anxiety is markedly increased and it's not fair on her.

I've managed to arrange some private trauma therapy in jan for my son-the hospital here don't cover ASD and PTSD.

Sorry to be low-I'm knackered. Thanks so much for your continued support xxx

Makes me angry that your son is expected to "cope" so early in his treatment/illness and family are left to pick up the pieces. Surely he deserves to be given supported living accommodation? How can you possibly cope with both your son's and daughter's needs, not to mention your own? It's too much for any parent.

Please look into support groups mentioned by Carn above and perhaps speak to son's MH team again because they can't simply abandon him like this.

Sending love and strength, Cmrd P.

[pulisa]

Well technically he hasn't been abandoned by the MH services because he has been referred back to the CMHT (for what that's worth) but they don't offer the specialised therapy he needs (and they admit they don't). So I could push for a tertiary referral to the Maudsley which will have to go through the local CCG and will take months or I can pay. I've chosen to pay because of what has happened and because an appointment with the right psychologist will give my son hope and he desperately needs to have hope sooner rather than later which will be too late. I realise that I'm lucky to be able to afford to pay for a prompt appointment but tbh this could be treatment which will help my son to heal and it's essential that i give him this opportunity,

I think his ASD complicates things with standard support services such as MIND etc. He's already had the standard CBT/Mindfulness/Coping Strategies package which has proved ineffective. The addition of risperidone to the venlafaxine has helped with the suicidal element and he hasn't actively self-harmed for 5 days so the hosp stay has helped to implement and stabilise the meds but...urghhh trying to make the doctors understand how he functions has been a trial.

Thank you so much for your support. It helps to have a rant..I do feel I'm "losing it" but can only be grateful that my OCD keeps me going! xx