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Thread: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

  1. #1
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    The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    (okay, this is super duper long and self-absorbed so I'm sorry about that! I just don't know how to explain it other than from my perspective! Hopefully, though, someone finds my experience useful in their own recovery!)


    Hey, there.

    Having recently come out of a prolonged period of pretty aggressive, bowel-related health anxiety, I thought I’d try to chronicle my experiences. I do this as an exercise in cathartic reflection for myself but also, I hope, in a way that others might find enlightening or useful in some way. I’ll try to keep things as sanitary as possible but it’s worth noting that this post contains reference to poo, throwing up and cancer fears. Which I suppose is to be expected here.

    So, for the sake of context: I’m a 33-year-old male from the UK who has experienced a lifetime of anxiety-related problems. I was one of seven children born to an endlessly loving yet extremely anxiety-ridden mother, whose neuroticism was passed down to or otherwise learned by myself and the majority of my siblings.

    My particular concerns revolve around throwing up, linked as I think they are to what I used to perceive as terribly scary things: dentist trips, long stints away from home, returning to school - all things which used to induce great panic and thus great puking, not just in me but my brothers and sisters, too. This was, I suppose, reinforcing behaviour. I’ve always had a very pronounced phobia of throwing up, less because of the sensation of doing so but, I suspect, the spectacle of it all. I am a very loud thrower-upper.

    Anyway! That’s just background! On to why I’m writing here!

    In March of last year, my mum died. I had the misfortune of discovering her in the process of doing so and by that point I couldn’t really do much to help besides call emergency services. It was not a nice thing to go through but I had, I thought, handled it well enough. Of course, this was only quantified by outward stoicism and not really by any sensible measure; lo and behold, it seems grief always finds a way to manifest itself.

    In the following June (the 19th, to be exact), I discovered that I couldn’t shit. Well, I could. But it was far from satisfying - and not just because I’m a crap completionist. These would be considered feeble faecal offerings even by a hamster’s estimation, leaving me still feeling as if there was plenty more to unload but being simply unable to do so. Something was blocking it. This was a sure thing because what I produced was thin. One time it even looked like the way ice cream curls when scooped out of the tub. In this case, Haagen Ass.

    I had always been a very solid dumper - it wasn’t an aspect of my life that ever really concerned me - but now, nothing was coming.

    I gave it a day. I gave it two days. By the third day I was officially wallowing, the initial worry rapidly replaced by abject, existential terror, thanks in no small part to the awful decision I made in Googling the symptoms. And then, worse still, exploring every article I could find related to bowel cancer in the relatively young. Google was only too happy to stoke my fears, plopping websites that validated my concern at the top of each and every search result and I, for whatever reason, couldn’t get enough of them. I read until I felt sick. But, for once, throwing up wasn’t my primary concern.

    The rest of June was spent pestering the doctor. I went three times the following week, was prescribed some laxatives but, although they increased the volume of my now liquid output, this did little to solve the problem when I was without them. I still couldn’t shit unassisted by medication. Certainly not properly, anyway.

    A week or so after the problem started, I had convinced myself I was losing feeling in my legs. That the tumour I unquestionably had lodged in my guts had grown into contact with my spine in a week. And while this could have been rationalised by the fact I was carrying a metric tonne of crap in my system which was adding pressure to my hips or whatever when sat down, I was having none of it. I had more or less stopped eating out of sheer worry by this point. And coffee, normally a key component of my daily diet, was out of the question. Isn’t it funny the ways we find to make the situation worse?

    This persisted through the rest of June and into July, when I finally experienced what a normal person would have seen as a reprieve worthy of long-lasting comfort. Having exhausted my capacity to worry following weeks or non-stop fretting, I did, at last, manage to poo properly. Just once or twice but the output was, for lack of a better word, normal. Full in shape. It was no coincidence that this happened following a period of proper eating and less worry. I was, as you might expect, on top of the world. I had cheated certain death for the six-hundredth time in my life. In those moments of euphoric relief, I could almost consider myself thankful of my crippling anxiety disorder - without it, such highs would not be possible. Of course, gratitude was fleeting when the problems inevitably began again.

    Narrow, difficult stools. Worse still, the very occasional onset of explosive diarrhoea, seemingly with no real consistent cause. I was more worried than ever before - so much so that I began to write memoirs intended to document the two things I did in my life. I couldn’t get out of bed some days. I watched the making of Titanic like three times in a day and I still don’t know what unholy misery could cause a person to do such a thing.

    A brief detour as I talk about my mum for a bit. I’d hope it goes without saying that I loved her immensely, but such sentiment shouldn’t preclude one from speaking honestly about a person. She was a worrier. Someone whose life was ruled by anxiety, rendering her a recluse unable to ever go out and socialise or even leave the house outside the comfort of her car. Someone who overflowed with love but who could never muster the courage to take a risk or challenge her fears. I always feel bad for reflecting on her in this way but it is certain I looked on her lifestyle as one to avoid. Thus, I would always try to confront my fears; I can’t really recall many agreed appointments or social situations I avoided for fear of fear. I say this not to try to big myself up or anything - I am an incredibly weak person in all sorts of ways - but simply to try to explain my own situation in relation to hers.

    My mum, on the other hand, was unable to do this. She had perfected the art of exceptionalism, believing herself to not need to challenge her demons because she was “happy” being a hermit. She didn’t need to pursue anti-depressants because they “probably wouldn’t work” for her. She is exceptional too, I suppose, in that she’s the only person I’ve ever heard of who died of a broken leg.

    Her inward nature and lack of exercise (as well as vitamin D and varied diet) had caused severe osteoporosis, leading to a fall and the breaking of her tibia. This lead to her remaining bed-ridden for the final few months of her life, her refusal to properly engage with rehabilitation or medication eventually culminating in a blood clot that traveled to her lungs, killing her. It was as needless as it was sudden. Without the will to persist, each new low became my mum’s new standard.

    I entirely appreciate that it sounds as if I speak bitterly of my mum’s death. And in a sense, I am bitter about it. I am bitter about the ease with which anxiety can come to define our lives. How it can brutalise us physically. How I can still be struck by it so emphatically, even after nearly three decades and countless false milestones in my fight against it. In truth, I worry that the struggle with anxiety is less a “fight” and more a lifetime of trying to shield yourself from its blows. Something I dearly wish my mum had been more equipped to do.

    Because it is of course possible to survive anxiety. It’s possible even to thrive. And while it would be generous to consider myself as “thriving” I am now, a year later, doing better than I have perhaps ever been doing. Because, upon yet more reflection of my life prospects in relation to my mum’s, I managed to peel myself out of bed enough to start attending therapy. I stopped hiding from what I should have committed to years ago. I stopped thinking I was somehow an exception to its benefits. And it was the best decision I have ever made.

    Progress wasn’t immediate - I was apparently too riddled with neuroses for the standard mental health professional and was quickly passed on the CBT clinic - but it was encouraging. Hell, I felt good just making the decision to engage with the care. Like I was, for the first time in months, taking some measure of control over my situation. My therapist, I believe, was some sort of angel. Someone who I could discuss issues with frankly but who would not allow me to slip back into old ways of thinking. Someone who would point me in the direction of solutions and prepare me for the work needed to achieve them, whilst making clear that the work was mine to do. To put it simply, CBT (or cognitive behavioural therapy) was a godsend and something for which I thank the NHS every day I get out of bed.

    Sertraline played more than a small part in helping me. Like my mum, I was reluctant to start with the medication, believing it at best wouldn’t work or would at worst make me throw up. But its effects (likely on a placebic basis to begin with) were felt immediately. I appreciate that the medication doesn’t work for everyone but again, the taking of some sort of ownership over my situation made me feel good. It paved the way for the chemicals delivered to my brain by the pill to make a more meaningful difference to that erstwhile imbalance. And before I knew it, I was no longer stuck in bed. I was able to concentrate more on work. And, most importantly of all, I was able once again to take dumps of considerable note. It sounds magical, I know. And there’s no real way for me to explain the starkness of the contrast without invoking an unfeasible whimsy. It simply helped me quickly and emphatically.

    it had not occurred to me that stress and, perhaps more pointedly, grief could affect ones body so physically. But indeed mine had. In my perhaps irresponsible handling of my own grief over my mum’s death, things had apparently just.. tightened up in me. I never saw a physician who did much more than stick a finger up my arse (an uncomfortable first) and this is merely speculation of my own and my therapist, but it was surmised that things were clenched up there. That when I was given the opportunity for my mind’s tension to ease, a tension I didn’t expect in my body was similarly loosened. I stopped worrying about the nature of my poo and with that absence of fear came a return to normality. A normality sustainable by the grace of CBT, sertraline, and an understanding of my body’s relationship with my mind.

    It’s ever so strange the way in which our anxious mind can exist apart from our more rational, sensible mind; a thought I commonly had in rare moments of sobriety was that, were someone to grill me, gun to head, on whether I TRULY believed myself to have cancer, I would answer no. I knew, somewhere in me, that I was fine. And yet I could not stop myself from operating as would a pessimist, hearing and believing only the very worst while dismissing that which made the most sense. I found new and exciting ways to interpret shoots of hope as being spectres of my imminent death, despite the part of my brain that understood reality trying in vain to rationalise them. Perhaps that brief period in July during which I produced big poo was somehow the tumour just being surprisingly considerate for a cancerous growth and making way for its passage? Perhaps the reason things are going on so long is because it would take eighteen months like it did for that YouTube guy to develop more scary symptoms? But now, nearly eighteen months since the problems began, I don’t need a gun to my head to accept I’m not dying of cancer.

    A side effect of this episode is that my fears are preoccupied a lot more with bathroom-related things than with throwing up as of writing this. I suppose that’s just the adaptive quality of anxiety, finding a new angle of attack. I certainly haven’t beaten it but, thanks to medication and my experience with therapy, I know how to deal with it a lot more effectively than before. My only regret is that I didn’t take the plunge sooner, just so I could have demonstrated to my mum that seeking help isn’t quite as scary as she thought. In truth, as we -both- thought.

    At the very least, perhaps some therapy-shy reader might find some encouragement to pursue the same assistance that has helped me so utterly.

  2. #2
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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Hi
    i just want to say well done for sticking to your therapy, getting help and getting better. It’s a massive achievement for anyone suffering from anxiety.
    My mum passed away nearly 4 years ago from bowl cancer and just like your mum in a different way opted for no treatment , too scared to be in hospital or feel so bad after chemo. What I m trying to say is that we all make choices in life and I felt bit angry at my mum for choosing to die than to stay with us longer , but I understood her fear.
    I have fears to go to places , funnily enough connected to toilets as when I get anxious I get sudden urge to pee or even go for number two , but I have been trying to deal with it for past 14 years with CBT & meds too. Some days are better than others , but I m just trying to plod along.
    Anyways well done!

  3. #3
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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Thank you! Yeah, it's a real sickener when you see someone you love on the decline and not doing things to help themselves to manage it properly, even if I can empathise with them. Hey, maybe -because- I empathise with and can relate to it is what makes it that much harder. You end up feeling just so helpless in the face of it all.

    Anyway, thank you for reading all of that, haha. And for your kind words!

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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Well said, thank you for your post. It made me feel better about a few things I struggle with.
    __________________

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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    I'm honestly really glad to hear that. Health anxiety is such a daunting, seemingly inescapable thing - mainly because it masquerades as whatever our worst fear at the time is.

    Something I've found of some help is trying to sorta document how I'm feeling when things are okay. I have a sordid word document with vague details of times that bathroom trips have been perfect - just something intended for future-me to read and understand that, even if bowel troubles rear their head again, it's once again just a temporary thing.

    All the best!

  6. #6

    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Dommy, thank you.

    That's honestly the best thing I've written in a long time. I'm in a similar boat as to where you were a year ago but also grew up with a mother who has currently had an undiagnosed 'brain tumour' for the past 30 years and is still alive. Weirdly shes not had that knock on the door form the people at the Guinness book of records yet to recognise the longest brain cancer without treatment and not dying record. I'm sure thats why I have such extreme health anxiety as I do right now.

    I'm having weird bowel symptoms that have obviously made my irrational mind think the worst when in reality every professional person I have seen thinks differently. I even experienced the dreaded DRE last week and whilst its not something I'll be indulging in regularly it wasn't half as bad as I thought considering I got that small reassurance (that inevitably goes tits up a few hours later). My symptoms have too been put down to tight muscles in that general vicinity and yeah, you know what? Makes loads of sense..... to a normal person! I'm 5 sessions in to CBT and taking meds. I'm still not sure about them but the CBT is proving interesting if nothing else.

    Anyway keep fighting the good fight. Its good to know we aren't fighting this alone.

  7. #7
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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Hey there!

    Aren't humans such weird and neurotic creatures? Able to sustain irrational fears for literally decades despite all evidence contradicting it. One of the drawbacks of having the capacity for abstract thought, I suppose! Our ability to fret over things that don't actually exist would be impressive if it wasn't such a drag!

    Haha, yeah, after my DRE I remember feeling extremely encouraged. Before I inevitably found a way to believe I was somehow the exception to my physician's expertise. He'd definitely gotten it wrong - I knew so because I'd read on the internet about other people whose doctors also didn't take it seriously. I, like them, was somehow the exception to logical deduction.

    I honestly had no idea that ones bowel muscles could be tense and tightened to the point of not allowing anything to pass easily through. But it wasn't until I was able to relax a little bit and things were able to return to normal that even I was able to take comfort from clear evidence. And it was this that really helped pave the way for my recovery. As well as the fact that somebody on this forum - I can't remember who - pointed out to somebody else that cancer symptoms don't tend to fluctuate. They don't come and go. And it was by internalising this entirely rational, core principle that I was able to analyse my perceived symptoms a lot more clearly, I think. So if I managed to have a few days in a row - or even really one or two days - where things seemed normal, it didn't matter if the symptoms returned afterwards because cancer just didn't fluctuate in that way. Once you had the symptoms, all they did was get worse, as far as I understand it.

    Do try to stick with medication and CBT, dude! (If they're not having a really adverse effect on you, of course.) It definitely can take a while for their effects to start being a benefit (I was relatively lucky in how my mind responded to sertraline and I appreciate it isn't at all like that for everyone) but it's about building up a way of thinking to better equip one against intrusive thoughts and whatnot. It was certainly a key part of how I was able to pull myself out of at least the bowels-related stupour I had basically submitted to (even if, again, I understand that everyone's minds are different and respond differently!).

    Thanks so much for the kind words and sorry for waffling on again! This is all a bit of a stream of consciousness exercise for me because I've never really talked about any of this in this format before but I'm really keen to impart advice I found useful to people going through similar things! I've far from conquered my anxiety in the general sense but I have, I think, managed to survive this spell of bathroom-related fears and resumed normal service in that respect. Which, 18 or so months ago, I would have done anything for.

  8. #8
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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Hi Dommy
    Your post was very interesting, HELPFUL and actually fun to read. You are a very good and entertaining writer (I hope you won't be offended by this comment as I realize you were explaining very difficult things for you).
    I've had anxiety all my life, sometimes it has completely limited my life and others times I've got by ok. Sometimes it's been mainly panic attacks, others agoraphobia and in recent years ocd and health anxiety, it's truly amazing how it seems to morph. In recent years I have had some real health problems and I'm now waiting for some test results and I am in a terrible way. I have so many physical symptoms that just trying to lead a normal life is very difficult.
    What I'm finding really helps is some form of exercise every day. Even if every muscle in my body hurts I go swimming or cycling and it definitely helps.
    Anyway I seem to be just rambling, so yeah, thanks for your post

  9. #9
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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Hey, dude! No, that's not upsetting at all! It's a compliment, haha. So thank you! <3

    Yeah, the way anxiety finds new and horrid ways to make your life misery is really quite astonishing. Although I've definitely had bouts of health anxiety in the past - albeit nowhere near as intense as this latest period of bowel-related anxiety was - OCD is something that, like for you, has only recently developed over the last couple of years for me. And perhaps the worst part about it is that, no matter what positive things happen or what evidence to the contrary of your fears you receive, you always end up finding a way to keep worrying. Your fears adapt so that you stay worried.

    Exercise -is- great, yes! Something I also found that helped me was starting to walk and do weights a lot more! And just using and tiring your body out is a really good way to take your mind off stuff. It's something I really have to start doing on a more consistent basis. Fit body, fit mind. Or so they say, at least!

    I really, really hope the test results are encouraging for you and that your real health problems prove to not be too bad for you. But if you're getting tests done then you're in the best hands you possibly could be! And if you're still able to exercise through it all, that's a great sign at least that you're being proactive and not letting worry hold you down entirely.

  10. #10
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    Re: The Complete Chronicles of Dommy's Experience With Bowel-related Health Anxiety!

    Just want to say that you write extremely well. As you said, a stream of consciousness, done so in such a way with your verbiage and style, draws you in like a good book. It shows a very interesting and accurate picture of anxiety. If you haven't considered documenting your anxiety journey, I would consider doing so. I believe your writing could inspire others to get help and get on the road to recovery.

    Positive thoughts
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

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