Needle aspiration/biopsy of son's brain

[SarahNah]

I don't have much experience with like this-just wanted to say I'll be thinking of both you and Gavin during this time xxx

[Fishmanpa]

When my wife was ill with a very rare type of encephalitis, they found a mass on her thymus gland. The chances were it was cancerous based on the pathology of her illness and the causes. Turned out to be benign. The same thing applies with a glioma. Hang onto that hope. When push comes to shove, you'll be there, trust me.

Keeping you and Gavin in....

Positive thoughts

[pray4me]

I don't post on here much. I am really sorry that your family is going through this. I hope things turn out ok for all of you.

[NervUs]

I am so sorry, truly no words. This is every parent's worst nightmare, and it is a gut punch to think of Gavin's fear and the long wait ahead You are who he has and who he needs. I don't pray but I am thinking of you.

[Hypo27]

I’m truly so sorry you are going through this. I’m praying hard for you and your family I can’t begin to imagine what your going through...

[j2]

I am glad I have so many people in my corner here on this site. I talked to surgeon today and he is telling us that the pathologist with have results 16th, then the oncologist and the surgeon will put together a plan for early next year. The surgeon wants to aggressively cut parts of his brain and he keeps talking about complications and having to do things like relearn to speak or walk or God knows what. I have been able to hold it together most of the day but right now I am spiraling my wonderful, smart, kind little guy having this thing in his head that is trying to kill or forever disable him. I am sorry.

[MyNameIsTerry]

You have nothing to apologise for, we would all be in distress too. If it comes to relearning areas of life he will get expert support and kids are amazingly agile compared to adults when it comes to learning. But until you reach then what can you do but put faith in those that work miracles daily? He may not experience what they say but they have to prepare you for the tough road ahead.

There is still hope.

[NancyW]

J2 you mentioned being in the states, we have outstanding hospitals and specialists. Are you in a large city? Well known hospital?

It sounds like regardless of the results they want to get it out of there. That makes sense since it was causing him symptoms.

I still feel encouraged that between the initial tests and the recent test it did not grow. Whatever it is doesn't appear to be growing fast.

I just cant stop thinking about you and Gavin. Some of us are praying to God, some are directing faith in the drs, no matter we are all sending you positive energy. Of course best case is benign pathology but if not, best outcome possible and a return to the business of being an awesome little guy.

xo

[NervUs]

I am glad I have so many people in my corner here on this site. I talked to surgeon today and he is telling us that the pathologist with have results 16th, then the oncologist and the surgeon will put together a plan for early next year. The surgeon wants to aggressively cut parts of his brain and he keeps talking about complications and having to do things like relearn to speak or walk or God knows what. I have been able to hold it together most of the day but right now I am spiraling my wonderful, smart, kind little guy having this thing in his head that is trying to kill or forever disable him. I am sorry.

Oh god! I know this is impossible to do-- and I feel like a fool for even saying it-- but try not to let doctors get ahead of you. They haven't done the biopsy and don't really know what they're dealing with. For whatever reason, yours is spewing information without all the facts. But, sometimes, what the front line doctors think at first turn out not to be the recommended course of action. The specialists you go to after biopsy are the ones that will have the plan. I am sure your doctor is trying to help, and get you in the frame of mind to understand that this will be a major surgery and adjustment. But, whatever is said at this stage is not gospel. It must be excruciating to just have to sit and wait for this to play out, but it will take moment by moment to really know all the details and effects on your son. Maybe you can find some strength in practicing not letting your fears jump the gun? I am thinking of you.

[ta333]

J2, I'm really sorry to hear this. Hopefully it's just a simple tumor that won't need too much treatment besides surgery. Don't jump to conclusions before you get the biopsy results, even if the doctor says otherwise. I had a family member with a tumor, & the doctor told us the tumor was a certain thing & then the pathology came out to be something much more benign. You & Gavin are in my family's prayers.