Spiralling

[pulisa]

What advice did the Consultant who diagnosed you give re work? Do you see this consultant on a regular basis now to monitor your condition?

[zippy]

No I don't see anyone infact the dr probably doesn't even know ive got it, immunologist said i had it.I've said before on here I got tested for ms because of lesions on brain scan but the neuro thought it was migraines after lumbar puncture was negative. I also tested weak positive for lyme disease. Thats what i mean whatever I have im used to the symptoms but this feels different.
Dr thinks because my normal bloods are ok I should be reassured and fine.

[pulisa]

So did they retest for lyme disease after the weak positive?

Isn't your CFS recorded on your notes?

[Carys]

Surely Chronic Fatigue Syndrome (myalgic encephalomyelitis) is on your notes, I don't see how the doctor could not know - you must have mentioned it at the least in person yourself ?

[Fishmanpa]

Something isn't adding up. Your medical records would include these things.

Positive thoughts

[zippy]

It's always different drs I see so it doesn't always get brought up if i dont mention it.

[zippy]

Pulisa no i got a private blood test done for lyme from Germany so my gp wouldnt accept the test.

[Gary A]

It's always different drs I see so it doesn't always get brought up if i dont mention it.

If you’d been previously diagnosed with CFS your symptoms would be getting put down to that, surely.

You can’t go for a barrage of tests without these doctors being aware of you being previously diagnosed with CFS, and if you do then these doctors really need a lesson in gathering patient history.

[pulisa]

Was it an NHS diagnosis, zippy?

[zippy]

For what pulisa the m.e or lyme test?