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Thread: Any fellow ulcerative colitis sufferers?

  1. #1

    Any fellow ulcerative colitis sufferers?

    Hi all I'm a 48 year man , I was diagnosed with UC two years ago , I've been on numerous treatments which have only worked for a little bit. Now my medical team have decided to put on humira which I inject at home I'm also on azathioprine 100mg and asacol 6 a day as well as 30mg of pred. All of which are immune suppression drugs. I'm really concerned about all this medication and picking up something, especially this new virus coming out of China. Anyone with any experience of this medication or UC , I'd love to hear from you .

    Thanks

  2. #2
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    Re: Any fellow ulcerative colitis sufferers?

    I have Crohns and UC and I am on mercaptopurine which reduces my immune system as well.
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    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

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  3. #3
    Join Date
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    Re: Any fellow ulcerative colitis sufferers?

    I have Crohn's and am on humira weekly

  4. #4

    Re: Any fellow ulcerative colitis sufferers?

    Quote Originally Posted by Capercrohnj View Post
    I have Crohn's and am on humira weekly
    How are you finding the humira?

    Sent from my ELE-L09 using Tapatalk

  5. #5

    Re: Any fellow ulcerative colitis sufferers?

    Quote Originally Posted by nomorepanic View Post
    I have Crohns and UC and I am on mercaptopurine which reduces my immune system as well.
    Have you had any issues with your medication? Has it helped?

    Sent from my ELE-L09 using Tapatalk

  6. #6
    Join Date
    Apr 2003
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    Re: Any fellow ulcerative colitis sufferers?

    I was on azathioprine once but it made me physically sick so they had to stop it.

    I am fine on mercaptopurine though and yes it keeps the Crohn's under control.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




  7. #7

    Re: Any fellow ulcerative colitis sufferers?

    Quote Originally Posted by nomorepanic View Post
    I was on azathioprine once but it made me physically sick so they had to stop it.

    I am fine on mercaptopurine though and yes it keeps the Crohn's under control.
    It really messed with my liver at the beginning, but it's within range now. It's horrible being on these drugs, but anyone with ibd knows the alternative.

    Sent from my ELE-L09 using Tapatalk

  8. #8
    Join Date
    Nov 2016
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    476

    Re: Any fellow ulcerative colitis sufferers?

    The humira is helping I think. I currently have cringe my stomach so the symptoms are different than lower GI Crohn's (I had my colon and rectum removed 2.5 years ago and have permanent ileostomy)

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