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  1. #1
    Join Date
    Dec 2016
    Posts
    81

    Convinced I have Crohn's disease

    I'm sitting up after another sleepless night in pain thinking about how I probably have an IBD. I've always had a sensitive stomach (suspected IBS) but flare ups never lasted more than a day or two. Then over Christmas I had bad diarrhea. It started in the middle of the night and I had nonstop diarrhea for 3 days.

    After that cleared up I was back to relatively normal, but still had diarrhea a couple times a week. Then I started feeling bloated and crampy all the time. I went to the doctor and she said it might be GERD. I started taking a PPI but it actually seemed to make the gas worse so I stopped. I actually felt constipated so I ate a salad to get things going again. It worked too well and I had diarrhea. Since then I have not had one normal bowel movement. As soon as I'm fully awake (which is earlier than I want with the insomnia) I have to go to the bathroom and have a loose, pale, smelly BM. Even though they're small loose stools it hurts to pass. I have a constant cramp in my lower left abdomen that won't go away, and the "urge" feeling all day, as well as farting and burping all the time (and the farts smell!) Other days I'm constipated in the morning but then have diarrhea later. When I have to go it's very urgent.

    Everything I eat makes me gassy and worsens the cramping, so I'm down to eating just toast, plain rice, boiled chicken, etc. I've been on this diet for over 2 weeks and I've lost almost 10 pounds. This is also incredibly demoralizing since I love to cook and going out to eat with friends was one of my main activities on the weekend.

    I got blood work done and I'm still waiting on some results but I think I might be anemic because the doctor ordered additional iron tests.

    I keep doing research and all my symptoms seem to point to an IBD. Probably Crohn's not UC since I haven't seen any blood. I have some other possible Crohn's signs too like itchy bumps on my skin. I can't stop thinking about how I'll never be able to eat normally again, will have to quit my job, spend all my time in the hospital, etc. I live alone and don't have anyone to take care of me if that happens.

    I got a referral to a GI doctor but their first available appointment is 4 weeks away I'm in pain and freaking out. I'm starting a new job in a few weeks and I don't know how I'm going to deal with it if I'm always sick.

  2. #2
    Join Date
    Apr 2003
    Location
    , , United Kingdom.
    Posts
    43,831

    Re: Convinced I have Crohn's disease

    I have crohn's and eat normally, work and live alone so you shouldn't worry about those things.

    It is not crohn's until they say it is though.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

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  3. #3
    Join Date
    Dec 2016
    Posts
    81

    Re: Convinced I have Crohn's disease

    I’m glad to hear that. All I see are horror stories.
    I just really want to have this appointment so I can get an answer.

  4. #4
    Join Date
    Apr 2003
    Location
    , , United Kingdom.
    Posts
    43,831

    Re: Convinced I have Crohn's disease

    The only way they can know for sure is with a colonoscopy so I doubt you will get that in 4 weeks.

    It could just be IBS though.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




  5. #5
    Join Date
    Dec 2016
    Posts
    81

    Re: Convinced I have Crohn's disease

    Update: my blood test came back very abnormal with elevated liver enzymes and low red blood count. I’m even more scared now!

  6. #6
    Join Date
    Apr 2003
    Location
    , , United Kingdom.
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    43,831

    Re: Convinced I have Crohn's disease

    So what did they say about it and suggest?
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




  7. #7
    Join Date
    Dec 2016
    Posts
    81

    Re: Convinced I have Crohn's disease

    Nothing yet I need to set up an appointment. The doctor just asked if I drink a lot (I don't drink AT ALL). Just trying not to panic until I learn more.

  8. #8
    Join Date
    Apr 2003
    Location
    , , United Kingdom.
    Posts
    43,831

    Re: Convinced I have Crohn's disease

    We have had a few people with these elevated results and nothing sinister was found so good luck.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




  9. #9
    Join Date
    Sep 2017
    Posts
    190

    Re: Convinced I have Crohn's disease

    Quote Originally Posted by Librella View Post
    Update: my blood test came back very abnormal with elevated liver enzymes and low red blood count. I’m even more scared now!

    My son had the same, and was diagnosed with ulcerative colitis. Let us know how you go on. You can still live a normal life with chrons and UC.
    __________________
    I'm not like them, but I can pretend

  10. #10
    Join Date
    Mar 2018
    Posts
    628

    Re: Convinced I have Crohn's disease

    A friend of mine has Chron's she works and lives alone and enjoys life, Chron's is not a death sentence.
    __________________
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