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Thread: Convinced I have Crohn's disease

  1. #11
    Join Date
    Dec 2016
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    74

    Re: Convinced I have Crohn's disease

    People here saying it does sound like IBD isn't really helping my suspicions about it but at least it's not a death sentence like you said. I am also scared about cancer now. I went back to the dr with continuing abdominal pain yesterday, and she referred me to a full CT scan instead of just an ultrasound. I am also supposed to see the GI doctor next week. I'm worried about the CT scan and what it might find.

    My diarrhea has actually been a little better the last 2 days and I've been able to eat a bit more, but still have cramping. I don't know if it's just because I'm at home and resting because I felt pretty awful at work on Thursday.

    The doctor also gave me xanax for the anxiety so I at least got some sleep with that last night.

  2. #12
    Join Date
    Sep 2017
    Posts
    174

    Re: Convinced I have Crohn's disease

    Sorry, I didn't mean that you have ibd, I was just trying to calm your fears about not being able to live a normal life if it happened to be ibd.

    Hope it's just ibs or a weird bug that's going around. Let us know how you're doing.
    __________________
    I'm not like them, but I can pretend

  3. #13
    Join Date
    Dec 2016
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    74

    Re: Convinced I have Crohn's disease

    Thanks Snowy, sorry I misinterpreted.

    I saw the GI doctor today. Ran more tests for different infections and I have a breath test scheduled for a few weeks as well as the ultrasound on Friday. He also recommended I try the low FODMAP diet. I am not looking forward to that since I’ve been living off carbs/gluten lately but it’s worth a try.

  4. #14
    Join Date
    Feb 2016
    Posts
    1,199

    Re: Convinced I have Crohn's disease

    If you do have Crohn's then gluten is one of the worse offenders! Try ditching all gluten and yes the FODMAP diet (or Keto) would be much more suitable

  5. #15
    Join Date
    Dec 2016
    Posts
    74

    Re: Convinced I have Crohn's disease

    Also has anyone here taken Bentyl? My dr prescribed it for the cramps but I’m scared it will make me drowsy or loopy, so I don’t know if I should be taking it throughout the day like it says on the bottle.

  6. #16
    Join Date
    Dec 2016
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    74

    Re: Convinced I have Crohn's disease

    I had my liver ultrasound yesterday. I need consult with my doctor on it but the radiologist said my liver looks fine. But my liver enzymes were 5 times the normal. (ALT over 500, the other markers like bilirubin were normal.) I’m still scared there’s something the ultrasound didn’t pick up. I have stopped all medications for now to see if that helps. My stomach problems have actually gotten better other than still having morning diarrhea. I was taking Bentyl and a probiotic that helped so hopefully stopping those won’t set me back again.
    Last edited by Librella; 08-02-20 at 14:27.

  7. #17
    Join Date
    Dec 2016
    Posts
    74

    Re: Convinced I have Crohn's disease

    I don’t know if anyone is still reading this but for future reference. My stool test came back positive for E. coli. I don’t understand how I still have it since the doctor says it’s supposed to be a self limiting infection that you heal from quickly. I’m going to try an antibiotic but need liver enzymes to come down first. My liver is a medical mystery, ultrasound was normal and I’ve tested negative for everything else. I don’t know if I should be relieved or more anxious about this.

  8. #18
    Join Date
    Sep 2017
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    174

    Re: Convinced I have Crohn's disease

    I would probably be relieved that it is something highly treatable and that goes away, and not IBD.
    __________________
    I'm not like them, but I can pretend

  9. #19
    Join Date
    Dec 2016
    Posts
    74

    Re: Convinced I have Crohn's disease

    Yes I am relieved but anxiety brain just keeps saying what if they missed something!

    I saw the liver doctor and he said the liver enzymes were probably a result of the infection or medications. I have to monitor it weekly for a while.

    I will start antibiotics Monday, the liver doctor said I can take it even though they can sometimes damage the liver? I’m a bit scared of the side effects (ie more diarrhea). Has anyone here taken azithromycin?

  10. #20
    Join Date
    Jan 2016
    Posts
    461

    Re: Convinced I have Crohn's disease

    I’ve take. Azithromycin many, many times. It’s a pretty standard antibiotic so I’m sure it will be fine!

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