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Thread: Worried about lymphoma

  1. #11
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    Re: Worried about lymphoma

    Change of plan, and I just had my blood tests. Now the wait for the results. I'm not feeling good about this, guys.

    One problem I have is that if I start feeling anxious I just stop eating. It feels almost physically impossible to eat. When I had my breakdown a couple of years ago I barely ate for months and lost 2.5 stone. I'm now just about back up to a healthy weight, but today I've only managed half a sandwich, a packet of crisps, and a fruit smoothie so far. And lots of tea. I'm not sure how I'll manage dinner, but I'll try to eat something. I'm going to have some warm milk now because I can drink ok, and at least that has calories!

  2. #12
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    Re: Worried about lymphoma

    IMG_20200218_075125 (1).jpg

    Here's the offending lump! Photos are ok, right? It's pretty visible as you can see. The other lump can't really be seen as it's buried in my jaw.

  3. #13
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    Re: Worried about lymphoma

    Know what? I hate lymph nodes. I've been dowm this road and it's absolutely miserable.

    My youngest son had a whole string of them pop out in the exact place yours is.

    What I learned was once they are up, they'll go down when they damn well feel like it. (I was given a time frame by the dr that was clearly wrong)

    In the end, I also learned once they are up, they may never go back down as small as they were. They can scar and stay permanently enlarged.

    Also learned the way they function is not exactly a 2 way street. They can swell quick but the draining system in them is poor so they take for ever to go down.

    I just hate them.

  4. #14
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    Re: Worried about lymphoma

    Quote Originally Posted by NancyW View Post
    Know what? I hate lymph nodes. I've been dowm this road and it's absolutely miserable.

    My youngest son had a whole string of them pop out in the exact place yours is.

    What I learned was once they are up, they'll go down when they damn well feel like it. (I was given a time frame by the dr that was clearly wrong)

    In the end, I also learned once they are up, they may never go back down as small as they were. They can scar and stay permanently enlarged.

    Also learned the way they function is not exactly a 2 way street. They can swell quick but the draining system in them is poor so they take for ever to go down.

    I just hate them.
    Really? I'm glad your son's ok. Did they find out what it was in his case?

    I know I just have to wait for the blood results anyway. Either they'll say something bad, or they won't. Even if they don't, I guess they'll still do a biopsy if the nodes stick around? Idek.

  5. #15
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    Re: Worried about lymphoma

    He's fine.. all the drs said was they were up due to "some virus"
    I can still see them today and they were originally up 20 years ago. Just dumb.

  6. #16
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    Re: Worried about lymphoma

    Quote Originally Posted by O_O View Post
    Really? I'm glad your son's ok. Did they find out what it was in his case?

    I know I just have to wait for the blood results anyway. Either they'll say something bad, or they won't. Even if they don't, I guess they'll still do a biopsy if the nodes stick around? Idek.
    These days they U/S suspicious lymph nodes and they can see by the thickness of the wall (outside lining of the node) whether it needs to be biopsied or not. If the wall is a consistent thickness all round then the nodes/s are fine. I learned this from a ENT specialist when I had a persistent submandibular node come up. It was a bit bigger than yours, but harder to see under the chin and it was sore. It resolved within 12 weeks.

    My bloods were all fine but I was quite rundown at the time, it was Winter! Good luck with it all.
    Last edited by WiseMonkey; 18-02-20 at 21:13.

  7. #17
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    Re: Worried about lymphoma

    Quote Originally Posted by WiseMonkey View Post
    These days they U/S suspicious lymph nodes and they can see by the thickness of the wall (outside lining of the node) whether it needs to be biopsied or not. If the wall is a consistent thickness all round then the nodes/s are fine. I learned this from a ENT specialist when I had a persistent submandibular node come up. It was a bit bigger than yours, but harder to see under the chin and it was sore. It resolved within 12 weeks.

    My bloods were all fine but I was quite rundown at the time, it was Winter! Good luck with it all.
    Thanks Wise. Glad yours turned out to be nothing. I actually kind of wish mine WERE sore... I'd probably be thinking less lymphoma more infection, then! The one in the photo was never sore at all really. The one in my jaw was tender when it first came up but now the tenderness has basically gone and the lump is still there... if anything, it's got bigger.

  8. #18
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    Re: Worried about lymphoma

    I had two lymph nodes come up in my groin 1 each side, one was a quite small and sore and one was probably the same size as yours maybe even slightly bigger, the tenderness only lasted a day, I went to doctors and they said one was quite big but he checked my legs and I had a minor scratch which he said could be the course of it, went back in two weeks as it hadn't gone down and he done blood tests but all came back fine, the node has never come gone down and that was over 2 years ago and nothing ever came of it!

    I also have one above my colar bone which can been seen, this was pre HA days so I never worried about it just assumed it was due to illness and that was years ago!

  9. #19
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    Re: Worried about lymphoma

    Quote Originally Posted by ShaunRyder View Post
    I had two lymph nodes come up in my groin 1 each side, one was a quite small and sore and one was probably the same size as yours maybe even slightly bigger, the tenderness only lasted a day, I went to doctors and they said one was quite big but he checked my legs and I had a minor scratch which he said could be the course of it, went back in two weeks as it hadn't gone down and he done blood tests but all came back fine, the node has never come gone down and that was over 2 years ago and nothing ever came of it!

    I also have one above my colar bone which can been seen, this was pre HA days so I never worried about it just assumed it was due to illness and that was years ago!
    That's good news Shaun, I'm glad all was fine with you 🙂 I guess it goes to show that inexplicable swollen nodes can just be idiopathic sometimes. Hoping for a similar result in my case. I'm not feeling at all good about it, but... that's how everyone feels when they're anxious about their health. Just when it's you, you feel like you're unique. To me it just seems logically and statistically most likely to be lymphoma, and I also just sort of feel it, but I could be wrong. I hope I'm wrong.

  10. #20
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    Re: Worried about lymphoma

    My coworker's son who did have lymphoma had a lump right where the neck and shoulder meet.. she described it as a "fist" sticking out of his neck.

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